Oral Lichen Planus: How do you cope with it?

Posted by diana70 @diana70, Dec 24, 2024

I have been diagnosed with oral lichen planus for over 12 years. Originally it was mild and able to control with Duke’s Mouthwash. In last 5 months have had two major flareups with considerable pain. My condition was managed by my general dentist. I now feel I need someone who specializes in OLP, but have had no luck finding anyone. I live in the Columbia, MD area which is near Baltimore. Does anyone know an OLP specialist in my area?

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rashida | @rashida | Aug 22 6:52am

In reply to @nvshaxpur "I developed the same problem quite out of the blue. What helped was a steroid dental..." + (show)

@nvshaxpur is that dental paste Oracort? That did nothing for me - and I found it frustrating to use too.

Joanne Walen | @nvshaxpur | Aug 22 12:54pm

In reply to @rashida "@nvshaxpur is that dental paste Oracort? That did nothing for me - and I found it..." + (show)

No, it was Triamcinolone Acetonide, 0.1%.

rashida | @rashida | Aug 23 10:47am

In reply to @nvshaxpur "No, it was Triamcinolone Acetonide, 0.1%." + (show)

@nvhaxpur do you have to apply that paste with gauze kept in your mouth for several minutes (about a half hour for me!)? That was the worst part of the treatment for me, aside from the fact Oracort did nothing for me!

How do you apply the Triamcinolone Acetonide in your mouth? Do you put some on a piece of gauze and put that in your mouth for several minutes?

lpx3 | @lpx3 | Aug 23 11:32am

In reply to @rashida "@nvhaxpur do you have to apply that paste with gauze kept in your mouth for several..." + (show)

I use a stop and just hold for a few seconds. Sometimes it burns but then no pain at all.

Joanne Walen | @nvshaxpur | Aug 23 12:28pm

In reply to @rashida "@nvhaxpur do you have to apply that paste with gauze kept in your mouth for several..." + (show)

I used a Q-tip to swipe the medication over the areas of “infection.”

rashida | @rashida | Aug 24 7:11pm

In reply to @nvshaxpur "I used a Q-tip to swipe the medication over the areas of “infection.”" + (show)

@nvshaxpur do you spit it out after a while? I do the same with Lyderm gel but I don’t need to spit it out. It tastes very bitter.

Lyderm gel has been working for me (it is used off label), but I am going to keep your medication in mind in case Lyderm eventually stops working for me.