Repatha side effects not believed

Perhaps I can’t have a peer discussion with my Dr but I do see myself as an expert on how my own body feels.
I am intolerant of statins, Repatha and Nexletrol, which cause SOB, fatigue and weak legs. Not everyone is the same.

Why oh why can't they just tell us the truth, that all these drugs have side effects and try to deal with them and try to understand our struggles. I trust an honest person and will listen to reason and try to except the results instead of guessing about which drug is causing my pain. But to flat out deny side effects I'm having exist is just rude, and I think unprofessional.

Maybe we should get together and write a book about amazingly idiotic things medical workers have said to us. We could include the “thoughts” of the doctor who asked why his lesbian patient didn’t use birth control, as mentioned here.

And I got a message on mychart from a medical assistant who said, “If you have more questions, we will call you.” Right.

And my cardiologist who prescribed a blood thinner to me, when I asked whether the weeks of bleeding from a minor cut on my thumb, whether that bleeding were concerning he answered, “I’m not a thumb doctor. Ask your thumb doctor.”

I think we could write a great collection of spectacularly dumb statements.

I can imagine your saying, “I have a headache.” and the doc saying, “No you don’t.” Ha!

Just a question: Did you take a break to let your body flush out the oral pills before starting Repatha? You said you could not tolerate those.

Did you go back to your general practitioner and have a talk about your legs? What did he or she say?

I have been on Repatha for 5 years. I started with every side effect but only lasted 3 months. I take CoQ10…seems to help. I am also on Nexletol and just started once a week low dose Rosuvastatin. I am not sure I can help…but wishing you well.

I developed anemia, weak and SOB. I can’t say for sure that’s it’s the Nexletrol but the company that produces Nexletrol agrees that some people develop anemia. I stopped both Nexletrol and Repatha, had an infusion and my energy has returned. I’m still working on the cause.

Get a new doctor right away.

I'm experiencing severe pain that began in the lower left side of my back and now has caused numbness in my left leg so bad it's difficult to stand or walk for more than 5-7 minutes, after just 4 injections.