I was diagnosed with Sjorgrens Syndrome many years ago (2008). They had prescribed Restasis Eye Drops twice a day to help your eyes produce fluid and Pilocarpine to help with dry mouth. I'm still on the same scripts. I can't say they work great but my Sjorgrens is related to Rheumatoid Arthritis and seems to come and go. The Pilocarpine was unpleasant for me. After taking it I would get the sweats and be very cold. I'm not sure this info. will help anybody but send my best wishes to all for the battles we fight daily.🌷
My Othamologist has put plugs in the corners of my my eyes-both upper and lower lids. They have really helped my dry eyes. I have the non permanent ones as he said the permanent ones can get infected. I have had them in for 10 years and have had no problems. One fell out recently but he just popped another back in.
I still use restasis and systane drops. But mainly at night. I hope this helps. Take care everyone.
I have been using cyclosporine(generic restasis) and Miebo for several months. Originally was on just cyclosporine.
My doctor told me about vevye - My insurance would provide a one month supply for $76.
However my doctor told me there is a company (Philrx) that I could get it through for $59 a month and
if approved for 3 months it would be $165. I have been trying to get this for almost a week with many calls to Philrx. When it seems it has been approved (they have my $165 pending on my credit cards since May 16)there is another hoop to jump through. Hopefully today - (after over half an hour on the phone with one person who said I needed to give them some info, which I didn't have on hand - and then another few minutes with someone else who I provided the information to) - will have done the trick. We shall see. The vevye is a combination of cyclosporine and miebo. I will use it for 3 months (IF I ever get it!!) and see if there is any change. If not, I would probably go back to using the 2 drops separately - due to cost. Fortunately, my eyes rarely bother me.
Have any of you used vevye?
I take orally every day sea buckthorn oil gel caps and a fish oil supplement and they help tremendously.
I also use Systane ultra hydration PF eye drops. All the prescription eye drops didn’t work. I also do warm compresses
on my eyes twice per day. Systane eye ointment is good to use prior to bedtime and also if your having extreme irritation in your dry eyes. My dry eyes developed after having multi focal lens replacement. I didn’t have cataracts I just wanted to see without my glasses. Now because of the severe dry eyes my far vision is affected and I avoid driving interstate because I can’t see the signs until I’m right up on them and the varying light from outside affects the clarity of my vision. I see we’ll close up and indoors with suttle lighting. I wasn’t told all this ant the consultation because it’s a money making business and I spent 10,700 out of pocket for these lenses. I now also can’t drive at night because the lights on the cars are astronomically glaring and reach out 10feet in circles and I can’t see due to the almost blinding glares;so now I don’t drive at night. I should have stuck with my glasses or just got the close vision lenses and use glasses to drive, but then again the dry eyes from the lens implants may still have caused a dry eye issue. I’m 65 and had this done at age 61.
I was diagnosed with Sjorgrens Syndrome many years ago (2008). They had prescribed Restasis Eye Drops twice a day to help your eyes produce fluid and Pilocarpine to help with dry mouth. I'm still on the same scripts. I can't say they work great but my Sjorgrens is related to Rheumatoid Arthritis and seems to come and go. The Pilocarpine was unpleasant for me. After taking it I would get the sweats and be very cold. I'm not sure this info. will help anybody but send my best wishes to all for the battles we fight daily.🌷
I have several eye conditions including dry eyes. My eye doctor - a corneal specialist - has recommended warm eye compresses for 15 minutes twice a day. There are eye masks you can purchase that heat up in the microwave. Also, she has me cleansing my eyelids (especially the lash area) twice a day. In the morning with eyewash solution and then lubricant eye drops. In the evening after the warm compress I cleanse with Sterilid antimicrobial solution. The lubricant drops she prefers - and I like the best as well - are Systane Complete, which I use several times during the day. Then at bedtime I use Systane Nightime gel. It's quite a routine but worth it.
Yes, Xdemvy. These eye drops will kill, or control, the Demodex mite infestation. Demodex mites live on our eyelids, in our eyelashes, eyebrows and other hair follicles. It's expensive, but Xdemvy is definitely worth it. I've used the drops twice.
If your Opthalmologist didn't tell you about Demodex, it's probably because people get really upset (freak out) when they learn that microscopic mites are living on us. If your opthalmologist doesn't know about them, change doctors ASAP.
My doctor told me that a Demodex infestation is common for people with a compromised immune system, as mine was after breast cancer. FYI, studies show that 100% of people over 70 have them, although they may not have an infestation.
Get Xdemvy. Take the drops religiously 2x/day for 42+ days. It paralyzes them so they can't mate while you sleep, and then kills them and their eggs over several lifecstages. Within 2 weeks you’ll begin to have relief. It really works and Tarsus, the pharma company that makes it, is educating doctors so they'll begin to tell their patients. They also have something in the pipeline for Meibomian Gland Disorder and Lyme Disease. (I've done a lot of research after being one of those people who freaked out!)
Demodex are a serious problem for too many people and it's time the medical community addressed it.
The mites are considered commensal, which means they need us and we need them. (But I don't know why we would need them.) They can live separate from a human for a few days but then they die. High temps will kill them, which is why I wash my sheets on high and dry on high and then steam them in the dryer. I also change my pillow cases daily, and have two sets of makeup - one for each eye, as well as makeup brushes (don't use the same mascara on both eyes!). Doctors are not as knowledgeable as they should be, and my dermatologist learned in med school that they're commensal, so he doesn't think there's anything wrong with them. (There are studies that show their involvement with rosacea. But it hasn't been determined if they cause rosacea or just add to the inflammation.)
