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Tyenne and PMR

Posted by 2309 @2309, Oct 29, 2025

I am interested in other people's experience with Tyenne and pmr

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

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John, Volunteer Mentor | @johnbishop | Oct 29, 2025

Hello @2309, Welcome to Connect. I'm tagging members who have shared experience with Tyenne in other discussions and may have some information to share with you - @thereselefever, @theroar, @isabelle7, @sparkswd and @mejob.

@2309 Are you currently on prednisone to treat the PMR?

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1 reply
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thereselefever | @thereselefever | Oct 30, 2025
In reply to @johnbishop "Hello @2309, Welcome to Connect. I'm tagging members who have shared experience with Tyenne in other..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

Hello @2309, Welcome to Connect. I'm tagging members who have shared experience with Tyenne in other discussions and may have some information to share with you - @thereselefever, @theroar, @isabelle7, @sparkswd and @mejob.

@2309 Are you currently on prednisone to treat the PMR?

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@johnbishop Yes, I have been trying to get off of it completely for the past year. I have been on it for two years. Though I know this is not unusual, my doctor and I really feel it is in my body's best interest to get off of it completely.
I had been on Actemra injections, and then my insurance stopped covering them. So I went to infusions for a few months, and then they stopped covering the infusion.
They will cover Tyenne, and so that is what I have been taking for the past 4 months or so. I do not feel the same relief as I did with Actemra.

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2 replies
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Mentor
John, Volunteer Mentor | @johnbishop | Oct 30, 2025
In reply to @thereselefever "@johnbishop Yes, I have been trying to get off of it completely for the past year...." + (show)
Profile picture for thereselefever @thereselefever

@johnbishop Yes, I have been trying to get off of it completely for the past year. I have been on it for two years. Though I know this is not unusual, my doctor and I really feel it is in my body's best interest to get off of it completely.
I had been on Actemra injections, and then my insurance stopped covering them. So I went to infusions for a few months, and then they stopped covering the infusion.
They will cover Tyenne, and so that is what I have been taking for the past 4 months or so. I do not feel the same relief as I did with Actemra.

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@thereselefever, Not sure if you have looked into diet and lifestyle as part of helping you manage the PMR symptoms but there are quite a few different discussions that you might find helpful. Here's a link to the discussions - https://connect.mayoclinic.org/search/discussions/.

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2309 | @2309 | Nov 8, 2025
In reply to @thereselefever "@johnbishop Yes, I have been trying to get off of it completely for the past year...." + (show)
Profile picture for thereselefever @thereselefever

@johnbishop Yes, I have been trying to get off of it completely for the past year. I have been on it for two years. Though I know this is not unusual, my doctor and I really feel it is in my body's best interest to get off of it completely.
I had been on Actemra injections, and then my insurance stopped covering them. So I went to infusions for a few months, and then they stopped covering the infusion.
They will cover Tyenne, and so that is what I have been taking for the past 4 months or so. I do not feel the same relief as I did with Actemra.

Jump to this post

On Tyenne injection ,week three.Biggest and newest side effect is mild angina.

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