Persistent Muscle Twitches throughout Body

Posted by moconnor166 @moconnor166, Oct 2, 2023

For about 2 months now, I've had persistent muscle twitches. They started in my right hand, and now they occur regularly in my legs, hands, arms, and occasionally in my face, shoulders, and torso. I went to my primary care place, and they referred me to a movement disorder neurologist. I'm scheduled for an appointment there in January 2024. I've asked them to keep me on a cancellation list in case any earlier appointments become available.

I'm worried about the muscle twitches being an early symptom of a serious condition. I have trouble sleeping at night, partly because of the twitches, and partly just from constant worry and anxiety. The muscle twitches are worse at night when I'm lying in bed, and also when I'm quietly sitting down reading or watching television. I don't notice them so much when I'm actively moving around during the day, walking, swimming, gardening, etc.

Has anyone else experienced anything like this ? What was the diagnosis ? Thanks for any help that you can provide.

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Hey, did you ever find out what was going on? I have similar symptoms and they are driving me crazy and scaring me. Saw a neurologist and have a brain and spinal cord MRI scheduled for later this month.

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Profile picture for happybunny2025 @happybunny2025

Hi, I came across your posts and have been experiencing twitching all over my body for 3 weeks now. It’s very noticeable when I’m resting and laying down to sleep. How did your appointment with the neurologist go? Are you feeling better?

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@happybunny2025 SAME!!! 3 weeks up to today (10/10/2025) of muscle twitching all over the body randomly at rest. I have some muscle tensions too. Not weakness. Not atrophy. I hate them!!!

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Profile picture for moconnor166 @moconnor166

Thanks, Twitchy and Fela, for your helpful responses. You're correct, ALS (as well as multiple sclerosis and parkinson's disease) is what I was worried about. When you research muscle-twitches online, you learn that they are an early warning sign of those conditions, and then the worry and anxiety starts. It makes it hard to sleep. It's a vicious circle, as the muscle twitches make the worry and anxiety worse, and then the worry and anxiety make the twitches worse, and it becomes impossible to sleep.

My muscle-twitching actually did start in one single place in my right hand. I didn't give it a single thought, wasn't worried about it. But after a few weeks, it became random all over my body. Sometimes I can see the muscle twitching. Then I went online, learned about it being an early warning sign of ALS, etc. , and became very worried. I saw my primary care provider, who referred me to a neurologist. The neurologist is all booked up until January, so I must wait until then for an appointment.

On this very forum today, I learned about a condition called Benign Fasciculation Syndrome. Then I researched that, and it seems similar to what my symptoms are. That was reassuring, and maybe that is what I'm experiencing. I'm just going to wait and see how my neurology appointment goes.

Thanks once again to you both for your helpful and reassuring information.

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@moconnor166 Are you still twitching today? I started with lower left eyelid too, then it spreads out all over the body and face. Everyday. Only occur when my muscles are at rest/when I don't exert or tense my muscles. Sometimes, it causes muscle tension/tightness. Not cramp, not spasm, and no weakness. I absolutely despise this! It's been 5 weeks for me! How can I deal with this??? I have yet a 2nd appointment with my PCP and will ask her to refer me to a neurologist for further diagnostic test. All my blood work came back completely normal, including Creatine Kinase.

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I have had this on and off for 20 years. Most likely BFS. Remember if you have anything at all that is seriously it usually presents weakness.

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