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Replies to "Hello @2309, Welcome to Connect. I'm tagging members who have shared experience with Tyenne in other..."
Autoimmune Diseases | Last Active: May 24 4:57pm | Replies (5)
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Hello @2309, Welcome to Connect. I'm tagging members who have shared experience with Tyenne in other discussions and may have some information to share with you - @thereselefever, @theroar, @isabelle7, @sparkswd and @mejob.
@2309 Are you currently on prednisone to treat the PMR?
Replies to "Hello @2309, Welcome to Connect. I'm tagging members who have shared experience with Tyenne in other..."
@johnbishop yes I’m on Tyenne weekly injections at home. Please include me so I can learn more and contribute.
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@johnbishop Yes, I have been trying to get off of it completely for the past year. I have been on it for two years. Though I know this is not unusual, my doctor and I really feel it is in my body's best interest to get off of it completely.
I had been on Actemra injections, and then my insurance stopped covering them. So I went to infusions for a few months, and then they stopped covering the infusion.
They will cover Tyenne, and so that is what I have been taking for the past 4 months or so. I do not feel the same relief as I did with Actemra.