Aneurysm grew 4.1 to 4.7 in one year - which questions should I ask?

Posted by scottbliz @scottbliz, Oct 14 8:35am

I am 75 female 5'6" and 157 lbs. Very active and try to stay busy every day. My aneurysm grew from 4.1 to 4.7 in one year. My cardiologist just referred me to a surgeon. I know very little about growth rate and questions I should ask. My mother had two aneurysms and 3 brothers died suddenly at 42, 50, 65 and two of dads brothers died of ruptured aneurysms. Since I live 52 miles from the nearest the hospital how big of a rush should I be in.

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Consulting with a knowledgeable surgeon is the best you can do for yourself. I guess I'd ask what are the factors which impact growth? What can I do to slow the growth? etc. Then follow this advice religiously!

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Profile picture for scottbliz @scottbliz

Thank you so much

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@scottbliz Although your surgeon will probably ask about this anyway, I would make sure to share your family history. The known, strong family history of aneurysms is important and might influence the surgeon's recommendations. If you have specific details about your family members, e.g. aneurysm location, size, age, this will be useful to the surgeon. Best wishes to you.

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Profile picture for mm05897 @mm05897

@scottbliz Although your surgeon will probably ask about this anyway, I would make sure to share your family history. The known, strong family history of aneurysms is important and might influence the surgeon's recommendations. If you have specific details about your family members, e.g. aneurysm location, size, age, this will be useful to the surgeon. Best wishes to you.

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@mm05897 Thank you will do !!!

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You need to consult with a cardiologist AND cardiovascular surgeon that specializes in these things. Unless that hospital that is 52 miles from you happens to be Mayo Clinic or Cleveland Clinic, its a moot point. I live in Tallahassee Florida. My only 2 options in north Florida were UF/Shands in Gainesville and Mayo Clinic in Jacksonville. I went to Mayo. I had a CT Scan with Contrast that led to an catheter procedure with possible intervention that wasn't able to address any of my problems but found more which led to a cardiac MRI and open heart surgery. This all happened between Jul 22 and Sep 10, 2024. I was told in January of that year by a local cardiologist at the local Tallahassee hospital to come back in over a year. If I followed his advise, I would have been dead. my ascending aorta was 4.7 and root at 4.8 at the time. However, there were other issues that were flat missed by the local cardiologist. I got a second opinion from a congenital cardiologist at Mayo and she found 3 additional critical things. I was 60 at the time of surgery.

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"My mother had two aneurysms and 3 brothers died suddenly at 42, 50, 65 and two of dads brothers died of ruptured aneurysms" < - Family history plays a large roll in recommendations and @rlhix first line summed it up perfectly, "You need to consult with a cardiologist AND cardiovascular surgeon that specializes in these things." and I would add an as soon as possible to that to be what type of rush you might consider.

One of the big questions you should ask is what is safe levels of activity based on my risks?

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Profile picture for bignelie @bignelie

"My mother had two aneurysms and 3 brothers died suddenly at 42, 50, 65 and two of dads brothers died of ruptured aneurysms" < - Family history plays a large roll in recommendations and @rlhix first line summed it up perfectly, "You need to consult with a cardiologist AND cardiovascular surgeon that specializes in these things." and I would add an as soon as possible to that to be what type of rush you might consider.

One of the big questions you should ask is what is safe levels of activity based on my risks?

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@bignelie Thank you I will absolutely ask that since I'm still feeding livestock.

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Profile picture for rlhix @rlhix

You need to consult with a cardiologist AND cardiovascular surgeon that specializes in these things. Unless that hospital that is 52 miles from you happens to be Mayo Clinic or Cleveland Clinic, its a moot point. I live in Tallahassee Florida. My only 2 options in north Florida were UF/Shands in Gainesville and Mayo Clinic in Jacksonville. I went to Mayo. I had a CT Scan with Contrast that led to an catheter procedure with possible intervention that wasn't able to address any of my problems but found more which led to a cardiac MRI and open heart surgery. This all happened between Jul 22 and Sep 10, 2024. I was told in January of that year by a local cardiologist at the local Tallahassee hospital to come back in over a year. If I followed his advise, I would have been dead. my ascending aorta was 4.7 and root at 4.8 at the time. However, there were other issues that were flat missed by the local cardiologist. I got a second opinion from a congenital cardiologist at Mayo and she found 3 additional critical things. I was 60 at the time of surgery.

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@rlhix who is your cardiologist at Mayo?

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Profile picture for scottbliz @scottbliz

@dbaxter70 I am in West Texas.

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@scottbliz Dr. Sabrina Phillips at Mayo Clinic Jacksonville Florida. There are some very good ones in Texas.

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