I am searching for stem cell treatment options for IPF. Please let me know what you with find out. I was diagnosed with IPF about 5 months ago. I get very short of breath with minimal exertion.
Hi @wba3721
To find legitimate information about stem cell therapy for IPF and available clinical trials, I recommend contacting Mayo Clinic's free telephone consult service.
When you call the Mayo's Regenerative Medicine consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.
My pulmonologist said, while stem cells work for some diseases, it doesn' work for lung disease. You will be given your blood stem cells and spend lots of money, time and effort and it will not help you! A complete sham!
My pulmonologist said, while stem cells work for some diseases, it doesn' work for lung disease. You will be given your blood stem cells and spend lots of money, time and effort and it will not help you! A complete sham!
@joanelle77, Good morning Joanelle. I am so glad that you visited the Lung Health group. Did you see mention of a med that patients with IF use? I had intended to look it up after I checked all of my texts in my group. There are also diff apparatus available to help clear the lungs of mucous. One is called an 'Acapella', it is a gadget that is put to the mouth and provides a pulsing pressure to the lungs to break up phlegm. There is also a vibrating vest that is commonly used on Cystic Fibrosis patients that shakes the phlegm loose. I know it is difficult to watch someone who is struggling to breathe. He may also experience panick attacks. That is common for people with serious lung diseases. Sometimes patients are prescribed a seditive to take when an attack arises. You and your step-dad are in my thoughts.
My pulmonologist said, while stem cells work for some diseases, it doesn' work for lung disease. You will be given your blood stem cells and spend lots of money, time and effort and it will not help you! A complete sham!
@joanelle77 Here is a site for the drug 'Ofev' that is prescribed to IF patients. There is info about the disease itself as well. https://www.ofev.com/
My pulmonologist said, while stem cells work for some diseases, it doesn' work for lung disease. You will be given your blood stem cells and spend lots of money, time and effort and it will not help you! A complete sham!
Welcome to Connect, @wba3721
I'm sure that you read through the messages of this discussion. Have you called the Mayo Clinic Regenerative Medicine free consult line? When you call the Mayo's Regenerative Medicine consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service. Or call 1-844-276-2003 to speak with one of our experts.
It's important to do your research. Happy to hear what you find out.
Wba3721, are you researching about stem cells and IPF for yourself or a loved one?
@wba3721, I strongly encourage you to call Mayo's Regenerative Medicine consult service. They will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.
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Hi @wba3721
To find legitimate information about stem cell therapy for IPF and available clinical trials, I recommend contacting Mayo Clinic's free telephone consult service.
When you call the Mayo's Regenerative Medicine consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.
I have been searching for information on Stem Cell/Regenertive Treatment for IPF. Have not found a legetimate option.
I will let you know if i find anything. Please do the same.
@windwalker Thanks! Now I know to avoid this for my Stepdad. I can't thank you enough for recommending Mayo Connect. It's a great help!
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2 Reactions@joanelle77, Good morning Joanelle. I am so glad that you visited the Lung Health group. Did you see mention of a med that patients with IF use? I had intended to look it up after I checked all of my texts in my group. There are also diff apparatus available to help clear the lungs of mucous. One is called an 'Acapella', it is a gadget that is put to the mouth and provides a pulsing pressure to the lungs to break up phlegm. There is also a vibrating vest that is commonly used on Cystic Fibrosis patients that shakes the phlegm loose. I know it is difficult to watch someone who is struggling to breathe. He may also experience panick attacks. That is common for people with serious lung diseases. Sometimes patients are prescribed a seditive to take when an attack arises. You and your step-dad are in my thoughts.
@joanelle77 Here is a site for the drug 'Ofev' that is prescribed to IF patients. There is info about the disease itself as well. https://www.ofev.com/
@joanelle77 Here is another drug that is prescribed for IF patients...https://www.esbriet.com/
I am also looking for information on stem cells for IPF. I will let you know if i find any good info.
Welcome to Connect, @wba3721
I'm sure that you read through the messages of this discussion. Have you called the Mayo Clinic Regenerative Medicine free consult line? When you call the Mayo's Regenerative Medicine consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service. Or call 1-844-276-2003 to speak with one of our experts.
It can be really difficult to tell which stem cell therapies and regenerative medicine practices are effective and which institutions are offering evidence-based proven therapies. In fact, recently the Food and Drug Administration (FDA) released a stern warning against unproven stem cell therapies. The FDA issued these two press statements: https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm573427.htm and https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm573431.htm.
It's important to do your research. Happy to hear what you find out.
Wba3721, are you researching about stem cells and IPF for yourself or a loved one?
Have you found any new info about stem cells for Pulmonary fibrosis?
@wba3721, I strongly encourage you to call Mayo's Regenerative Medicine consult service. They will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.