Oral Lichen Planus: How do you cope with it?

Posted by diana70 @diana70, Dec 24, 2024

I have been diagnosed with oral lichen planus for over 12 years. Originally it was mild and able to control with Duke’s Mouthwash. In last 5 months have had two major flareups with considerable pain. My condition was managed by my general dentist. I now feel I need someone who specializes in OLP, but have had no luck finding anyone. I live in the Columbia, MD area which is near Baltimore. Does anyone know an OLP specialist in my area?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Profile picture for njh516 @njh516

My dental hygienist recommended Guru Nanda coconut oil pulling. I really don’t like all that swishing and spitting. Also for me, I’ve not seen any change at all from this therapy. My recommendation is not to spend lots of money on this until you tried it and it is something you’re willing to do.

Jump to this post

Thanks njh516 for your input and sharing your experiences.

REPLY

78 yr old female with oral Lichen Planus. Teeth have recently started to crack and decay and painful. Went to dentist for
Consultation. Sugestions were implants or full dentures. My concern is the extraction
Of all teeth as they are all bad. Also have had breast cancer with radiation and suspect radiation might have affected teeth. I need to get my teeth fixed soon. Any suggestions? The implant route is very long.

REPLY
Profile picture for muhlly @muhlly

78 yr old female with oral Lichen Planus. Teeth have recently started to crack and decay and painful. Went to dentist for
Consultation. Sugestions were implants or full dentures. My concern is the extraction
Of all teeth as they are all bad. Also have had breast cancer with radiation and suspect radiation might have affected teeth. I need to get my teeth fixed soon. Any suggestions? The implant route is very long.

Jump to this post

I’m 70 and also dealing with a similar situation due to gastrointestinal issues causing severe decay. I have had the right upper top removed awake with novocaine. I did feel lots of pressure but no pain. He left one tooth to connect an Essix bridge which is streaky used for esthetic looks only.

I need my entire top removed but I’m doing as needed in 4 extraction increments. Yes, my next section will be top left and that’s it for smiling. I’m doing it this way because I’m healing very slowly. I don’t feel I can do it at once and have an upper denture inserted immediately.

I have had two consults for inplants and both say with bone loss, I’m not a candidate for inplants. I was not considering my entire top due to cost. I was considering the new upper denture secured with 4 inplants, still quite costly.
I’m going old school dentures. At my age and health issues I will make this work. I don’t feel feel that I will be in hiding for a few weeks to heal once I have the front done. I hate it all, but who wouldn’t.

REPLY
Profile picture for Joanne Narna @mothermary1

I’m 70 and also dealing with a similar situation due to gastrointestinal issues causing severe decay. I have had the right upper top removed awake with novocaine. I did feel lots of pressure but no pain. He left one tooth to connect an Essix bridge which is streaky used for esthetic looks only.

I need my entire top removed but I’m doing as needed in 4 extraction increments. Yes, my next section will be top left and that’s it for smiling. I’m doing it this way because I’m healing very slowly. I don’t feel I can do it at once and have an upper denture inserted immediately.

I have had two consults for inplants and both say with bone loss, I’m not a candidate for inplants. I was not considering my entire top due to cost. I was considering the new upper denture secured with 4 inplants, still quite costly.
I’m going old school dentures. At my age and health issues I will make this work. I don’t feel feel that I will be in hiding for a few weeks to heal once I have the front done. I hate it all, but who wouldn’t.

Jump to this post

It always seemed wise to me to let the gums heal before dentures go in. How did the extractions on your upper right affect your OLP, if it all? Flares?

REPLY
Profile picture for spondee @spondee

It always seemed wise to me to let the gums heal before dentures go in. How did the extractions on your upper right affect your OLP, if it all? Flares?

Jump to this post

I ended up with a severe herpes 1 outbreak, but this happens every time I have dental anything. I’m allergic to the anti virals so they actually put my husband on a small dose daily. He is also positive. Makes sense we have been married for 52 years. I get it from a kiss. He has never had even a cold sore but tested positive. I get it constantly and severe.
I took about 8 weeks to heal. It felt like raw tissue and eating was difficult. I really need to chew my food well because of my digestive issues so this is taking it longer to eat. I’m disgusted with it all because I was fortunate and had nice teeth in appearance.
I’m borderline Sjogrens too but have so many drug allergies I’m not bothering with a lip biopsy because I’ll probably be allergic to meds. I wish a doctor would figure out why a person is allergic to so so many meds.

REPLY
Profile picture for muhlly @muhlly

78 yr old female with oral Lichen Planus. Teeth have recently started to crack and decay and painful. Went to dentist for
Consultation. Sugestions were implants or full dentures. My concern is the extraction
Of all teeth as they are all bad. Also have had breast cancer with radiation and suspect radiation might have affected teeth. I need to get my teeth fixed soon. Any suggestions? The implant route is very long.

Jump to this post

I discovered that the medicine I was taking caused the oral lichen planus.
I researched OLP for a cause. A list of medications that can cause it was found.
My hydroxychloroquine was on the list so I stopped taking it and my mouth is much better.

REPLY
Profile picture for SusanEllen66 Susan McMichael @SusanEllen66

I discovered that the medicine I was taking caused the oral lichen planus.
I researched OLP for a cause. A list of medications that can cause it was found.
My hydroxychloroquine was on the list so I stopped taking it and my mouth is much better.

Jump to this post

@SusanEllen66 Wow! That’s really strange! Have you told your doctor yet? Love to know his response!

REPLY
Profile picture for SusanEllen66 Susan McMichael @SusanEllen66

I discovered that the medicine I was taking caused the oral lichen planus.
I researched OLP for a cause. A list of medications that can cause it was found.
My hydroxychloroquine was on the list so I stopped taking it and my mouth is much better.

Jump to this post

That is something I’ll look into. I never heard of that and stopping that med did the trick for you. Was it easy to replace that med with one that didn’t bother you.

REPLY
Profile picture for Becky, Volunteer Mentor @becsbuddy

@SusanEllen66 Wow! That’s really strange! Have you told your doctor yet? Love to know his response!

Jump to this post

@becsbuddy no, my Rheumatologist prescribed the drug, and I just stopped it last week. I want to see if that really is the answer…

REPLY
Profile picture for Joanne Narna @mothermary1

That is something I’ll look into. I never heard of that and stopping that med did the trick for you. Was it easy to replace that med with one that didn’t bother you.

Jump to this post

@mothermary1 I just did this last week. The drug eased joint pain, and I’m hoping to get by without it.

REPLY
Please sign in or register to post a reply.