Okay, I need your responses and help with this one

Posted by kartwk @kartwk, Aug 11, 2025

H. FINALLY has a doc. apt. Wednesday for his annual physical. Now I have already sent the doc some of my concerns but my problem is that H can, at times, be just normal, especially for short periods or when passing the time of day with neighbors.

For years, though, in the doc's office he hasn't understood things and I have explained it or told him I understand what the Doc is saying, but that can happen to any of us which is why it is always good to have another person with you.

Yesterday I wanted to rent Jurassic Park on Fandango, we have an account. H insisted on putting in the information, which he had trouble with as it took him 4 tries to get it right before we even got to the password. The password has a $ in it and H kept putting in a ? instead of the $ sign. When I pointed this out he claimed that the $ sign WAS the ? symbol and after so many tries he got locked out. He got very angry when I suggested that he let me put in the code.

Well, needless to say, we didn't get to watch that movie as the atmosphere, him getting grouchy, went down the tubes.

This morning I told him that there was, on the news, an explosion at a steel plant in PA. His response was: "boy, they really are going after those clinics". I had no idea what he was talking about and I can guarantee he didn't either even though he tried to tell me that he thought I said clinic instead of steel mill which isn't even close.

Friday he was telling me Trump had put high tariffs on EGYPT and India because they were buying Russian oil! We all know that it is China and India not EGYPT. When I said he must mean China, he got snarky and claims that he said China not EGYPT. Folks, I have my wits about me, and my hearing and I know what he said because he said it twice. And before that it was that Iran was attacking Ukraine, mixing up Iran with Russia.

HOW do I explain that kind of stuff to the doctor? At first, months back I thought this was a slip of the tongue etc., but it is far too common to be that know IMHO.

Interested in more discussions like this? Go to the Caregivers: Mild Cognitive Impairment (MCI) & Dementia Support Group.

Profile picture for centre @centre

@kartwk my husband has White Matter Disease and vascular dementia. The most important thing for me was getting the neuropsych testing for a “baseline” in the early days of MCI. It was repeated 8 years later- same tests, same tester. Seeing the results of the first testing, I was surprised at the wide spread of deficits. Seeing the results of the second testing, with significant deficits, was comforting in a way, I wasn’t “seeing things”. I had a better idea of what was going on and what I needed to do to plan for our future. My husband enjoyed the testing- said it was “fun”, mentioned “puzzles”.
I quietly made a follow-up appointment to meet the neuropsych guy by myself. I highly recommend this- gave him leeway to be frank and candid, gave me space to ask difficult questions about what this and that meant.
About the rollater- I got my husband one thinking it would help, but he would get going way too fast, get distracted and bump into things, and never got the idea of setting the brakes. It’s gathering dust in the garage now.

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@centre
The only test our PCP ever gave H was a simple one where he gave H 3 things to remember and then came back and asked him what those 3 things were. H remember 2 of the 3, but that really didn't represent the problem I had talked to Doc about concerning him.
H doesn't get a lot of what the Doc tells him about his health, he relies on me to explain it to him in front of the Doc, more and more. I have to break it down in to simpler terms sometimes 2 or 3 times.
H never use to be like that but I don't understand why the Doc isn't catching it.

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Profile picture for kartwk @kartwk

I am enjoying and getting support from reading all your comments and suggestions. I know I have a long way to go, but it is tough when it is just me.

One thing I see is that we, as a collective, group are all in this together and we seem to get some strength from posting.

Let's keep it up.

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@kartwk Please remember that you are not alone on this journey. So many people have the same caregiving issues and understand what you are going through. Reach out on this page and share your feelings and frustrations with us. It really helps me. Another thing that was extremely beneficial for me was to educate myself about dementia and how "brain failure" affects everything not just memory. I highly recommend Teepa Snow"s website, Positive Approach to Care. There are also short You tube video by her on various topics. I registered and completed part one and two of a four part series on dementia caregiving tools.

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When my husband started forgetting things and I could see something wasn't right, I ended up writing a note in my husband's primary care portal to let her know that what I thought he was experiencing at home was more than aging memory issues. Fortunately, for me, he was in for another test, which made it easier to bridge to the initial testing they do for mild cognitive impairment. I had practiced that day before we got into the doctors what I was going to say, so my husband didn't get angry. He has a boat, and I used something near and dear to his heart. Wanting him to be tested for mild forgetfulness, I called it, so if he's out on the boat, there are no issues. I kept it, light, didn't take any videos or pictures of what was taking place at home. It turned out in the test she gave him; we went for a follow-on set of neurologist tests that led to MCI diagnosis and the Lequembe infusions he's taking right now every two weeks, with and MRI after the 2nd infusion up to the 7th infusion. I, too appreciate this connect group.

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Profile picture for kartwk @kartwk

Thank you bclane.
Our savings accounts have us as joint owners. The house is in both of our names but I am not certain that is with the right of survivorship, just as husband and wife.
My big concern is his IRA, which he started to contributing to as a 401(k) plan only after we married. As long as he worked, the gov. said that I, as spouse, had to be beneficiary. When he retired he was required to roll it into an IRA and while I currently am the beneficiary, I know he wants to leave something to his kids and that the IRA can be changed at any time. THAT is the largest amount of our savings and he only was able to do it by being married to me.

