Autoimmune Fatigue and/or Chronic Fatigue

Posted by Langold @rarelybees2889, Jan 8, 2020

Hi Wondering if anyone has been diagnosed with autoimmune fatigue and/or chronic fatigue? I was diagnosed at Mayo Clinic. I wish there was more research into both of these...

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

This is a good discussion... There is new research on Chronic Fatigue, as many people with long COVID have it. Some places, like Mayo Clinic, have guidelines in place to identify it, but treatments are still limited.

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Profile picture for sharing @sharing

Thank you but so far no dermatologist will commit to checking the vulvar area. Am I checking the wrong places?

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@sharing If I was in your situation, I would be very blunt with my dermatologist. Explain your history, and query if they are willing to do a complete check. If they are not, ask why and how you should go about it. They might defer you to your gynecologist.

I have had several types of skin cancer, including amelanotic melanoma [uncolored]. It is an unusual type, and was on my right forearm. I get checked twice a year.
Ginger

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That’s crazy. Have you tried a female dermatologist? Are you near any medical centers/teaching hospitals?

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AAD is the American Association of Dermatology. I would call them. You want a board certified dermatologist. The initials FAAD after their name indicates they are board certified.

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Profile picture for sharing @sharing

TY, Ginger. I’ve found dermatologists and would like to find someone to examine ALL my skin…everything everywhere....but it looks as though there are no doctors that would do both at once. Am I correct?
Thank you so much for your kindness.❤️

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my derm looks at every inch of my skin, even bottom of my feet, top of my scalp. I did have a squamous cell carcinoma on my nose 2 yrs ago and i take Humira and Imuran (which i guess slightly increases your risk of certain cancers) and so she inspects me every 6 months. The derm i went to before did not and after he left the room and the nurse was asking if i had questions, i said "yes, is he going to examine me?" she looked surprised and said "he didnt examine you", I said" he acted like he was, but i have no faith in that exam" she went back out and brought him back in and watched him examine me a bit more thoroughly but begrudgingly. At that point, i said never mind, i will find a new doctor who wants to take care of me, and walked out.

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Profile picture for stephkleier @stephkleier

my derm looks at every inch of my skin, even bottom of my feet, top of my scalp. I did have a squamous cell carcinoma on my nose 2 yrs ago and i take Humira and Imuran (which i guess slightly increases your risk of certain cancers) and so she inspects me every 6 months. The derm i went to before did not and after he left the room and the nurse was asking if i had questions, i said "yes, is he going to examine me?" she looked surprised and said "he didnt examine you", I said" he acted like he was, but i have no faith in that exam" she went back out and brought him back in and watched him examine me a bit more thoroughly but begrudgingly. At that point, i said never mind, i will find a new doctor who wants to take care of me, and walked out.

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Good for you! I only saw the doctor so that he could say that he saw me. He let his girls have a lot of leeway for not being doctors. They sent me home with a list of instructions as to how to apply a “thin layer” of some cancer killing topical cream. REALLY? I was 70 and got the expensive cream but never used it…then came the pandemic, etc., the tube expired. But, wtf? Sorry.

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I found this article from last December. About a New approach to brain fog due to long Covid patients claims of brain fog and mental fatigue. I share here and hope to learn to know different opinions https://www.yalemedicine.org/news/long-covid-brain-fog-treatment

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Profile picture for abrown2 @abrown2

Hello, I am new to this...I am a parent of a 16 year old boy who has had a lifetime of GI issues nobody has been able to diagnose or help and now nearly 2 years of debilitating chronic fatigue and brain fog. He has ben seen by MANY Dr.'s at children's hospital. He has been tested for all sorts of things: thyroid, cardiac, allergies, autoimmune, Lyme's, rocky Mountain spotted fever, infections disease for something picked up while traveling internationally...you name it. Nobody has been able to figure out what is going on or how to help him.
Any ideas? We need all the help we can get?

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@abrown2
Hello! My 10 yr old grandson has just been found to have an immunodeficiency. He has low IgA confirmed with multiple blood tests. My daughter is now waiting for appointments for Pediatric GI and Immunology. Even in the 3rd largest city of the US these appointments are many months away. In view of the test results it seems Peds think he may have Celiac Disease. My son in laws does have family who have Celiac. The difficult part is the doctors don't want him/the family to being a low gluten diet till evaluated by the specialists as this may alter the results of biopsy testing. Just a terrible situation for a young child, but food for thought. Genetic testing immune globulin testing may prove to be beneficial if not already explored. Best wishes.

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