Endometrial Cancer Stage IIIC1
Spotting in late April.
Referred to gynecologist after abnormal pap showing atypical glandular cells in June
Ultrasound showed endometrial lining thickened to 19.55mm
Collposcopy, scrape of cervix, and endometrial biopsy resulted in endometrial adenocarcinoma FIGO grade 3
Gynecologic consult Aug 4
Complete hysterectomy bilateral salpingo oopherectomy Aug 8
Pathology report: tumor in uterus, 97% invasion of myometrial lining, cancer cells in right sentinel pelvic lymphnode Stage IIIC1
Consult Sep 2: oncologist recommended platinum systemic therapy of six cycles of carboplatin and paclitaxel. Oncologist doesn’t recommend EBRT even though tumor board recommended a referral.
Anyone familiar with this stage and chemo treatment who might be able to share information on side effects. The more I read about chemo, the more I’m afraid to weaken my immune system. Seems like recurrence is likely and wondering about no further treatment?
Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.
Connect

@jchantler I've been using Curcunin Phytosome supplements from "Thorne" and it's helping me.
@aardvark2118 I am so impressed that you managed to work. Amazing.
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1 Reaction@naturegirl5 got through my first treatment. Had about 72 hours of bone aches, fatigue, was manageable. No nausea so very grateful. Week 2 I feel real good!! Enjoying this time to gain strength for treatment 2. Feeling much more confident and prepared. I made a list of side effects and how I managed them for easy reference. Hugs to all the ladies that are in the midst of treatment. Be strong!! Thank you for your encouragement.
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3 Reactions@mtstack It's a challenge to stay upbeat. Just switched to Enertu, slept two days night and day, threw up, nausea, weak. YUCK. But after first treatment my CA 125 score went from 599 to 400 something.
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1 Reaction@jchantler
I'm so sorry to hear of your fatigue and nausea which I'm sure makes you feel even worse.
Glad the CA 125 number improved to justify the new drug.
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1 Reaction@genaf
Totally agree. All last week after my first treatment, I wondered how I would have ever managed standing all day at work.
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2 Reactions@belle4 Great! Making that list of side effects is a good idea. You can discuss those with your oncologist and I hope use your list as a reference for our ladies here on Mayo Clinic Connect.
@bettydee
This is a great way to think about it! Let me add that my cancer was chemo resistant (metastasis while undergoing treatment) so if there was a chemo drug that would attack my unusual ants I would be happy to partake.
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2 Reactions@ffr
My cancer has also been chemo resistant. Just after the 4th infusion I experienced spotting and a tumor was found in the vaginal cuff just before Christmas. My last two infusions were cancelled. PET scan revealed metastases to lungs, pelvic and pubic bones, lymph nodes and other areas.
Started keytruda and lenvima today. Meeting with radiation oncologist tomorrow to discuss PET scan and MRI of spine to see if radiation would help treat lumbar and hip pain which started two weeks ago, and spotting again for the past week.
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3 Reactions@mtstack I want to thank you for coming back here and sharing what must be so difficult for you. What time is your appointment tomorrow with the radiation oncologist? I'd like to send you prayers and positive energy during your appointment and hope that you receive compassionate listening and care from the radiation oncologist team.
Do you have family, a spouse, or a close friend who will go the appointment with you?
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3 Reactions