Thoracic aortic aneurysm: Anyone had surgery?

Posted by jbsb93 @jbsb93, Jul 28, 2011

I was born with a hole in my heart and have had 2 surgeries. One to fix hole and the other a valve replacement. I've been recently told the I have a thoracic aneurysm and possibly will need more surgery.. Anyone gone th ru this before??

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@modafi

I had an open repair for a thoracoabdominal aneurysm that produced a 5.7cm tear. I received a branched graft that included a bypass to the celiac artery, the superior mesenteric artery and to the right and left renal arteries. My aneurysm was found by chance--I had not had any previous heart problems or cholesterol problems and was not on any medication. I went to my primary care to get a flu shot and to say that I would finally have the colonoscopy that he had begged me to have for the past 3 years. When I finally agreed to the colonoscopy after turning 60, my primary questioned the change of heart. I explained that I had been experiencing sharp pains that radiated from just below my left breast down to my hip that lasted for about 30 seconds. The pain was not unbearable--but enough to make me take notice. He wisely stated that this did not sound like a colon problem and did an immediate ultrasound in the office. The ultrasound showed an aneurysm in the aortic root. I'm not sure who was more shocked--my doctor or myself. I had walked into the office feeling fine--and ended up taking my first ambulance ride to a Trauma 1 hospital and being placed in the STIC-U. All pre-op tests were performed -- but I needed to wait for 2 weeks until the team of 12 could perform the surgery. I can honestly say that those were some of the most worrisome days I have ever experienced waiting for my surgical call at home. I was afraid to do anything except sit and wait. My surgery was performed on Dec.18th--and I was able to go home a week after surgery. I spent 3 months recuperating and have just returned to work. There are angels that watch over us--you are quite lucky to have the option of waiting for surgery, for most who have this disease dissect and need emergency surgery. God bless you! I hope you can continue to be monitored and medically managed.

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What kind of work do you do? I have a 4.2 ATAA and a very physically demanding job, lots of stress, straining and lifting. Should I be doing this?

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@geraldhumphrey

What kind of work do you do? I have a 4.2 ATAA and a very physically demanding job, lots of stress, straining and lifting. Should I be doing this?

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I hear you. And I feel the weight of your question in my chest, because I asked the same thing when I was 50 in 2015 and told I had a dissecting aorta and needed emergency open-heart surgery.

I had no warning. It was about 42 minutes between the first pain that I had and being cracked open. I had just finished teaching on my feet for 13 hours and was alone in a hotel room in San Diego when my Type A dissection happened. I didn’t think, “this might be dangerous” before that day. I didn’t feel fragile. But I was. Frankly, it was a ticking time bomb that I knew nothing about.

You’re in a unique position right now because you know you have a 4.2 cm ascending thoracic aortic aneurysm (ATAA). Surgeries typically not implicated until you get to 5.0. That means you have the gift of foresight—something I didn’t get. And that gives you power.

The short answer is: no, you probably shouldn’t be doing that job without serious modifications. Anything that involves intense straining, lifting, or spikes of stress—especially if you’re holding your breath while pushing or lifting (what’s called a Valsalva maneuver)—can increase intrathoracic pressure and put dangerous strain on your aorta. That’s not a scare tactic. That’s physics and physiology. It’s possible that the kind of work you do exacerbated or even caused the condition that you have. It’s really hard to say and I’ve spent the past 10 years racking my brain trying to figure out what caused mine and I’ve concluded that being overweight, hypertensive, and stressed out as a trial lawyer all were huge contributors to my condition.

We both know that life doesn’t always make it easy to walk away from a job. I did not walk away from mine, but I have made very serious modifications to how I live in my life. No more 13 hour teaching stints two days in a row. this is about survival and quality of life. You need to take this seriously and talk to your cardiologist and thoracic aortic surgeon—not just your primary care doc. Show them exactly what your workday looks like. Be very specific about the kinds of lifting, postures, stressors, and rest you get. Get their recommendation in writing if you can. That may help with your work.

