Anybody have trouble regulating body temperature after COVID?

Posted by da69 @da69, May 29, 2024

Has anybody else had trouble regulating their body temp after getting covid?
Am i crazy here?.....But i am always hot then cold....Or cold then i get hot.
On with sweatshirt....Then off with the sweatshirt..........
I can never seem to find the comfortable spot.

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Profile picture for ewilson1960 @ewilson1960

Hi, I’m well past menopause as well. Started taking bio identical hormones last year because of the crazy sweating. They helped a little bit. The I started on Low dose naltrexone about 3 months ago. It’s been a game changer. Apparently it’s a hormone regulator, immune system regulator and many other things they’re discovering just from patient feedback. I’m no longer on the hormone treatments and have also no need for thyroid meds anymore.
It took about a month to feel some changes. No it seems I feel better and better every week. My tolerance for heat and cold has normalized. No more sweating! Hope this is helpful.

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I tried naltrexone, but I began to get mouth sores and rashes. I had to go off of it and then they put me on cymbalta. It worked great for 8 months until I began to get weird rashes, so I can't use that either. I wish I could find another one to try because I'm so sick of not sleeping.

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Profile picture for ellen27 @ellen27

Post COVID my body temp regulation has gotten quite bad. For me the most challenging is that I overheat every night while sleeping. This wakes me multiple times, so my post COVID fatigue is worse than ever. I use cool water to help regulate, and also keep a cooler with ice packs by my bed. Cooling blankets have helped minimally.
I have upcoming autonomic nervous system testing. I would be curious if anyone has had a similar experience.

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Yes, yes and Yes! It's the absolute worst at night and the reason I don't sleep.

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Profile picture for ionabrassiere @ionabrassiere

I tried naltrexone, but I began to get mouth sores and rashes. I had to go off of it and then they put me on cymbalta. It worked great for 8 months until I began to get weird rashes, so I can't use that either. I wish I could find another one to try because I'm so sick of not sleeping.

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Ugh. I’m so sorry. Another resource I’ve found helpful is an app called Turnto. It’s free (totally free). It’s all info about long Covid.
I also went to a long Covid clinic where I live and they gave me this list to try:
1- NAC 600 mg twice a day on an empty stomach.
They said to try it for a month, you’ll know my then if it’s working.
If not, wait about two weeks then try the next one.

2- ultra micronized PEA 600 mg once a day. Take it with luteolin 60 mg per day. These are for long Covid inflammation.

Hoping you can find something that helps!

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Profile picture for c1john @c1john

I too am worried about the heat. When I get too hot now, which is quite regularly, I get nausea every time now. I am so worried about it-I went out the other day and it was about 80 degrees and had some errands to do and I got sick just like that. I got some throw up bags from the dr to keep in the car in case I get nauseated while.
I went to Sports Academy and got those cooling towels for the summer hoping that will help me.

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@c1john I have had Long Covid for over 1 year. I find different times of the day and especially night cause temperature dis-regulation with both heat and cold. I am especially impacted if I have not had enough sleep. Yesterday, my temp started at about 99.2. It dropped about .5 degrees Fahrenheit every hour until it leveled off at about 96.4. Since we lose so much heat from the top of our heads, I applied a well-wrapped head scarf. Out sweat more than is believable, I washed & dried my feet put on clean, loose fitting and warm socks. I was still Uncomfortable between “hot and cold” with a below normal temp, so I took a warm sitting bath, got thoroughly dry and changed all my other clothing. I am severely Agoraphobia,, so trips to the PCP are all via Telehealth. I have Asthma so inhalers also disregulaate my autonomic system. I finally fell into a comfortable and easy sleep with soothing meditation music playing and woke up in much better condition 🙂 I am needing the heater again this afternoon, though. I plan to talk to my PCP. It is difficult to know what is best at times. My Best Wishes to you.

Dr. Billie Lee Williams
APRN, MS, PhD
Clinical Psychologist—Medically Retired

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Profile picture for mccelt2025 @mccelt2025

@c1john I have had Long Covid for over 1 year. I find different times of the day and especially night cause temperature dis-regulation with both heat and cold. I am especially impacted if I have not had enough sleep. Yesterday, my temp started at about 99.2. It dropped about .5 degrees Fahrenheit every hour until it leveled off at about 96.4. Since we lose so much heat from the top of our heads, I applied a well-wrapped head scarf. Out sweat more than is believable, I washed & dried my feet put on clean, loose fitting and warm socks. I was still Uncomfortable between “hot and cold” with a below normal temp, so I took a warm sitting bath, got thoroughly dry and changed all my other clothing. I am severely Agoraphobia,, so trips to the PCP are all via Telehealth. I have Asthma so inhalers also disregulaate my autonomic system. I finally fell into a comfortable and easy sleep with soothing meditation music playing and woke up in much better condition 🙂 I am needing the heater again this afternoon, though. I plan to talk to my PCP. It is difficult to know what is best at times. My Best Wishes to you.

Dr. Billie Lee Williams
APRN, MS, PhD
Clinical Psychologist—Medically Retired

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@mccelt2025 I meant our **feet** Sweat,😓 sorry!

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When LC hit me in 3/22 my body temp many times dropped alarmingly low. Lowest was 94.1. I was told that was impossible. NOT! During PT i have often experienced convulsive shivering. Felt like i was outside in the snow. Everytime my body temp has dropped radically, my eyeballs felt so cold like an arctic breeze was blowing on them. My current situation is the back and forth feeling of cold and hot. The unbelievable hot flashes and drenching sweats at night are not hormonal based...no matter what some say. Im 60 and way past menopause. The LC study i participated in nailed it...temp dysregulation. Cold wet cloth around neck helps!!

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