Phage Therapy ( alternative of antibiotics) for MAC lung infection
Does anyone try Phage therapy for MAC lung infection?
Currently only a few country like Belgium, Georgia and Poland are applying this for infectious disease like UTI and lung infection.
Phage therapy is a promising afresh therapy, which uses viruses to lyse bacteria responsible for the infection. Bacteriophages have been recently administered under compassionate use to a 15-year-old patient infected with M. abscessus in combination with antibiotics with excellent results.Jan 18, 2021.
I will upload more info for people interested in it. As it has no side effects, it may be a promising way to help MAC patients.
Anyone is welcomed to add any comments or input. Thank you.
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
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@irenea8 You're right, all successful cases were treated by both phages and antibiotics. I did find the presentation but could not download. It's called "A Day of Discovery, Dr Charles Daly, NTM and Bronchiectasis", It's a about 2/3 through-maybe more, where he talks about the phage therapies. Super interesting.
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1 Reaction@mimimary
Intriguing video!
Lets hope that progress is made in the phage industry. We are well on our way here in the U.S. to running out of options with antibiotic resistant infections in the rise.
@mimimary
Amazing video. Thank you for posting
@irenea8
Do you have more info about Phage therapy. I’ve had a terrible time taking Ethambutol and Rifampin and was told to stop taking azithromycin. I’m concerned about what else is available for treatment for MAC. I’m hoping to be eligible for Arikayce but it’s very expensive. I’m discouraged and hope there is something that will help with my lung infection. .Thanks
@yayoek There is an assistance fund for Arikayce where it costs very little to eligible patients. I will look later today for the phone number. Irene5
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1 Reaction@yayoek
That is an old post. I am really not up to date on Phage trials going on in USA for MAC. Did you try using AI to research any trials going on? I did a quick search and got this:
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1 Reaction@irenea8
Thanks so much for your suggestion. I’ll check it out. I appreciate your response.
@irene5
Thanks again for your suggestion. I’ve applied for Arikayce but my pulmonologist is still battling my insurance company. Arikayce said I have to exhaust all possible insurance denials before I can be considered for help.
@yayoek Goodness. When I was on it I had Medicare and United Healthcare which I still have. It was covered with those and what they didn’t pay the Arikayce Assistance Fund paid. I’ll still send you the number later today after I hopefully warm up enough to look in the basement MAC bin. It’s 22 here today. Too cold for my bones. :)Irene5
@irene5
Hi other Irene, Is your United Healthcare a Part D plan? If so do you know if it is the premium plan or the saver plan. I think they just have the two plans.