Immunotherapy Scheduling
I am totally new to Keytruda infusions, having only had one a week ago. I was under the impression I'd be routinely scheduled for these infusions every three weeks - on the same day of the week - but to date I've not gotten any information about my next one which ought to be in two weeks on a Wednesday. I've called scheduling twice but have not yet received notification. Is it common to not get notification of the date/time until a few days beforehand?
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Thanks Bryan, Is folfox working for you? Is your cancer in remission? Do you have colorectal cancer?
@grammato3 my husband goes to immunotherapy every three weeks, at his appointment they give him the date of his next one, so he always knows and it’s the same day and time.
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2 Reactions@cris2 Thank you, Yes, once things became more routine the schedule was easier to track and maintain.
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2 ReactionsI have been on Keytruda for about 6 months and always have my next appointment scheduled before I leave the office.
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1 Reaction@jaxthecat How have you been doing on the Keytruda?
@grammato3
For 5 months
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1 Reaction@jaxthecat How have those five months been, any fatigue or other issues that you've experienced or care to share?
Mine was scheduled a couple days later. Send a note through the Portal, I get my fastest results. Best of luck on your journey. It's not fun. But it is the best available.
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2 ReactionsI am tolerating every 3 weeks good. Fatigue is expected.
When we tried a double dose and going every 6 weeks, I had inflammation/stiffness in my legs which led to Prednisone to help.
Going back to the 3 week schedule.
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1 Reaction@jaxthecat I had also been going every 6 weeks w/o any incident after the inital few treatments at 3 weeks. My treatment has been on hold since Sept when I experienced some significant GI issues that may or may not be Keytruda related - I'm having another GI biopsy next week to try to determine if Keytruda played a role - so when I meet with my oncologist on the 22nd I'll see if I can resume immonotherapy and if so, if I go back to every 3 weeks or maintain the 6.
Glad the 3 week schedule is working out for you. Are you anticipating a 2 year treatment plan?
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