Prolia treatment for osteoporosis: What is your experience?

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

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@kathy2016

Hello I have the same question the prolia.Mri shows ostaporois measuring T2 -2.5 I SUFFER FROM REOCCURING DEPRESSION,STIFF JOINTS,BACK PAIN,OFF BALANCE,AT TIMES FALL . MY 2 ND DOCTOR STATED HE DID NOT WANT ME TO HAVE THIS DRUG, I HAVE THE SIDE EFFECTS.I very fatique,swelling in feet and ankles,Lowe and middle back pains.As well they found lesion on my brain. The radialgist stated all leads to MS. So I have a nerorolgist who feels he needs another MRI to be conclusive! I'm getting very upset,memory loss, unstable.Doctors have not let me work now going on 2 years. I'm very confused, I know they keep stating all these issues but no one is listening to me. I know my body, depression itself hurts,(anxiety panic attacks PTSD due to a rape,where I was left for dead! I give up. I would think 2 specialists would at least show me the MRI findings, for which I gave them both a copy.I don't know the serverty of my own health @ 58 ! I'm lost getting upset, it's one or the other daily!

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@loiscapecod

Hi. I'm a Volunteer Mentor, and I wanted to comment on Gabapentin, as I was taking it for 6 months. I am not a medical professional, so this is from my experience only. During the time I was taking 600 mg & later 900 mg of Gabapentin, I began losing memory and long empty spaces of time. I had trouble thinking clearly and was really not able to organize my thoughts. At first I thought it was just because I was getting older, and later I was concerned that I had Alzheimers. I was checked for Alzheimers when I volunteered to be part of a research study, and failed because I didn't have the requisite plaques that may be indicators of the disease.

I decided to stop taking Gabapentin and another pain drug I was on. Withdrawing from Gabapentin was not easy, but wasn't too hard either. After I began lowering my doses, I noticed my thinking regulating again, and to my surprise my pain lessoned. I have been off Gabapentin for about 8 months now and will never take that medication again. Related medicines are Neurontin, and Lyrica. There are other pain medications out there that might work better. If I was you, I would ask my doctor if there is another drug, other than the 3 I mentioned, that you can take. As I said, this is from my experience and information I have read from others who had similar experiences with these drugs. I hope you discover what is causing you this pain.

Gail B
Volunteer Mentor

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@kathy2016

Hello I have the same question the prolia.Mri shows ostaporois measuring T2 -2.5 I SUFFER FROM REOCCURING DEPRESSION,STIFF JOINTS,BACK PAIN,OFF BALANCE,AT TIMES FALL . MY 2 ND DOCTOR STATED HE DID NOT WANT ME TO HAVE THIS DRUG, I HAVE THE SIDE EFFECTS.I very fatique,swelling in feet and ankles,Lowe and middle back pains.As well they found lesion on my brain. The radialgist stated all leads to MS. So I have a nerorolgist who feels he needs another MRI to be conclusive! I'm getting very upset,memory loss, unstable.Doctors have not let me work now going on 2 years. I'm very confused, I know they keep stating all these issues but no one is listening to me. I know my body, depression itself hurts,(anxiety panic attacks PTSD due to a rape,where I was left for dead! I give up. I would think 2 specialists would at least show me the MRI findings, for which I gave them both a copy.I don't know the serverty of my own health @ 58 ! I'm lost getting upset, it's one or the other daily!

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I am so sorry to hear that bad new.I refuse to take 98% of need prescribe to me. I have to argue with you 100%> My prayers are with you;

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@kathy2016

Hello I have the same question the prolia.Mri shows ostaporois measuring T2 -2.5 I SUFFER FROM REOCCURING DEPRESSION,STIFF JOINTS,BACK PAIN,OFF BALANCE,AT TIMES FALL . MY 2 ND DOCTOR STATED HE DID NOT WANT ME TO HAVE THIS DRUG, I HAVE THE SIDE EFFECTS.I very fatique,swelling in feet and ankles,Lowe and middle back pains.As well they found lesion on my brain. The radialgist stated all leads to MS. So I have a nerorolgist who feels he needs another MRI to be conclusive! I'm getting very upset,memory loss, unstable.Doctors have not let me work now going on 2 years. I'm very confused, I know they keep stating all these issues but no one is listening to me. I know my body, depression itself hurts,(anxiety panic attacks PTSD due to a rape,where I was left for dead! I give up. I would think 2 specialists would at least show me the MRI findings, for which I gave them both a copy.I don't know the serverty of my own health @ 58 ! I'm lost getting upset, it's one or the other daily!

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Sorry typos fingers hurt so bad.i argue with you 100%!

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I would like to better understand how Denosumab works. It seems that since it interrupts the bone breakdown process, it may also interrupt the bone building process.

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@virginiacarol

I would like to better understand how Denosumab works. It seems that since it interrupts the bone breakdown process, it may also interrupt the bone building process.

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Hello @virginiacarol, I would like to add my welcome to Jamie's. You may notice that I moved your message to a discussion called Prolia Treatment for Osteoporosis. I did this because denosumab is a generic name for Prolia and a few other types of medication. There are many members discussing this treatment in the discussion I moved your post to. I think it would be beneficial to click on VIEW & REPLY in your notification so that you can see the whole discussion and jump in with other members where you feel comfortable.

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Hello. I am new to the group and have just been prescribed Prolia. I was on Forteo but hit my limit. Based on my T scores Fortero did nothing for my back. I am at -3.5 at this point. Apparently, it helped my hips (if the very confused girl on the phone gave me the correct information.) My hips went from -2.1 to -1.9. I am 57 years old. I have many back and neck issues. Fractured a few ribs a while back while leaning over the back seat. That's when I found out I had a problem. Reading the side effects of Prolia has me a little concerned. Are you seeing positive results using the drug?

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@gdaniels138

Hello. I am new to the group and have just been prescribed Prolia. I was on Forteo but hit my limit. Based on my T scores Fortero did nothing for my back. I am at -3.5 at this point. Apparently, it helped my hips (if the very confused girl on the phone gave me the correct information.) My hips went from -2.1 to -1.9. I am 57 years old. I have many back and neck issues. Fractured a few ribs a while back while leaning over the back seat. That's when I found out I had a problem. Reading the side effects of Prolia has me a little concerned. Are you seeing positive results using the drug?

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Hello @gdaniels138, welcome to Connect. I would like to ping @kenzreggie, @cairnmama, @crenhov, @kayelle, @dolan, @janicec8957, @donna13, and @jaleen and @tessie to share their experiences with Prolia as they have been active in this group and shared their experiences before. @gdaniels138, is there a specific side-effect that you are concerned about?

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I have had 3 or 4 prolia shots, I cannot say that I have had any side effects to date.

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I have had 4 or 5 Prolia injections. I have had no side effects.

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I began Prolia injections July 2016, for every 6-months. Although I haven't done a recent bone density scan, I have had no side effects.

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