Amy long-term survivors in our group?

Posted by debdeb1 @debdeb1, Nov 29 5:02pm

Just general question of how many are long term survivors.?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Gratefully for me it's been 37 years since being diagnosed with stage ll breast cancer.

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Profile picture for zebra26 @zebra26

Gratefully for me it's been 37 years since being diagnosed with stage ll breast cancer.

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@zebra26 Wonderful! Very happy for you! Would love to hear what treatments you had & any words of wisdom you might want to share with us newbies, as you look back on your journey! Again, congratulations in your successful outcome!

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I was a long term survivor of 30 years (since age 43) after chemo & mastectomy. But new "recurrence" at age 73 under the ribs near the old site. Very slow growing I guess?

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I'm sorry to hear about your recurrence. I would guess that this is the biggest fear we have - will it come back? When? Where? I see all the percentages of 5 year survival, 10 year survival ... I see that and think it doesn't make me feel comfortable knowing that sometimes that means recurrence, treatment and survival. Has anyone seen any information on clinical research/trials of medications/treatments that seek out dormant/sleeper cancer cells and destroy them? I would love to hear any info about this.

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Here's a story of hope. My mom had breast cancer at 45. No mammograms' back then. She had a radical mastectomy and a hysterectomy and cobalt treatments. Also lymph node removal. We don't remember how many. She was BRACA 2 positive we learned many years later. She lived many years healthy then found a pin head sized tumor in her right breast 25 years later. She had another mastectomy and no treatment. She lived to be 90 and died from a heart attach. She had gone to exercise class the day before. She believed in the power of prayer strongly. I too believe in the power of prayer and it's helping me get through my 2nd breast cancer diagnosis. I am truly lucky first was stage 0. This one is stage 1a. They watch me like a hawk. I do not have the BRACA 2 gene. I'm just old and #8!!!! ( I'm 72) My grandniece is Braca positive. At 24 she had a double mastectomy and implants. She was diagnosed with MS at 18. She said she couldn't live with 2 big health issues. So warriors who I look up to on this site keep your chins up and there is so much hope and so much to be thankful for even on the most trying days. Praying for you all every day.

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Profile picture for zebra26 @zebra26

Gratefully for me it's been 37 years since being diagnosed with stage ll breast cancer.

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@zebra26 Love hearing this

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Profile picture for jmab @jmab

@zebra26 Wonderful! Very happy for you! Would love to hear what treatments you had & any words of wisdom you might want to share with us newbies, as you look back on your journey! Again, congratulations in your successful outcome!

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@jmab
Thank you for the Congrats.
I was in a clinical trial in 1988 the treatment I received including surgery was
5-FU
Adriamycin
Cytoxan
Tamoxifen.
I really don't have words of wisdom, but what I can say is once I understood & accepted the disease and treatments. I remained positive in my daily life. I just celebrated my 71st bday last month, and I remain positive that there will be many more!

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Profile picture for reeno @reeno

I'm sorry to hear about your recurrence. I would guess that this is the biggest fear we have - will it come back? When? Where? I see all the percentages of 5 year survival, 10 year survival ... I see that and think it doesn't make me feel comfortable knowing that sometimes that means recurrence, treatment and survival. Has anyone seen any information on clinical research/trials of medications/treatments that seek out dormant/sleeper cancer cells and destroy them? I would love to hear any info about this.

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@reeno I read that researchers are conducting clinical trials that use existing oral drugs, such as hydroxychloroquine and everolimus, to target and eliminate dormant breast cancer cells. These "sleeper cells" are resistant to traditional chemotherapy and can reactivate years later, leading to recurrence. Early trial results are promising, showing that the drugs can clear dormant cells and significantly lower recurrence rates in participants.

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Profile picture for maymore @maymore

@reeno I read that researchers are conducting clinical trials that use existing oral drugs, such as hydroxychloroquine and everolimus, to target and eliminate dormant breast cancer cells. These "sleeper cells" are resistant to traditional chemotherapy and can reactivate years later, leading to recurrence. Early trial results are promising, showing that the drugs can clear dormant cells and significantly lower recurrence rates in participants.

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@maymore
Thank you. If you have any information on this can you send it to me?

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Profile picture for marceille08 @marceille08

Here's a story of hope. My mom had breast cancer at 45. No mammograms' back then. She had a radical mastectomy and a hysterectomy and cobalt treatments. Also lymph node removal. We don't remember how many. She was BRACA 2 positive we learned many years later. She lived many years healthy then found a pin head sized tumor in her right breast 25 years later. She had another mastectomy and no treatment. She lived to be 90 and died from a heart attach. She had gone to exercise class the day before. She believed in the power of prayer strongly. I too believe in the power of prayer and it's helping me get through my 2nd breast cancer diagnosis. I am truly lucky first was stage 0. This one is stage 1a. They watch me like a hawk. I do not have the BRACA 2 gene. I'm just old and #8!!!! ( I'm 72) My grandniece is Braca positive. At 24 she had a double mastectomy and implants. She was diagnosed with MS at 18. She said she couldn't live with 2 big health issues. So warriors who I look up to on this site keep your chins up and there is so much hope and so much to be thankful for even on the most trying days. Praying for you all every day.

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@marceille08 Yay!
I am only 5 1/2 years out, but my grandma also had BC in her 40s (she was born in 1913), and she lived a long healthy life and passed away at 96.

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