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Veruska
@veriska

Posts: 6
Joined: Jul 07, 2016

Prolia treatment for osteoporosis

Posted by @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

REPLY

Hello. I am new to the group and have just been prescribed Prolia. I was on Forteo but hit my limit. Based on my T scores Fortero did nothing for my back. I am at -3.5 at this point. Apparently, it helped my hips (if the very confused girl on the phone gave me the correct information.) My hips went from -2.1 to -1.9. I am 57 years old. I have many back and neck issues. Fractured a few ribs a while back while leaning over the back seat. That's when I found out I had a problem. Reading the side effects of Prolia has me a little concerned. Are you seeing positive results using the drug?

@gdaniels138

Hello. I am new to the group and have just been prescribed Prolia. I was on Forteo but hit my limit. Based on my T scores Fortero did nothing for my back. I am at -3.5 at this point. Apparently, it helped my hips (if the very confused girl on the phone gave me the correct information.) My hips went from -2.1 to -1.9. I am 57 years old. I have many back and neck issues. Fractured a few ribs a while back while leaning over the back seat. That's when I found out I had a problem. Reading the side effects of Prolia has me a little concerned. Are you seeing positive results using the drug?

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Hello @gdaniels138, welcome to Connect. I would like to ping @kenzreggie, @cairnmama, @crenhov, @kayelle, @dolan, @janicec8957, @donna13, and @jaleen and @tessie to share their experiences with Prolia as they have been active in this group and shared their experiences before. @gdaniels138, is there a specific side-effect that you are concerned about?

I have had 3 or 4 prolia shots, I cannot say that I have had any side effects to date.

I have had 4 or 5 Prolia injections. I have had no side effects.

I began Prolia injections July 2016, for every 6-months. Although I haven't done a recent bone density scan, I have had no side effects.

So far I have had three injections with no side effects. My next one is in August then in November I will have a bone density scan to see if the injections worked. I took injections of Bonviva for two years befor Prolia and they did not work. My Osteoporosis worstened.

I was on it for 5 years and had no side effects. I had marked improvement in my osteoporosis. They take you off it after 5 years and wait 2 years. I hope they put me back on it if current scan indicates a need

I have received one injection of Prolia and I am struggling with constipation to the point where I am not willing to continue with the Prolia. My doctor dismisses constipation and back pain as non side effects of Prolia. I have had long standing constipation uses d/t taking an antidepressant, hypothyroidism, statin drugs. I have seen a gastroenterologist with suggestions for fiber. Fiber makes it worse. I am taking miralax. Has anyone else suffered from this?

@harper2018

I have received one injection of Prolia and I am struggling with constipation to the point where I am not willing to continue with the Prolia. My doctor dismisses constipation and back pain as non side effects of Prolia. I have had long standing constipation uses d/t taking an antidepressant, hypothyroidism, statin drugs. I have seen a gastroenterologist with suggestions for fiber. Fiber makes it worse. I am taking miralax. Has anyone else suffered from this?

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@harper2018, welcome to Connect. You may notice that I moved your discussion and combined it with a discussion titled Prolia treatment for osteoporosis. I did this so your message would go to all of the members on Connect already discussion Prolia treatments. Here you will meet members like @tessie, @crenhov, @sashasl, @cairnmama, and @dolan, who have all disscused taking Prolia and may be able to share some insight on whether or not they experienced any constipation or any other side-effects.

Liked by marystefy

I continue to receive Prolia injections 2x/year. I have had no side effects whatsoever. I do understand the questioner's concerns because the listed side effects are horrendous. My doctor's reassurance convinced me to try it & I am happy that I did.

@cairnmama

I, too, was concerned about the many side effects. I have been on Prolia for 2 years (ie. 4 injections) and have had no side effects. My latest bone density test showed an increase in density, which is the best part!

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Hello, I ditto @cairnmama. I began Prolia in July 2016 at 67 years of age, without side effects, however I believe the vitamins I take also are helping with hip stiffness although I've have reduced my walk activity. The doc was not satisfied with my 'moderate' bone density scan, thus I take Prolia. In Canada the drug store can't give you the injection. I must pick up my order, immediately go to the nurse at doc's office. She administers the injection in the muscle. It is a bit painful. It must be kept cold (sometimes I take a small cooler). The next 6-month injection is in the alternate arm. Hope you find this useful.

@harper2018

I have received one injection of Prolia and I am struggling with constipation to the point where I am not willing to continue with the Prolia. My doctor dismisses constipation and back pain as non side effects of Prolia. I have had long standing constipation uses d/t taking an antidepressant, hypothyroidism, statin drugs. I have seen a gastroenterologist with suggestions for fiber. Fiber makes it worse. I am taking miralax. Has anyone else suffered from this?

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I’ve received no replies should I repost

@harper2018

I have received one injection of Prolia and I am struggling with constipation to the point where I am not willing to continue with the Prolia. My doctor dismisses constipation and back pain as non side effects of Prolia. I have had long standing constipation uses d/t taking an antidepressant, hypothyroidism, statin drugs. I have seen a gastroenterologist with suggestions for fiber. Fiber makes it worse. I am taking miralax. Has anyone else suffered from this?

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@harper2018, are you replying strictly by email? If so, I suggest clicking on VIEW & REPLY so you will be brought to the website. @cairnmama did reply that they continue to receive Prolia treatments and have not experienced side-effects. @harper2018, if you are comfortable sharing, has your constipation improved?

In two weeks I will have had my fourth Prolia injection. So far nothing that I have noticed.

@crenhov

In two weeks I will have had my fourth Prolia injection. So far nothing that I have noticed.

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How long did they say it would take to see any change in your bone density, stuff is really expensive so let’s hope it is not one of those drugs you have to take the rest of your life,

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