Anyone else have severe constipation?

Posted by klk464 @klk464, Feb 28, 2018

I have had severe constipation for a long time. I drink lots of water and have had almost every test possible done and tried many prescription medications. These medications work for a little bit then stop. I currently take 3 docusate in morning and at night I will take 2 senna/docusate. I still dont have a daily BM. So i get bloated crampy and back pain from this.

I was told I could go to the Mayo Clinic as they may have ideas for me because they are out of options for me here.

Anyone else suffer from this?

Interested in more discussions like this? Go to the Digestive Health Support Group.

Thank you it's helpful however after having this for decades, everything short of surgery has been tried including a implant to stimulate to no avail
We are only looking for surgical solutions. Diet exercise every laxative ever made meditation prayer etcetc etc....we hope one day a surgeon can help without complete ostomy. No bag please.
It is not really constipation per se but it's the word that's used.
No ability to evacuate the lower bowel at all zero pressure outward in fact it's the opposite and the rectum actually pulls inward
Maybe one day the surgery is going to work out but not now unless someone has new information
G

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Profile picture for researchmaven @researchmaven

I would need to know what kind of dietary changes you have tried to be able to offer advice. Also, if you have a lot of incomplete evacuations during the three hours, or if it just takes that long to just get a "normal" poop.

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Best of luck, keep at it,
beets, @farmersmith
Diet applied for redundant colon, after life time of constipation (72 yrs) Has worked for almost two years a little less than perfect at times because I have to be attentive:

STEP AWAY FROM TPYICAL AMERICAN DIET
ORGANIC WHOLE FOODS, beef, chicken, fish (baked or instant pot) + vegetables with moderate to low oxalates, and no nightshade or gluten to avoid arthritis and aches + some fruit in moderation. Prunes and prune juice for constipation + nuts & ground seeds chia, flax etc. soaked overnight for constipation and better digestion + goat kefir, yogurt and cheese in moderation since it can be constipating. Water throughout the day + lots of hot water upon rising.
My regularity happens big time in the morning after a quart of hot water + the soaked ground seed concoction with prune juice. Occasionally after over amounts of plums that are coming on now in our orchard, I have several regularities in a day. With redundant I have it fairly regular but still have to add gulps of coffee or smooth move to have regularity especially if I haven't drunk enough water.

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I do suffer from this. I was hoping for help from Mayo but yesterday was turned down. They accept Aetna insurance but not Aetna Medicare Advantage! My only other choice was to give them a $5000 deposit for a work up. So disappointed. Wishing you luck and health.

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It's horrible how Medicare is being hacked apart. I blame both Medicare and the hospital

G

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Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @klk464,

Welcome to Connect. Here's more information about the treatment of constipation, from Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/constipation/diagnosis-treatment/drc-20354259

I'd like to introduce you to a few members who've shared their experiences with severe constipation. Please meet @sousou @dolan @subhi @clemlaa @delicht; I'm certain they will have more insights for you.

Here are a few discussions on Connect, which I also encourage you to view:
– Abdominal pain with severe constipation and weight loss https://connect.mayoclinic.org/discussion/abdominal-pain-since-july-2017-with-severe-constipation-and-weight-los/
– Leaky Gut, Constipation and Gluten Free? https://connect.mayoclinic.org/discussion/leaky-gut-constipation-and-gluten-free/
– RLQ Abdominal Pain https://connect.mayoclinic.org/discussion/rlq-abdominal-pain/

if you would like to make an appointment at Mayo Clinic, please call one of our appointment offices. You can also request an appointment online. The contact information for Minnesota, Arizona and Florida can be found here: http://www.mayoclinic.org/appointments

@klk464, have you made any diet changes, or added foods that might help relieve your symptoms?

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Are any of these forums still active? I see dates that are 6-8 yrs ago!

