Is anyone else suffering from bone pain due to multiple myeloma?
How do you distinguish bone pain from multiple myeloma from arthritis caused by aging?
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How do you distinguish bone pain from multiple myeloma from arthritis caused by aging?
Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
Excellent question because I was wondering the same.
Best answer: ask your doctor. Next best: arthritis is a disease of the joints, while MM (a disease of the bone marrow) generally damages, well, bones with marrow. Those are the long bones of the arms and legs and flat bones such as the pelvis and sternum. Gray zone: your back. Your spine is a series of joints, but the vertebrae do contain some marrow.
So pain in joints is likely arthritis, especially in older folks. Persistent pain mid-shaft in an arm or leg - in other words, not elbow, knee, ankle or wrist - in any MGUS, SMM, or MM patient should immediately be reported.
I was seeing an orthopedic doc for arthritis since last fall, then only a couple of months ago learned I have a couple plasmacytomas and am fixing to start with a MM specialist in a couple of weeks (following two months of local testing, got referred to a nearby specialty center)
There turned out to be newer, more intense/acute pain in one knee, but only recently was I concerned about the possibility of other lesions elsewhere and that it could be related. An x-ray did show small lesions and we are going to do an MRI to see what may/may not be going on.
So I would say if your "regular" arthritis pain intensifies, feels different, etc., consult with your care team.
I wish I could have gotten such a succinct answer from my doctor. Thank you!
As an 81 year old battling Multple Myeloma for 3&1/2 years, I can say it is painful. I have mild rheumatoid arthritis and osteoarthritisa also . I have battled chronic pain for decades, always avoiding opiods. I can no longer avoid opiods if I want any quality to my life.
My primary care doctor says you can tell the difference between bone pain and "other pain". I disagree.
Many things help for a little while and nothing cures.
I just plow on.
I am 81 also with mm since 2017. I have experienced bone pain as well. Especially back pain. Luckily the pain has been tolerable. I have been taking Polymast 2mg since 1/24
Lately I have experienced pain in my hands and feet. That pain is severe but lasts for a couple of minutes only
I had been in remission but lab work shows it is back.
How did you go into remission with MM?
"Remission" in MM means something different than in many other cancers. It generally means declining levels of M-protein that are maintained over a period of time. There are even some reported cases where M-protein became undetectable. But, as we all know, MM is not curable. That means that (as far as I know), given enough time there will be a relapse, barring some other cause of death first. So, if you take "remission" to mean the disease is gone forever - no, that doesn't happen at present.
The good part is that there have been truly incredible strides in treating MM over the last 25 years or so. Hopefully those strides will continue, to the point where some day in the near future there will be the possibility of a true remission. This, of course, depends on continuing the funding for the medical research, which it seems may itself depend on the whims of people who don't know or don't care.
My husband had a stem cell transplant in April!!
This is nearly exactly what my MM specialist told me. I’m to report such pain asap.