New diagnosis today. Trying to figure what to do..
Hello everyone. I could use your help. Today I was diagnosed with a 4.0 aneurism of the aortic root. I read most of the time they don’t do anything till it grows to over 5.0cm. Is that right? What should be my next steps?
Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.
Open heart is fairly straightforward now, especially if you’re in good physical health, I had my repair at 54 and was in very good shape, exercised with intensity frequently, never smoked, my surgeon told me the probability of no issues was >99.9% and that’s how it went, out of the hospital in 5 days, back to work in 3 weeks, really fast recovery. It’s also important how experienced the surgeon is, mine is probably the best in Houston, stay active, keep treating your body well and everything will go fine!!
Hey Matthew,
Looks like it’s been about 6 months since your post. How are you doing today?
Hello, especially to Moonboy who I’ve seen as been very helpful to othered on this site.
I’m going to be 60 this week and through a routine cardio work up it was discovered I have a 4.1 ascending aortic aneurysm…this was through the Echo as my CT scan is not for 2 more weeks. Needless to say, I’m devastated and I haven’t been able to eat, sleep or interact…I’m somewhat disconnected from everything at this point worried about this time bomb in my body. I hear so much horror about it and I just don’t know how people can live waiting for it to rupture without worry! Also, I want to know about the open surgery if anyone has had it…do they crack your chest? Is it survivable?
You're going to be fine. They do have to crack you to fix since they have not yet figured out a way to do it without open heart access. It is survivable for sure--especially since you know you have a problem. I suddenly dissected in 2015 and I'm here talking to you. I was 50. I am now 60.5 years old. Eat, sleep, interact. You'll be fine. Surgery is no fun, but it would be even worse would be a sudden dissection. Trust me--it's usually not good. I had emergency open heart surgery and I am doing GREAT. You will be fine. I would get a good self-hypnosis app for your phone and listen to the Anti-Anxiety one as many times as you need to help relax. The real danger is for people who do not know they have a problem. You're good.
PICTURE: This is me volunteering to pick up trash from around the Minnesota State Fair two weeks ago. I do that 3 hours a night for 12 straight days. All with a Dacron Aortic graft. If I can do it so can you! Peace.
Second everything Moonboy said, I had my surgery at 54, mine was planned 3 months after they found my 5.2 aneurysm, as he says you know you have it and can follow up and plan, not everyone gets that opportunity. Yours being small you’re far from the risk zone and I hope that will help you relax. Drs will determine the growth rate after several measurements and will determine the right follow up protocol, I recommend you find a cardiologist who specializes in aortic diseases, not all of them do and makes a difference. He/she will determine the frequency of follow ups, help you control BP which is the main factor to maintain under control.
Otherwise stay healthy and active, exercise but stay away from heavy weights or exertion that leads you to hold your breath, treat your body well, if you smoke stop, and watch your BP. Exercise also helps control stress, yoga, meditation are all things you could explore and a good therapist if it gets hard to manage.
If you ever need surgery a healthy body will minimize the possible risks of the surgery. I was out of hospital in 5 days back to work in 3 weeks. Like Moonboy I just turned 60 and live a completely normal life, exercise frequently. I see my cardiologist every year and he orders full aortic MRIs every 4-5 years to ensure no new aneurysms are forming, all good.
You will be fine, you came to the right place every one here has gone through something similar!!
Thank you very much. I’m so stressed out I can’t eat or function…I’m terrified!
Thank you. My CT is 10-6 so I’ll know more. As dangerous as open heart repair is, I wish I could just do it so I’m not living with a bomb in my chest. It’s torture.
BTW I turned 60 last week, so we are almost exactly the same age. Open Heart is still risky of course but much more routine and less risky than it used to be especially if it is performed by a very experienced cardiothoracic surgeon and you are in good health. And they now close your skin with glue so you can barely see the scar 😉.
Again we all understand the stress and anxiety, it is one of the most common posts in this forum, keep in mind at the size yours is the probability of dissection or rupture is extremely low, close to 0. Fill your life and time with things that bring you joy, keep your mind busy, stay active and find activities that relax you. For me exercising intensely, yoga, traveling with my family, hiking, getting together with my close friends, watching movies that absorb my attention, enjoying a glass of an excellent red wine, keep me relaxed. You will find yours!!!
Thank you. You have me peace tonight.
@moo hello, I'm 65 years old and was just diagnosed with 4.8 cm AAA yesterday the results of a MRI in the lower back for sciatic nerve pain. Wondering what to do now.