Is anyone else suffering from bone pain due to multiple myeloma?

Posted by jcf1270 @jcf1270, Jul 27 12:27pm

How do you distinguish bone pain from multiple myeloma from arthritis caused by aging?

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I had a lot of pain from Myelofibrosis. Once i was put on Ojjaara it all went away

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Profile picture for lmkmom @lmkmom

I had a lot of pain from Myelofibrosis. Once i was put on Ojjaara it all went away

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That’s encouraging. That’s my next conversation with Dr. the shoulder pain.

Hollie

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Profile picture for itlooksunny @itlooksunny

My husband had a stem cell transplant in April!!

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How is his life now

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Profile picture for lmkmom @lmkmom

How is his life now

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Hi @lmkmom, I know this post is meant for @itlooksunny but thought I would pop into the conversation to let you know her husband had an autologous (ASCT) transplant using his own cells for multiple myeloma.

While certain aspects of the ASCT are similar there is a much lengthier and monitored recovery period with the Allogeneic (allo) transplant you are considering. ASCT patients are receiving their own cells with their familiar immune system after their marrow has been treated for cancer cells. So there’s no concern regarding incompatibility between the donor's cells and their own cells.

I’m only bringing this up because comparing post transplant journeys with the two different types of stem cell transplants won’t quite match up in experience.

How’s the donor search coming along? Any news yet?

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