Has anyone used Trelegy?

I’ve been taking it since Nov 2024 and find it works very well for me. Much easier having just 1 inhaler. I have to focus to be sure not to cough for at least 10 seconds after I take it.

Yes, it works great for me.

I use Breztri and I get it free through AstraZeneca. You can apply at AZandMeapp.com

Happily, just picked up a 90 day supply at CVS and even tho list price was >$2400, my copay dropped from $75 to $0!

I read your experience with Trelegy . I have been on it for 2 years . I was diagnosed with Emphysema 2 years ago . I started immediately on 24/7 oxygen and Trelegy a month later . Do I read correctly that you have been on Trelegy since 2019 ?. If may ask , how long have you been on 24/7 oxygen? I think your case seems similar to mine . I am interested in how your emphysema progressed over the period of 5 to 6 years. Did your settings go up on oxygen . My use started at 3 ltrs then to. 4 ltrs . This is 24/7 . Now , my oxy drops with exertion . It drops to 80 - I stop and rest . A minute and it’s back up to 90. Just curious about how yours changed over time . Thanks for listening . I wish you light and love. Crystalena

I was diagnosed with COPD (emphysema) in 2000. I went on oxygen just at night a couple of years later. I got invasive aspergillosis in my lungs and cellulitis and sepsis in my legs. I was really sick. I was in and out of the hospital and then rehab in a nursing home. I think it was in 2019 that they sent me home with oxygen 24/7. I think it must have around that time that they put on Trelegy. For me it was a miracle. I stopped having crashes and trips to the hospitals. I have been the hospital one time since 2019 and then only 2 nights. Your emphysema must have been much worse than mine when you diagnosed to have started on oxygen that quick. Right now I am on 2 Ltr when just sitting and 3=when moving around. I now have a lot of trouble breathing when I walk. I use a walker just to carry my purse and portable oxygen. I can walk fine but if I carry things i have much more trouble breathing. I have done Pulumary rehab for years. They say that will help keep your lungs expanded but I think as my disease progresses. nothing is going to stop it from getting bad. I wish you well. I think what makes me the most upset is the fact I caused this myself. Best of luck and as to oxygen level I have 4 oxymeters and they all read different so mine runs between 86 to 92. P

Do not blame yourself for this. It was a well known fact that the tobacco companies suppressed information . I see how the authorities finally sued them and made them pay . . I am not sure where the monies went from the tobacco fines and government suits. It is obvious that there is no fund to help the people that are afflicted with the results . We are to fight insurance plans for help to pay medical costs to help us feel better . We cannot buy a cure . I am resigned to dying from emphysema. I lose, I think , a total of 10 years or so . The thing that bothers me about it, is that this fatal , no cure disease , took away my ability to fulfill the
things I could do . My mind still thinks like I have 10 years . Then , reality sets in and crushes the thought . So my dreams are crushed over and over. Blessed Be, Crystalena

Do you ever watch people walking without having to carry oxygen which is heavy plus for woman a purse also? I just took that kind of freedom for granted. Now just to even go into store is such struggle. I have about everything delivered. I use a walker to carry it all but even my family does not understand how bad it is getting. Sorry guess I am feeling sorry for myself. Tomorrow another day. One foot in front of the next foot as we fight on. 🙏🏼

I do see all the people that do not have this disease. I do struggle to get my oxygen tank in and out of the car , or stores , or over a curb . Every thing is different for getting from one place to another . I am very fortunate to have my husband to help me. I however do , still spend a lot more time at home . I do some crafts , paint, jewelry, and am working on getting my sewing machine to an area upstairs. I have a large craft area in the basement . I don’t use the stairs so it is sitting unused . I have 24/7 oxygen . And with oxygen on , when changing clothes or showering have my level drop as low as 80. So I have to stop and let it catch up . I don’t dwell on my impairment. I Try to stay busy at something all the time . As humans our mind runs thoughts through constantly . If I detect any remorse or negative thoughts , I push them on through. . Blessed Be, Crystalena

I’m newly diagnosed and get very anxious when my O2 gets low. Occasionally, wake up at night with chest pain(emphysema) and use pursed lips technique to clear, then it’s hard to get back to sleep.