I've found the best tea tree wipes are Cliradex. My doctor in Philadelphia just left to start a Dry Eye Clinic at Columbia U, but she prescribed an erythromycin ointment that I was to put on my eyelids every night. She didn't explain why at the time, but it's to keep them from moving around and mating while you sleep. You can put some Vaseline on your eyelids and eyebrows. Just make sure it's the regular kind, not with shea butter, which they like.
My doctor also recommended that I do two treatments twice a year. 84 days (instead of 42) twice a year.
Depending on where you live, you may not be able to get a doctor who will understand.
For side effects, I've had none. But it's best to check with the company: https://tarsusrx.com/
Good luck! It's a very annoying thing to have. I know!
I have no idea if this would work for anyone else, but I had dry eyes last year for quite a while. My eye, especially my right one, was constantly tearing up. Very annoying!
I read a post on Facebook that a person used castor oil for dry eyes. I bought organic, cold pressed castor oil and started rubbing a drop or two into each eyelid each night before bed. Within a month, my dry eyes were cleared up, and it has not returned in a year. Like I said, it may not work for everyone, and I certainly am not giving medical advice. I am merely relating my own experience. If it helps someone else, great!
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My Othamologist has put plugs in the corners of my my eyes-both upper and lower lids. They have really helped my dry eyes. I have the non permanent ones as he said the permanent ones can get infected. I have had them in for 10 years and have had no problems. One fell out recently but he just popped another back in.
I still use restasis and systane drops. But mainly at night. I hope this helps. Take care everyone.
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Like -
Helpful -
Hug
3 ReactionsI have been using cyclosporine(generic restasis) and Miebo for several months. Originally was on just cyclosporine.
My doctor told me about vevye - My insurance would provide a one month supply for $76.
However my doctor told me there is a company (Philrx) that I could get it through for $59 a month and
if approved for 3 months it would be $165. I have been trying to get this for almost a week with many calls to Philrx. When it seems it has been approved (they have my $165 pending on my credit cards since May 16)there is another hoop to jump through. Hopefully today - (after over half an hour on the phone with one person who said I needed to give them some info, which I didn't have on hand - and then another few minutes with someone else who I provided the information to) - will have done the trick. We shall see. The vevye is a combination of cyclosporine and miebo. I will use it for 3 months (IF I ever get it!!) and see if there is any change. If not, I would probably go back to using the 2 drops separately - due to cost. Fortunately, my eyes rarely bother me.
Have any of you used vevye?
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Helpful -
Hug
1 ReactionXiidra go to manufactures website. Get a discount coupon. Give to pharmacist. I pay 20.00 for three boxes.
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1 ReactionI have several eye conditions including dry eyes. My eye doctor - a corneal specialist - has recommended warm eye compresses for 15 minutes twice a day. There are eye masks you can purchase that heat up in the microwave. Also, she has me cleansing my eyelids (especially the lash area) twice a day. In the morning with eyewash solution and then lubricant eye drops. In the evening after the warm compress I cleanse with Sterilid antimicrobial solution. The lubricant drops she prefers - and I like the best as well - are Systane Complete, which I use several times during the day. Then at bedtime I use Systane Nightime gel. It's quite a routine but worth it.
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4 ReactionsXdemvy has side effects?
Are these mites living in my recliner, my books, my plants?
Is it only the immune system?
Does anyone know?
Also I use tea tree wipes each morning on both eyes to clean for the day, but these mites come back promptly when it gets dark! Help!
The mites are considered commensal, which means they need us and we need them. (But I don't know why we would need them.) They can live separate from a human for a few days but then they die. High temps will kill them, which is why I wash my sheets on high and dry on high and then steam them in the dryer. I also change my pillow cases daily, and have two sets of makeup - one for each eye, as well as makeup brushes (don't use the same mascara on both eyes!). Doctors are not as knowledgeable as they should be, and my dermatologist learned in med school that they're commensal, so he doesn't think there's anything wrong with them. (There are studies that show their involvement with rosacea. But it hasn't been determined if they cause rosacea or just add to the inflammation.)
I've found the best tea tree wipes are Cliradex. My doctor in Philadelphia just left to start a Dry Eye Clinic at Columbia U, but she prescribed an erythromycin ointment that I was to put on my eyelids every night. She didn't explain why at the time, but it's to keep them from moving around and mating while you sleep. You can put some Vaseline on your eyelids and eyebrows. Just make sure it's the regular kind, not with shea butter, which they like.
My doctor also recommended that I do two treatments twice a year. 84 days (instead of 42) twice a year.
Depending on where you live, you may not be able to get a doctor who will understand.
For side effects, I've had none. But it's best to check with the company: https://tarsusrx.com/
Good luck! It's a very annoying thing to have. I know!
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Like -
Helpful -
Hug
1 ReactionI asked my ophthalmologist about the mites and he said they were not in my eyelashes….so….
I have no idea if this would work for anyone else, but I had dry eyes last year for quite a while. My eye, especially my right one, was constantly tearing up. Very annoying!
I read a post on Facebook that a person used castor oil for dry eyes. I bought organic, cold pressed castor oil and started rubbing a drop or two into each eyelid each night before bed. Within a month, my dry eyes were cleared up, and it has not returned in a year. Like I said, it may not work for everyone, and I certainly am not giving medical advice. I am merely relating my own experience. If it helps someone else, great!