Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for John, Volunteer Mentor @johnbishop

Welcome @marika0711, Sorry to hear that the Gabapentin is not providing any relief for the pain in your toes. Wished I had an answer for is it normal, is there any relief but it's a little different for everyone with neuropathy as a treatment that works for one person may or may not work for another person. There are a few other discussions you may want to scan through to learn what others have shared:
-- Peripheral Neuropathy caused by Lupus - Anyone?
https://connect.mayoclinic.org/discussion/autoimmune-diseases/
-- Toe Pain Associated with Peripheral Neuropathy:
https://connect.mayoclinic.org/discussion/toe-pain-associated-with-peripheral-neuropathy/
Have you talked to your doctor to see if there may be some alternative medications that might provide some pain relief?

Jump to this post

@johnbishop thank you.
I am waiting for results on test today. Checking my legs and arm blood flow,trying to see if maybe that's cause. They are trying to figure out the type of neuropathy.
Lupus I have is where it attacks your liver,heart and kidneys. It's internal instead of the butterfly patch on face or skin.I will definitely look at the posts and see what others have tried. Thank you,I am happy to have found others who understands.

REPLY
Please sign in or register to post a reply.