Rheumatoid Arthritis (RA) - Introduce yourself and meet others
Let's talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.
Let’s grab a cup of tea, or beverage of choice, and let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
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@tisme how long have you been taking plaquenil? I have heard eye problems could start at or after 3 years. That’s my hope anyway!
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1 ReactionId say it would be that long, I stopped taking it myself ( cant see the rheumy till december) cant take leuflonamide because of the liver. so I am not on anything and in the short month or so I have been off it Ive noticed a difference. but my eyesight sheesh , just had new glasses ( multifocals) and they are not what they were when I had the eye test ( or should I say my eyesight isnt).
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1 Reaction@tisme hope your doctor has another option
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1 Reaction@tisme I never came across "leuflonamides". Do you mean sulfonamides?
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1 ReactionHi Iam an Australian
I am 73. Have been diagnosed with UC at age of 11 years. Was treated and then went into remission. At the age of 40 had a reactivation of U C and the developed auto immune hypoglycaemia - now know how to manage condition
Continued with a new condition called autoimmune arthritis which is a result of my u c
Have started on lefludimide which is not pleasant but hopefully will improve in time. I have been on med for 4 weeks. Diarrhoea for one week generally not feeling too good. The arthritis may be marginally improved but apparently it takes time to kick in. I live in hope . Anyone else had similar experience?
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1 Reaction@swalex leflunomide Im in Australia .
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1 Reaction@tisme Have you been having 6 month visual field exams at the optometrist/opthamoligist's office while on Plaquenil?
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1 Reaction@ln2e Simponi can be given two ways.For people on Medicare, the infusion Simponi Aria, is the way to take it since infusions are covered under Medicare Part B and not the part D Drug plan.
For those on regular insurances, Simponi given as a subcutaneous injection is more likely to be covered.
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1 Reaction@missy245 its 12 monthly here.
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1 ReactionNew to the group. Initial diagnosis from PCP was PMR. Everything I read and felt told me PMR. Met with a Rheumatologist and continued with more blood work. Inflammation was of course very high but I showed one of the three markers for RA. Prior to that test I was convinced I was going to use Kevzara to wean off my 20 MG prednisone. No go once my Doctor found out I’ve had diverticulitis. Bowels can explode. So I start Adalimumab AACF - Idacio injections Wednesday. Down to 10 MG of prednisone and feel fine except morning stiffness. Plus I’m 5 weeks into a total knee replacement so there’s that. If I find locust or a plague I will have hit a trifecta!
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