Amazing result from taking mavacamten

Hi @bepeacefulall - it's great to see another fellow Canuck joining the fold! You're lucky to be at Peter Munk. Here in my small town, I was lucky to have a fantastic cardiologist who told me about Camzyos and asked me to spend a week or two reading up on it. Like you.

Pros and cons of Camzyos? The only con is something I can't definitively pin on Camzyos, but if it was at fault, this was a small price for me to pay - after a few months I was put on a low dose Losarten for slightly high blood pressure. Pro? Literally everything. I could go for a walk, ties my shoes, climb a flight of stairs, eat a proper meal, ... Never mind - the rest of the good folks here are sick of hearing me preach the Camzyos gospel by now 🙂 As always, that's just my personal experience - your mileage may vary.

As for the approval process, when I started there was something called the REMS program. I don't know if they still do it this way, but I just had to fill out a one or two page form and my cardiologist filled out a couple more pages. A few weeks later the meds arrived. Easiest thing ever.

@boatsforlife, Thank you, boatsforlife, for connecting with your Canadian experience. I have been reading your posts and they are very informative and helpful.
Just wondering about the financial aspect, did your cardiologist get OHIP, Trillium or your provincial provider to pay for it? I understand it is $13000/year and I don’t have private health insurance.
All the best to everyone on this journey.

Hi @bepeacefulall - it's great to see another fellow Canuck joining the fold! You're lucky to be at Peter Munk. Here in my small town, I was lucky to have a fantastic cardiologist who told me about Camzyos and asked me to spend a week or two reading up on it. Like you.

Pros and cons of Camzyos? The only con is something I can't definitively pin on Camzyos, but if it was at fault, this was a small price for me to pay - after a few months I was put on a low dose Losarten for slightly high blood pressure. Pro? Literally everything. I could go for a walk, ties my shoes, climb a flight of stairs, eat a proper meal, ... Never mind - the rest of the good folks here are sick of hearing me preach the Camzyos gospel by now 🙂 As always, that's just my personal experience - your mileage may vary.

As for the approval process, when I started there was something called the REMS program. I don't know if they still do it this way, but I just had to fill out a one or two page form and my cardiologist filled out a couple more pages. A few weeks later the meds arrived. Easiest thing ever.

Hello.
I am happy to hear about the positive results with Camzyos.
Was diagnosed with oHCM 7 years ago, on a beta blocker for about 4 years. My doctor now is recommending Camzyos 5 mg. Just wondering about the approval process in Canada, I am at the Munk Centre in Toronto, 73 years old. Any feedback about the pros and cons of Camzyos from your experience and about the approval process is welcome

@bepeacefulall - financially, when I signed on the numbers being tossed around were something like US$89000 per year. I have no idea about how valid those numbers were except to say that it would have been out of my reach at 1/8 of that, so I understand your concern. I'm in Alberta, so it wouldn't have been OHIP/Trillium, but I really don't know how they handled it. The REMS program (I hope it still exists for you) came with a nurse-case-manager who navigated all of this for me. I *believe* (but could be wrong) that the manufacturer still has a program that can assist with the costs beyond what provincial/private can cover. Your cardiologist will be well connected with how it all works. Good luck with the whole thing.

Good day. Another Canadian, this time from Ontario. I’ve been on Camzyos since November 2023, and since then it has been provided to me through a dispensing pharmacy. It is my understanding that all the costs have been absorbed by the manufacturer Bristol-Myers Squibb. I believe that the drug has been added to Ontario drug benefits plan(ODB) for special use. Currently, I don’t meet the gradient threshold for ODB so I’ve been assured that I will be continuing on the provision of Camzyos by BMS. For this I am very grateful. I also thank my very capable and perceptive cardiologist. Be well.