Did your mother take Diethylstilbestrol (DES) while pregnant with you?

@sophie46 do a search for iTV. Quite a few in-depth stories. I was interviewed by them last year. The is a DES Facebook page where some links are posted

yes and I have learned a great deal about the many terrible gynaecological and other consequences- not only for DES daughters, (I had cervical cancer and head and neck cancer) but also DES grandaughters affected by anxiety, panic attacks and depression, as my daughter has. Plus reproductive issues for DES sons. There is also quite a lot of articles now arising about the (controversial) consequences of transgender issues. As well as a teratogen and carcinogen it is an obesogen now added to cattle fodder for fattening! Could write whole articles about DES but there is masses of data online especially in "Our bodies Ourselves". Formerly books about women's health, now a huge website for women and ethnic minorities and LGBTQ. Although DES has gone under the radar here in New Zealand. Medicos are not taught about it at med school, so are ignorant and sceptical in the main.
Apteryx

@kmfdallas I think there must be a metabolic problem with calcium & I can’t help but think it was from DES. I feel for you. I just had 5 stones lasered & I still have 5 in the right kidney.

I am a Des baby. My mother almost miscarried me 5X's when she was given, she said a pill. I don't know if she took it through the whole pregnancy or not but she would have followed whatever the doctor told her to do.
When I started my periods at 13 they started out very painful lasting a week long every 2 weeks. The pain was so intense it was disabling. My 1st pregnancy was a miscarriage, 2nd pregnancy was overdue and delivered feet first, 3rd pregnancy was a stillborn at 7months. Hemorrhaged so bad they said my heart stopped. I didn't have a period for about 6 years. Then I started bloating and carrying a lot of fluid. They ran tests and said I had Sheean's disease. They put me on hormones that turned me violent so I flushed them. I started having my periods again. Massive bleeding and blood clots. Sometimes the toilet looked like some one was murdered. Pain, cysts on ovaries, endometriosis, somehow I got pregnant with placenta previa. I hemorrhaged, put in hospital on machines August 22. The baby was due October 15. Had emergancy C-section on September 26 due to hemorrhaging. Went home Oct 1st and told I'd die if I tried to get pregnant again. When start cycle again it was hell again with all the pain and excess blood. Finally in my 40's a female doctor listened to me and I got a hysterectomy. I don't know if any of this is connected with being a des baby or not . I am also a 3x cancer thriver but I was also diagnosed with a genetic mutation on my Dad's side of the family. none were female related. however my sister had endometrious cancer and had cervical issues. She is not a des baby she was born 2 nd after me.
My oldest daughter no matter what birth control she was on got pregnant. After her 4th she had her tubes tied. She has also battled with depression and a very sour attitude her whole life. .She has had to have her cervix frozen a couple of times. My other daughter has had penal gland problems which resulted in brain surgery and pituitary gland problems and many hormone issues.
I was wondering if anyone knows how long the Des would stay in my mothers system and if it would carry onto any of her other pregnancies after me

I was a "DES daughter," now 66. Thankfully none of the problems that have been documented/associated with this so far - my understanding was basically cervical cancer. A little alarmed to find that some (younger?) Ob/gyns seem to barely know of it.

I am a DES baby. My mother had two miscarriages and at the age of forty she started to lose me. She was put into hospital and given injections every day for a week. My periods started at age eleven and they were so painful I would often pass out at school. My first baby was a month late and I lost so much blood that I required a blood transfusion. I was told not to have any more children. My second pregnancy went smoothly and the birth was normal. At the age of twenty nine I had pain on my left side. My left ovary was covered in cysts, which had burst and the ovary was removed. My periods became easier until my late thirties, when I lost large amounts of blood with blood clots. At the age of forty my uterus, remaining ovary and cervix were removed. I was told they were precancerous. I am now almost eighty.

@apteryx DES Info Association has a lot of research literature on the effects of exposure. Our Bodies Ourselves was a good book

@dawncwhite53 Dawn, I am so sorry to hear about what a difficult journey you had from DES exposure and now your daughter is also suffering. It is known to have affected the 3rd generation. DES Info Association has an extensive library of DES research articles. I have attached the DES pamphlet

@sophie46 Sophie, DES was given by injections. How you were affected is dependent on how many weeks gestation you were. Unfortunately, not much research has been done on DES Daughters as they age.

@kmfdallas I was born seven days early.