Has anybody found relief for cramping of feet and legs?

@papa, my daughter died from rectal cancer. Papaloma virus. She was an indoor worker therefore had low vitamin D. Most people are low D. Get yours measured please. D adjusts, fixes DNA errors so cancer does not grow. Good luck, James nz

@jamessaxo

thank you for sharing your comments James. My condolences on the loss of your daughter.
I shall have my vit D level checked,
although I work out in the sun quite a bit here in CA. Thank you once again.

@pjulien63 Thank you John for introducing me. I feel for you and yours is a very complex spine situation. I am a Mayo spine surgery patient, and my surgery was pretty simple, but 5 surgeons misunderstood the diagnosis and were afraid to help me because they could not be sure why I had pain all over my body. I was always looking for the next doctor to consult and reading the research papers they published. This brought me to Mayo Clinic and to Dr. Jeremy Fogelson who is an expert with spine deformity and scoliosis surgeries. I didn't need deformity surgery, but it was his paper that led me to the correct diagnosis that I found when I looked up terminology, so I knew I had found a surgeon who would believe me when I said that my spinal cord compression at C5/C6 was sending pain all over my body. 5 local surgeons refused to help me, and he welcomed me and to finally be validated after 2 years of searching and then get expert life changing surgery was truly a gift. What I know about him from my experience is that he likes the challenge of difficult cases to solve and really wants to help patients. He is kind and compassionate and is teaching new surgeons at Mayo. I had not experienced that level of compassion and expert care before in medicine. In his education history, he has excelled consistently and is highly respected at Mayo and in the spine surgeon community.

Mayo has a 3 D printing lab that helps a surgeon understand the complexities of spine surgery so they can plan how to do their surgeries. This link is a story about this with a photo of Dr. Fogelson in the OR with a 3 D model.
https://www.mayoclinic.org/medical-professionals/neurology-neurosurgery/news/point-of-care-additive-manufacturing-provides-complex-scoliosis-models/mac-20509966
He does invite his colleagues to collaborate on other issues affecting patient outcomes. As you know, bone quality can be an issue with scoliosis, and sometimes he has a patient build bone with treatments before spine surgery. I believe he would be an excellent surgeon for a consultation in your situation.

Here is Dr. Fogelson's profile. https://www.mayoclinic.org/biographies/fogelson-jeremy-l-m-d/bio-20055624

Here is a link to request an appointment at Mayo.
https://mayocl.in/1mtmR63
Dr. Fogelson is at the main Rochester, MN campus. You will get a call back after initiating your request and they will set up an account so you can send in medical records and imaging for review. Tell the intake coordinator you are requesting Dr. Fogelson. When you send your records, include a letter requesting that your records be reviewed by Dr. Fogelson and describe your history of your spine surgeries and your condition now, and explain how much this is affecting your life. I read that you cannot lay down to sleep unless you lay on ice packs to numb your back, so tell him that and describe mobility issues and how this affects your daily life and how this has worsened over time. Also tell him how other surgeons are not willing to take your case and that you don't know what to do.

Please contact the Mayo billing department to check if you have in network insurance coverage for Mayo. Here is the web page and it's a good idea to also call them to verify since things can change. https://www.mayoclinic.org/billing-insurance

Do you think you would be able to travel to Rochester? If you need a virtual appointment, it is worth asking even if it just preliminary, but I don't know how Mayo handles that. Perhaps it could be a collaboration with one of your local physicians from their office if medical questions need to be answered.

I do hope you will find the care you need. Dr. Fogelson gave me back the coordination in my arms that I was losing, and I am most grateful to him. If you do follow through with Mayo, please stay in touch and let me know how you are doing. There is also a free Mayo Concierge service that can help you find travel arrangement and accommodations. There are lots of wheelchairs available at Mayo. Do you have someone who can travel with you for a future appointment?

Here is the information for the Concierge services.

Five Ways to Contact Mayo Concierge Services

Phone: 507-538-8438

Live Chat: https://www.mayoclinic.org/patient-visitor-guide

Email: concierge@mayo.edu

Web form: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services

In-person in Rochester MN: Lobby hours are 8:00-5:00 Monday through Friday. Offices are located in the International Center in the Mayo Mathew’s Lobby, Executive Lounge on Mayo 5, Radiation Oncology Lobby – Desk R

Lastly, when I was in the operating room, the nurse held my hand to help me stay calm. I hope that you can feel something similar now even though these are just my words on a page.
God bless.

Jennifer

@jenniferhunter
Thank you for all your support and information. I truly appreciate your concern & timing it takes to answer this matter, I also have deep sympathy for what you went through & happy to hear you were able to receive help from this Dr. Fogelson. I will indeed see if any of this works for me insurance being of the highest priority unfortunately but I don’t have the resources or people to assist me with anything or go anywhere with me.
I am fortunate enough to have a doctor or group of doctors who would send in my information or answer questions about my medical history so for this I am grateful & appreciate them. As I said I think that the doctors in Barnes Jewish were sent all my information but offered no way to help for my medical issues. I will try all the way you’ve given me to contact this Dr. and his office and to tell him he was highly recommended to me by one of his patients. Thank you very much and I wish you continued success with your journey in this process. Thank you & good luck. Phyllis