You may need restrictions. You may need a new role. But what you don’t need is to go through what I did—the pain, the surgery, the risk of death—just to find out the hard way that your body had been trying to warn you all along.

You’re not weak. You’re informed. You’re strong enough to advocate for yourself and choose a safer path. And I’ll tell you from one patient to another: knowing is a gift because you can do something about it.

Let me leave you with this. I spent the entire day yesterday staining my cedar fence here in St. Paul. The sun was out. It was clear and dry and I just went to town on the fence. It was lots of repetitive, but not particularly heavy work to hold the paint sprayer. I try to avoid anything which involves grunting or straining. If it’s more than 30 pounds, I’ll leave leave it to the folks at Home Depot to load and unload. It’s not that I can’t do it. It’s that the hidden strain on a Dacron aorta is nothing I want to risk. Peace.

PS. Here’s what my morning looks like today and I’m thankful every day for every one I get.

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@geraldhumphrey

What kind of work do you do? I have a 4.2 ATAA and a very physically demanding job, lots of stress, straining and lifting. Should I be doing this?

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Not really. I dissected, now can only lift 10lbs
I now have 4 aneurysimal spots from my arch to my kidneys. I would find out from your surgeon what your levels should be. Stress and lifting. God bless

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@moonboy

I hear you. And I feel the weight of your question in my chest, because I asked the same thing when I was 50 in 2015 and told I had a dissecting aorta and needed emergency open-heart surgery.

I had no warning. It was about 42 minutes between the first pain that I had and being cracked open. I had just finished teaching on my feet for 13 hours and was alone in a hotel room in San Diego when my Type A dissection happened. I didn’t think, “this might be dangerous” before that day. I didn’t feel fragile. But I was. Frankly, it was a ticking time bomb that I knew nothing about.

You’re in a unique position right now because you know you have a 4.2 cm ascending thoracic aortic aneurysm (ATAA). Surgeries typically not implicated until you get to 5.0. That means you have the gift of foresight—something I didn’t get. And that gives you power.

The short answer is: no, you probably shouldn’t be doing that job without serious modifications. Anything that involves intense straining, lifting, or spikes of stress—especially if you’re holding your breath while pushing or lifting (what’s called a Valsalva maneuver)—can increase intrathoracic pressure and put dangerous strain on your aorta. That’s not a scare tactic. That’s physics and physiology. It’s possible that the kind of work you do exacerbated or even caused the condition that you have. It’s really hard to say and I’ve spent the past 10 years racking my brain trying to figure out what caused mine and I’ve concluded that being overweight, hypertensive, and stressed out as a trial lawyer all were huge contributors to my condition.

We both know that life doesn’t always make it easy to walk away from a job. I did not walk away from mine, but I have made very serious modifications to how I live in my life. No more 13 hour teaching stints two days in a row. this is about survival and quality of life. You need to take this seriously and talk to your cardiologist and thoracic aortic surgeon—not just your primary care doc. Show them exactly what your workday looks like. Be very specific about the kinds of lifting, postures, stressors, and rest you get. Get their recommendation in writing if you can. That may help with your work.

You may need restrictions. You may need a new role. But what you don’t need is to go through what I did—the pain, the surgery, the risk of death—just to find out the hard way that your body had been trying to warn you all along.

You’re not weak. You’re informed. You’re strong enough to advocate for yourself and choose a safer path. And I’ll tell you from one patient to another: knowing is a gift because you can do something about it.

Let me leave you with this. I spent the entire day yesterday staining my cedar fence here in St. Paul. The sun was out. It was clear and dry and I just went to town on the fence. It was lots of repetitive, but not particularly heavy work to hold the paint sprayer. I try to avoid anything which involves grunting or straining. If it’s more than 30 pounds, I’ll leave leave it to the folks at Home Depot to load and unload. It’s not that I can’t do it. It’s that the hidden strain on a Dacron aorta is nothing I want to risk. Peace.

PS. Here’s what my morning looks like today and I’m thankful every day for every one I get.

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Nice dog. Nice fence. Good advice.

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