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Thoracic aortic aneurysm: Anyone had surgery?

Posted by jbsb93 @jbsb93, Jul 28, 2011

I was born with a hole in my heart and have had 2 surgeries. One to fix hole and the other a valve replacement. I've been recently told the I have a thoracic aneurysm and possibly will need more surgery.. Anyone gone th ru this before??

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rl1 | @rl1 | Oct 12 11:45am
In reply to @celaud "I'm 79 and in good shape. When I heard I'm having an 5,2 cm AAA in..." + (show)
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I'm 79 and in good shape.
When I heard I'm having an 5,2 cm AAA in September 2024, I decided " oh no, I never will undergo such a major surgery".
But 6 month later the CD showed, it was 5,3 cm.
I had a consultation with my surgeon again. He explained everything to my husband and me so understandable, that I trusted him, EVERYTHING IS GOING TO BE OK.

Dr. XYDAS and his team are geniuses. If you see me now, 4 month later, I'm totally back to normal as before. I'm doing my exercises and daily work, like nothing has happened.

Wishing you the same.

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@celaud and your surgery was in your upper thoracic region ?
Congratulations . Where is your surgeon Dr Xydas located please?

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rlhix | @rlhix | Oct 13 7:33am
In reply to @rl1 "Wow! ppiper, if your comments are based on a professionally based knowledge and experience of the..." + (show)
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Wow! ppiper, if your comments are based on a professionally based knowledge and experience of the topic , it certainly makes a continued search worthwhile .
Maybe I have encountered surgeons who enjoy the rural lifestyle in Wisconsin and stay out of the competitive fray of more competitive metropolitan places .
Interestingly , I was on a session overnight from Sydney , Oz , where the surgery that I appear to need is considered routine and typically 95% successful rates . Maybe they just have more time to study challenges with less intrusion from their healthcare system .
Thanks for bringing optimism back to the table !

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@rl1

ppiper's advice is accurate and good advice. I had surgery Sep 2024 and wouldn't have made it to January without. The chair of cardiovascular surgery at Mayo Clinic told me during a consult on Aug 18 that he would like to do surgery in 10 days but due to the complexity of my situation he wanted to Schedule surgery for Sep 10th. He saw the look on my face and said we could postpone. I said, "do you mean like Jan or Feb?" to which he replied, "No, you won't need surgery then." So I said lets do it Sep 10. After over 14 hours of surgery, I am still here.

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celaud | @celaud | Oct 13 3:03pm
In reply to @rl1 "@celaud and your surgery was in your upper thoracic region ? Congratulations . Where is your..." + (show)
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@celaud and your surgery was in your upper thoracic region ?
Congratulations . Where is your surgeon Dr Xydas located please?

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@roll

Yes, Thoracic Ascending Aorta Aneurysm.
Dr. X das is surgeon in Mount Sinai Hospital Miami Florida.

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rl1 | @rl1 | Oct 13 10:14pm

Thanks for sharing . Stay well.
Rob L

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