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5.8cm thoracic aorta aneurysm

Posted by komara @komara, Nov 3 9:59am

Hi I have 5.8cm thoracic aorta aneurysm and I haven't to see cardiologist again for 1 year ,he didn't mention if I will be getting it monitored

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komara | @komara | 1 day ago
In reply to @houston13 "@komara I started thinking you were in the UK when you said you had lost 2..." + (show)
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@komara I started thinking you were in the UK when you said you had lost 2 stones of weight, I understand the health system runs differently there and you have to wait long to be seen and referred but I imagine there are ways and exceptions to be seen urgently by a cardiologist and/or surgeon, they are not just going to let you go through this completely untreated and make you wait. Are there any advocacy services that can help you?

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@houston13 hi I received an appointment today I've to get Echocardiogram 3rd of December so thinking my own practice doctor has maybe contacted cardiologist, so will wait for that result ,just happy I'm not getting ignored and thanks again.

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houston13 | @houston13 | 1 day ago
In reply to @komara "@houston13 hi I received an appointment today I've to get Echocardiogram 3rd of December so thinking..." + (show)
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@houston13 hi I received an appointment today I've to get Echocardiogram 3rd of December so thinking my own practice doctor has maybe contacted cardiologist, so will wait for that result ,just happy I'm not getting ignored and thanks again.

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@komara That's great news, the EKG is a start and hopefully you will see a cardiologist this time, ask a lot of questions and if it is not a cardiologist, this is the moment to request to be seen by one as soon as possible and start monitoring your aneurysm regularly (you will also need to see a surgeon and that is one of the questions you should ask, I imagine it is one step at a time).

BTW I have spent a lot of time in your beautiful country, have many friends there, Edinburgh is one of my favorite cities in Europe.

Keep us in the loop, all the best to you!!!

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francic | @francic | 22 hours ago

Hi Blisske . The TAMBE was done at Christiana Care in Wilmington De.
It is described as a 1st in state procedure. What I don't know just yet is if it can be used for an aneurysm of the ascending

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rlhix | @rlhix | 21 hours ago
In reply to @francic "Hi Blisske . The TAMBE was done at Christiana Care in Wilmington De. It is described..." + (show)
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Hi Blisske . The TAMBE was done at Christiana Care in Wilmington De.
It is described as a 1st in state procedure. What I don't know just yet is if it can be used for an aneurysm of the ascending

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@francic

Probably not. Most TEVAR procedures are experimental only on the ascending aorta. Part of that is due to the movement of the ascending aorta in relation to the aortic root and aortic arch. The landing zones can't but a lot of torque on the landing zones, even if it works. I had a Bental procedure done during some other open heart procedures in Sep 2024. There is still a section between the dacron graft and arch of about 4.6 cm at this point. I was told emphatically by a congenital specialist cardiologist that EVAR is not an option if it needs addressed in the future. That means I could be looking at another open heart surgery in the future. The other issue is that its impossible tell what the thickness of my remaining ascending aorta is at this point.

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francic | @francic | 6 hours ago

Rhix ,Thank you for clarifying. Appreciate it

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