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Profile picture for gbear1953 @gbear1953

Thank you it's helpful however after having this for decades, everything short of surgery has been tried including a implant to stimulate to no avail
We are only looking for surgical solutions. Diet exercise every laxative ever made meditation prayer etcetc etc....we hope one day a surgeon can help without complete ostomy. No bag please.
It is not really constipation per se but it's the word that's used.
No ability to evacuate the lower bowel at all zero pressure outward in fact it's the opposite and the rectum actually pulls inward
Maybe one day the surgery is going to work out but not now unless someone has new information
G

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@gbear1953 a thought I have for you is to check for any spine issues. If you have had a spine injury such as a whiplash, there may have been some trauma that years later may cause a problem as arthritis develops in the spine. Sometimes problems like this masquerade without much pain. Spinal cord compression can cause incontinence and malfunction of both bladder or bowel. If this hasn’t been considered, it may be worth a look. I had communicated with another member here who had this issue and his doctors were ready to install a colostomy bag. He had significant spinal cord compression that also caused him to use a wheelchair. He did have spine surgery and regained the ability to walk and better colon motility and avoided the bag, a win for him.

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Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@gbear1953 a thought I have for you is to check for any spine issues. If you have had a spine injury such as a whiplash, there may have been some trauma that years later may cause a problem as arthritis develops in the spine. Sometimes problems like this masquerade without much pain. Spinal cord compression can cause incontinence and malfunction of both bladder or bowel. If this hasn’t been considered, it may be worth a look. I had communicated with another member here who had this issue and his doctors were ready to install a colostomy bag. He had significant spinal cord compression that also caused him to use a wheelchair. He did have spine surgery and regained the ability to walk and better colon motility and avoided the bag, a win for him.

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Possibly but with a bad back we've been through many MRI and such
No it's initially caused by a severe periontitis and lax abuse

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Profile picture for gbear1953 @gbear1953

My wife has this and must have colonics even with every new laxative, it does not work
she went to a surgeon who said a ostomy is the answer but she refused this as she will not wear a bag.
Her issue they say is pelvic floor dysfunction and of course-constipation. Strange but that word does not really show how bad it is. Everyone gets constipated now and again but she is at another level.
Keep trying the new one's maybe it will work if not see a colorectal and see if anything can be done.

G

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Hi @gbear1953, I am reading through your comments and must say I really do relate to your wife’s all-things-constipation. This is an absolutely exhausting process for both of you!

I understand you are at a place that surgery is your only option. I also see your comment that her issue is pelvic floor dysfunction. In another comment you described her muscles not working the correct way. I struggled addressing my constipation (and much broader) issues for some time. Once I landed with my current providers they did an anorectal manometry test with the exact results, I had coordination problems where my muscles worked backwards. I didn’t understand any of it at the time but they were adamant that nothing else would work without addressing this problem first. That set the stage for progress, slow but steady. I am doing better.

I apologize if I am asking your to repeat but I am not seeing, and certainly not wanting to minimize the severity of the challenge your wife is facing.

Have you addressed the pelvic floor dysfunction?

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Profile picture for Janell, Volunteer Mentor @jlharsh

Hi @gbear1953, I am reading through your comments and must say I really do relate to your wife’s all-things-constipation. This is an absolutely exhausting process for both of you!

I understand you are at a place that surgery is your only option. I also see your comment that her issue is pelvic floor dysfunction. In another comment you described her muscles not working the correct way. I struggled addressing my constipation (and much broader) issues for some time. Once I landed with my current providers they did an anorectal manometry test with the exact results, I had coordination problems where my muscles worked backwards. I didn’t understand any of it at the time but they were adamant that nothing else would work without addressing this problem first. That set the stage for progress, slow but steady. I am doing better.

I apologize if I am asking your to repeat but I am not seeing, and certainly not wanting to minimize the severity of the challenge your wife is facing.

Have you addressed the pelvic floor dysfunction?

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Yes she is not responding to the exercise and has tried for years. She's failed that test dramatically.
Surgery is last and only hope short of Divine intervention

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Profile picture for gbear1953 @gbear1953

These suggestions are fine for maybe the vast majority but some like my wife who has suffered for decades and has tried each new medication and has gotten as far as having a stimulator implant, mere diet and enema and such are mildly helpful but her last hope is surgery short of having to wear a bag.

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Same for me!

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