Severe Constipation

Posted by klk464 @klk464, Feb 28, 2018

I have had severe constipation for a long time. I drink lots of water and have had almost every test possible done and tried many prescription medications. These medications work for a little bit then stop. I currently take 3 docusate in morning and at night I will take 2 senna/docusate. I still dont have a daily BM. So i get bloated crampy and back pain from this.

I was told I could go to the Mayo Clinic as they may have ideas for me because they are out of options for me here.

Anyone else suffer from this?

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @champ100. What surgery are they proposing for you? In what way(s) do you feel not ready for that?

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Im pretty sure it's called the j-pouch? And also taking out the last few inches of my colon😬😬 im just going through alot of things medically so my brain cant even think about surgery. Also I have PG(pyoderma gangrenosum)from crohns so I wouldn't even be able to get any type of surgery even if I wanted too.

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After many years of constipation..even hospitalized for it..I found Trulance ..(tried Linzess and Amtiza..didn't work at all) and if necessary Miralax at night.. I also take VSL3 Probiotics ..one every AM..and drink 2 Vanilla plant based ensures a day (sometimes just one).. fava pea fiber.. 5 grams each and eat 1 Thomas Multigrain English Muffin every day with plant butter.. 8 grams of fiber..and as much water as I can stand!! I hope this helps someone.. praying for everyone!! Jesus is our Healer!!!

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Profile picture for Champ100 @champ100

Thank you for your input! Years ago I used to almost do the same thing w the Miralax and suppositories..I went more than just a few times a month but still not much more. I did it for about a year and then my drs changed and had me try something else. I cant even remember.. I'm not exaggerating when I say ive tried everything and have tried alot of things multiple times. ( hope this isn't too much info..) when I do have a BM it's like a big, rock hard ball. Its literally like cement lol. Im always impacted and look pregnant.. it suxks bc i literally have ppl ask me if im pregnant and I will get so embarrassed and run away and cry. Im almost getting used to getting asked that question now. Im definitely not ready for any surgery right now and have some other conditions caused from my crohns that im trying to work out. But thank you for your thoughts! Im always open to hearing anything

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That's a really tough way to live. I used to see ads in which they mentioned people having impacted bowels, having twenty-five pounds of material collecting inside. I scoffed at the time. Listening to your travails makes me thinks perhaps the stories are true. Until a couple of years ago, my normal BM was fairly hard and compacted and took some effort to expel. When I started on Tramadol a few years ago, it became a little more difficult to go. But, when I developed peripheral neuropathy a year or so ago, I developed pretty bad constipation. I started drinking a lot more water recently and my movements became more manageable. I thought that my normal fluid intake of coffee, juice, etc was enough to keep me a regular guy but apparently not. It appears that the old adage of drinking lots of water is so very true. The fact that your stools are so hard and compacted seems to suggest that most of the water is being removed from your bowel. You must really struggle to pass all that material. It's a wonder you haven't developed hemorrhoids. Have you tried upping your water intake significantly? Keep on keeping on. Be your own best advocate. Don't give up!

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Profile picture for Champ100 @champ100

Thank you for your input! Years ago I used to almost do the same thing w the Miralax and suppositories..I went more than just a few times a month but still not much more. I did it for about a year and then my drs changed and had me try something else. I cant even remember.. I'm not exaggerating when I say ive tried everything and have tried alot of things multiple times. ( hope this isn't too much info..) when I do have a BM it's like a big, rock hard ball. Its literally like cement lol. Im always impacted and look pregnant.. it suxks bc i literally have ppl ask me if im pregnant and I will get so embarrassed and run away and cry. Im almost getting used to getting asked that question now. Im definitely not ready for any surgery right now and have some other conditions caused from my crohns that im trying to work out. But thank you for your thoughts! Im always open to hearing anything

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Champ100,

I just posted what I do in another recent constipation conversation here. Maybe take a look.
Good luck!

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Profile picture for researchmaven @researchmaven

Champ100,

I just posted what I do in another recent constipation conversation here. Maybe take a look.
Good luck!

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Hi, @researchmaven - wondering if you have the link for the post you made about what you do for constipation? If it's not familiar, you will want to click on the three dots at the right bottom of the particular post, and you will see a dropdown menu including "Copy link to clipboard." This allows you to copy the link.

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Have you tried prune juice ? I’ve had 3 bowel surgeries and had constipation from this and they advised me to drink prune juice and it definitely gets things working.

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @researchmaven - wondering if you have the link for the post you made about what you do for constipation? If it's not familiar, you will want to click on the three dots at the right bottom of the particular post, and you will see a dropdown menu including "Copy link to clipboard." This allows you to copy the link.

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Hi Lisa,

Here is the link -- thank you for the tip on how to extract it If it doesn't work, let me know.
https://connect.mayoclinic.org/comment/1390589/

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Hi all,I have been having bad constipation for the last couple of years (working with docs, functional and western, dieticians etc), lots of straining, and last 24 hours have had some spectacular nosebleeds upon straining and upon waking (guessing my thinner skin due to menopause and the straining of trying to 'go', is causing this..I've noticed other 'airway reflux' symptoms lately, after a particularly trying time on the toilet. These nosebleeds have been 'spurters' and nothing i've had before, but 15 minutes of pinching nose does stop them.I know that straining is so bad. I just saw a new GI who recommended senakot or bisacodyl. Perhpas I'll try the senakot as I can't risk damaging body right now (with straining/nosebleeds) and then also continue my journey of diet, H Pylori eradication, etc etc so i can become more regular. Ugh. Scary stuff!Thanks for listening and any advice welcome.

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Profile picture for electracat @electracat

Hi all,I have been having bad constipation for the last couple of years (working with docs, functional and western, dieticians etc), lots of straining, and last 24 hours have had some spectacular nosebleeds upon straining and upon waking (guessing my thinner skin due to menopause and the straining of trying to 'go', is causing this..I've noticed other 'airway reflux' symptoms lately, after a particularly trying time on the toilet. These nosebleeds have been 'spurters' and nothing i've had before, but 15 minutes of pinching nose does stop them.I know that straining is so bad. I just saw a new GI who recommended senakot or bisacodyl. Perhpas I'll try the senakot as I can't risk damaging body right now (with straining/nosebleeds) and then also continue my journey of diet, H Pylori eradication, etc etc so i can become more regular. Ugh. Scary stuff!Thanks for listening and any advice welcome.

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@electracat - I moved your post here so you could talk with others discussing constipation and related issues, such as @researchmaven @andoman @heisenberg34 @standinginfaith and others.

What did the doctors you've seen comment related to the nosebleeds you believe are related to the straining? Did they have an explanation or preventative strategy for you to employ?

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Nosebleed is a new thing. But lately I’ve felt so much pressure in body/head when straining. I wonder if I burst a vessel…

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