Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30, 2025

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

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Profile picture for jessie1990 @jessie1990

@nannybb also told me it's typical carcinoid it's not aggressive but he will need to send off the remaining tumor and lymph nodes to check do I need treatments like chemo thought typical carcinoid don't need treatments like that

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@jessie1990 I hope you are getting all of my replies. One thing to remember about what is remaining of your original tumor, all of your reports from that came back benign. I think perhaps they just want to get the rest out because it was blocking your airway (?) And checking your lymph nodes, they can determine other things. I think they are making sure everything is clear, which will, in the end make some of your worries go away. It's all good ❣️

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Profile picture for nannybb @nannybb

Also Jess, a carcinoid tumor that is typical, is usually slow growing, if it is going to grow at all. My surgeon told me I was "lucky" it was this type of cancer. The fact that it is rare, many surgeons decide on different treatments. Keep telling yourself you are finally going to get the rest of the tumor out, and then ask all your questions of your doctor. You may be worrying about things that will turn out to be fine. Your waiting is over Jess. You are exactly where you need to be in the moment. 💕

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@nannybb I'm worried sick 😭

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Profile picture for nannybb @nannybb

@jessie1990 Jess they will determine the next steps after they get a pathology report from what they obtain in surgery. If your tumor has remained stable from your last surgery, and they are just going in to make sure they get it all, I would not think you need chemical therapy afterwards. BUT, I am not a doctor. My new doctor is a NETs specialist, and he takes things in a less evasive manner than my first doctor. With my remaining three nodules, he is inclined to watch and wait...monitor them. Talk all of your worries over with your surgeon. After he gets to where he needs to in the operation, I'm sure he will be able to give you more information. Still praying Jess.

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@nannybb I no but if my biopys came back typical carcinoid one of my lymp nodes were checked and a big portion was removed also typical he said its not an aggressive cancer surely it won't turn atypical from September would it

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Profile picture for jessie1990 @jessie1990

@nannybb nope not a wink

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@jessie1990 Jess, do you know exactly when you are scheduled for the operation? Me being in U.S. I'd have to check the time difference.

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Profile picture for nannybb @nannybb

@jessie1990 I hope you are getting all of my replies. One thing to remember about what is remaining of your original tumor, all of your reports from that came back benign. I think perhaps they just want to get the rest out because it was blocking your airway (?) And checking your lymph nodes, they can determine other things. I think they are making sure everything is clear, which will, in the end make some of your worries go away. It's all good ❣️

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@nannybb yes I'm getting them I'm just worried now to be honest why tell me it's typical then tel me different when surgery is in the morning

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Profile picture for nannybb @nannybb

@jessie1990 Jess, do you know exactly when you are scheduled for the operation? Me being in U.S. I'd have to check the time difference.

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@nannybb it's tomorrow afternoon be the 8th of December I've had xray bloods urine done need ct in morning did you get epidural before you went to theatre I've to get that also

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Profile picture for jessie1990 @jessie1990

@nannybb I no but if my biopys came back typical carcinoid one of my lymp nodes were checked and a big portion was removed also typical he said its not an aggressive cancer surely it won't turn atypical from September would it

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@jessie1990 Jess, any tumor can morp into something more serious. This type of tumor, like I said, is slow growing. Many doctors go ahead and do surgery to remove the tumor and check lymph nodes just to make sure. The one really good thing is so far, everything has come back benign. You mustn't worry that things could be worse. Did anyone tell you what stage your cancer is?

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Profile picture for jessie1990 @jessie1990

@nannybb it's tomorrow afternoon be the 8th of December I've had xray bloods urine done need ct in morning did you get epidural before you went to theatre I've to get that also

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@jessie1990 No. I did not have an epidural. But your cancer is in a totally different location than mine. Ask the nurses why they are doing that if it would make you feel better. I'm surprised they are telling you all of this now. I would have thought your doctor would have discussed all of this in an office visit. I'm sorry he didn't. You have the right to ask anything before they actually operate. Did you ask for meds. for your anxiety? I don't know how they feel about that in Ireland. They did it for me in my I. V.

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Jess, are they giving you general anesthesia?

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Profile picture for nannybb @nannybb

@jessie1990 Jess, any tumor can morp into something more serious. This type of tumor, like I said, is slow growing. Many doctors go ahead and do surgery to remove the tumor and check lymph nodes just to make sure. The one really good thing is so far, everything has come back benign. You mustn't worry that things could be worse. Did anyone tell you what stage your cancer is?

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@nannybb nope just said typical carcinoid slow growing

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