As for the house, I owned a home that was almost paid for when we married. I never intended on moving nor putting his name on the title. When his company transferred him I had to sell the house and that was what we bought the next house with, and what we purchased this current home with...money from my original home.
Yeah, I should have done a prenup on the house, but as I said, I never intended to move and who knew that his company was going to move. The money from my home paid for the home where his company moved, and that money paid for the home we currently are so we don't have any mortgage.

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@kartwk
I recently found out I was wrong about it being enough to have both names on the house. We have moved into a CCRC and are selling our house. Both names are on it, but it turns out just having that isn't enough when it comes to real estate, even though it's enough for vehicles, bank accounts, etc. My husband can no longer sign his name, so I had to get a limited POA for the house closing. A notary verified he's who he and family say he is, and then he printed his name as best he could on the limited POA, and it was notarized. It made sense that it's possible to do it that way since some people can't sign their names due to illiteracy or never learning cursive or even physical issues. The notary said sometimes it's no more than a scribble or a mark.

Just wanted to clarify that part of what I told you was wrong. I just didn't know it at the time. Now, it may be different in different states, so it would be wise to check with a real estate agent or an attorney just in case you have to or want to sell at some point.

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Profile picture for bclane @bclane

@kartwk
I recently found out I was wrong about it being enough to have both names on the house. We have moved into a CCRC and are selling our house. Both names are on it, but it turns out just having that isn't enough when it comes to real estate, even though it's enough for vehicles, bank accounts, etc. My husband can no longer sign his name, so I had to get a limited POA for the house closing. A notary verified he's who he and family say he is, and then he printed his name as best he could on the limited POA, and it was notarized. It made sense that it's possible to do it that way since some people can't sign their names due to illiteracy or never learning cursive or even physical issues. The notary said sometimes it's no more than a scribble or a mark.

Just wanted to clarify that part of what I told you was wrong. I just didn't know it at the time. Now, it may be different in different states, so it would be wise to check with a real estate agent or an attorney just in case you have to or want to sell at some point.

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@bclane
Thanks for the update on that. My original home was oe purchased before I got married. when we sold it the lawyer (buyers) had him sign off on the sale as well. My lawyer said it was not necessary but just a precaution.

When my Mom had her massive stroke and was in a nursing home, Dad wanted to sell the car. In IL, Mom had to sign off on that too. THAT situation was interesting and opened my eyes as Mom suffered brain damage but a cousin of mine had a notary friend, that for a price, came in and notarized her scrawl! She had lost all use of her right side, so the cousin had to move her hand for her. I did not approve of this and kept a good eye on the cousin after that, with good cause.

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One thing my lawyer told me was it was good that I have all kinds of records that show the original house was purchase 6 years before I married H and that subsequent homes have all been financed out of this, large downpayments, etc. Thus, if his greedy daughter tries for the house again she has already tried once, I can show financial trail and that all additional payments on this home were with joint earrings as husband and wife.

THere is no way I am going to get him to sign a POA as, according to him, there is nothing wrong with him.

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Profile picture for kartwk @kartwk

One thing my lawyer told me was it was good that I have all kinds of records that show the original house was purchase 6 years before I married H and that subsequent homes have all been financed out of this, large downpayments, etc. Thus, if his greedy daughter tries for the house again she has already tried once, I can show financial trail and that all additional payments on this home were with joint earrings as husband and wife.

THere is no way I am going to get him to sign a POA as, according to him, there is nothing wrong with him.

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@kartwk A few considerations:
Depending upon the state you live in, once separate property or assets are "commingled" - as when a solely owned home is sold, and the proceeds used to purchase a jointly owned home, it becomes a "marital asset" not a separate one. In most states, your step-daughter has NO claim on marital joint property while you are alive. You need an attorney (for yourself) to protect yourself according to state laws since she is trying to coerce her Dad. Please don't rely on the internet or "armchair lawyers" for advice.
While consulting the attorney, you may want to discuss having him draft reciprocal powers of attorney for both of you "in case one becomes incapacitated."

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Profile picture for Sue, Volunteer Mentor @sueinmn

@kartwk A few considerations:
Depending upon the state you live in, once separate property or assets are "commingled" - as when a solely owned home is sold, and the proceeds used to purchase a jointly owned home, it becomes a "marital asset" not a separate one. In most states, your step-daughter has NO claim on marital joint property while you are alive. You need an attorney (for yourself) to protect yourself according to state laws since she is trying to coerce her Dad. Please don't rely on the internet or "armchair lawyers" for advice.
While consulting the attorney, you may want to discuss having him draft reciprocal powers of attorney for both of you "in case one becomes incapacitated."

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agree Sue but these days people will go after things they have no right to. Starting a lawsuit on a will can tie it up in court for a long time. Sometime the purpose of the suite is just to get some kind of financial settlement. AKA nuisance suits.

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