Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30, 2025

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Turkey, Volunteer Mentor | @tomrennie | Nov 14, 2025

In reply to @californiazebra "@tomrennie Not fun procedures, but it is of some comfort just having a diagnosis. 🙏🏻" + (show)

@californiazebra Thanks for the feedback. I appreciate it. I will put on my big girl britches that day and will be mentally prepared for some discomfort. Knowing it is coming really helps. Thanks again.

Some of the potential symptoms, like chills and night sweats, I attributed to chemo. I wouldn't know the difference. The doctor agreed.

nannybb | @nannybb | Nov 14, 2025

In reply to @jessie1990 "@nannybb we have warnings here for weather its either yellow orange or red warnings red been..." + (show)

@jessie1990 what the heck is a red? Orange sounds bad enough.

Zebra | @californiazebra | Nov 14, 2025

In reply to @nannybb "@californiazebra Were you anywhere near Cades Cove, or Gatlinburg? I am.so envious !!" + (show)

@nannybb
Gatlinburg —beautiful

nannybb | @nannybb | Nov 14, 2025

Well, it used to be. Not sure how much was destroyed in the flood. That was a horrible mess.

jessie1990 | @jessie1990 | Nov 15, 2025

In reply to @nannybb "@jessie1990 what the heck is a red? Orange sounds bad enough." + (show)

@nannybb red is a more severe weather warning orange been not as bad as red but bad enough

jessie1990 | @jessie1990 | Nov 15, 2025

In reply to @californiazebra "@jessie1990 Sorry you’re missing out on Santa. There should be more opportunities before Christmas. Your aunt’s..." + (show)

@californiazebra yes it is really a nice place my cousin moved to us few years ago thing his in wyoming

jessie1990 | @jessie1990 | Nov 15, 2025

In reply to @nannybb "@jessie1990 Typical. My doctor knew I had a spot on my lung, but I don't recall..." + (show)

@nannybb did they no it was typical before they went in to remove it

Turkey, Volunteer Mentor | @tomrennie | Nov 15, 2025

In reply to @nannybb "@tomrennie Thank you so much My son has gotten involved. I'm now scheduled for an MRI..." + (show)

@nannybb That is awesome. Progress is hopefully being made. Sometimes the squeaky wheel is the one that gets grease. Squeaking loudly usually helps. Good luck with the MRI. Hopefully the results will explain some things.

Turkey, Volunteer Mentor | @tomrennie | Nov 15, 2025

In reply to @californiazebra "@jessie1990 We are also getting ready to enjoy several days of rain!! I just parked my..." + (show)

@jessie1990 @nannybb I will be enjoying the rain after it passes @californiazebra. I live one state east of her in southern Arizona. We get even less rain. Here is an example of why it is easy to get valley fever from breathing in soil spores where I live:
Source: YouTube https://share.google/cq6iVq98aLbmq53lH