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Replies to "@johnbishop Yes, I have been trying to get off of it completely for the past year...."
Autoimmune Diseases | Last Active: May 24 4:57pm | Replies (5)
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@johnbishop Yes, I have been trying to get off of it completely for the past year. I have been on it for two years. Though I know this is not unusual, my doctor and I really feel it is in my body's best interest to get off of it completely.
I had been on Actemra injections, and then my insurance stopped covering them. So I went to infusions for a few months, and then they stopped covering the infusion.
They will cover Tyenne, and so that is what I have been taking for the past 4 months or so. I do not feel the same relief as I did with Actemra.
Replies to "@johnbishop Yes, I have been trying to get off of it completely for the past year...."
On Tyenne injection ,week three.Biggest and newest side effect is mild angina.
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@thereselefever, Not sure if you have looked into diet and lifestyle as part of helping you manage the PMR symptoms but there are quite a few different discussions that you might find helpful. Here's a link to the discussions - https://connect.mayoclinic.org/search/discussions/.