Living with Parkinson's Disease - Meet others & come say hi

@hopeful33250 Yes, Thsnk you for reaching out. I’m pretty isolated. Friends and family no longer live in NYC which is where I live. I have a lot of telephone support but no live persons to give me hugs, hold my hand, etc. We married late and do not have children. While friends tried to be helpful on the phone, I’ve faced all of the big decisions alone and by myself, all while grieving the decline of a vital man. I’ve gotten myself some help-a social worker for support and resource finding, a therapist to work through my feelings. I’m the kind of person with mobilizing anxiety-I don’t stop until I get it done. When getting it done was finished, I could cry when alone. I’ve taken myself out to dinner from time to time and while I’m OK eating alone, it’s no fun.What has helped me is distance walking almost daily, blitzing out over TV where I could forget about my troubles and getting enough sleep. The biggest challenge was accessing our money which I now have control over and am the POA. I recently joined some organizations in order to make new friends and get involved. There are still many things to take care of but the really big ones are more in control now.

@janetgeller9 I'm so glad to hear of all of the progress you have made in taking care of yourself! Please accept my virtual hug and continue reaching out and finding the support you need.

Will you continue to post and let me know how you are doing?

I was diagnosed with PD in June 2025 and put on Carbidova-Levadopa. Can only function on half a .5mg pill morning and at bedtime. Seeing a movement disorder specialist. Fatigue overwhelms me a good deal of the time which prevents me from keeping up with daily living. About 2 weeks ago I decided to request blood tests to rule out any deficiencies. Sure enough, my ferritin level was only a "9" and I saw a hematologist who had me come in for a blood infusion. Now the infusion is causing fatigue but hoping I can regain some of my lost energy.. Anyone else deal with PD fatigue and on meds that help for this??

@hopeful33250 I appreciate your interest. Yes, I can’t promise to post regularly but I will. Everyday, there is a need for more assistance and more money is being spent. Right now, I’m in need a of geriatric care manager. In NYC, the lowest I found so far cost $200. an hour.