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Treating Long Covid as Inflamation Based

Posted by gregorb @gregorb, May 29 11:15am

Thought that Long Covid is inflammation driven in attacking our bodies? Please correct me if I'm wrong. If so, why aren't the treatments based more on that, if clinically effective. Sure, you can talk about the issue of possible addiction to pain and inflammation killing medications and doctors reluctantance to treat that way,
even with monitoring. But guessing quality of life may be more important to many of us at this point. Especially for seniors.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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margaretamada | @margaretamada | Jul 12 9:30am
In reply to @lkirnbauer "Look it up, but I’ll get you started. They are foods called Nightshades and they include:..." + (show)
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Look it up, but I’ll get you started. They are foods called Nightshades and they include: tomatoes, chocolate, shellfish, aged cheeses, citrus, fermented foods, pineapple, strawberries, sauerkraut, eggplant, canned meat, eggs, fish, processed meats, spinage, vinegar, dried fruit, cashew nuts, cherries, alcohol, pickled and canned foods, cured meat, Avacado and I’ll stop there! I do eat some of these foods on occasion, especially the Avacado as I need good fats in my body. It’s been a real eye opener having this and it’s awful! I also lost my taste and smell with Covid in December of 2022, so for me, it’s been a living hell! Wishing you well!

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Thank you so much. This chain of comments has been so helpful. I have yet to find an MD who would talk with me about inflammatory diseases and high-histamine foods !

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gregorb | @gregorb | Jul 12 12:25pm
In reply to @margaretamada "Thank you so much. This chain of comments has been so helpful. I have yet to..." + (show)
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Thank you so much. This chain of comments has been so helpful. I have yet to find an MD who would talk with me about inflammatory diseases and high-histamine foods !

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Best wishes and good luck. Docs first need to acknowledge this disease even exists in many cases and think outside the box. We know much more about this in many cases. Good luck.

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gregorb | @gregorb | Jul 12 12:29pm
In reply to @arichards3 "@diverdown1 There are several apps dealing in food allergies that include histamine intolerance. The basic theory..." + (show)
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@diverdown1 There are several apps dealing in food allergies that include histamine intolerance. The basic theory is that there are things we eat/drink that have quantities of histamine and then there are things we eat/drink that cause histamine release. Alcohol is a histamine released because it affects our bodies ability to deal with histamine. Big subject and I use the app “intolerances” and Google and make notes in a drive to stay under 4 milligrams per day. And the punch line - histamine causes inflammation

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Great explanation. Thanks.

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beachbum | @arichards3 | Jul 13 8:17am
In reply to @diverdown1 "SH*T!! I will look this up. Some of those foods are mainstays, but if it is..." + (show)
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SH*T!! I will look this up. Some of those foods are mainstays, but if it is causing the PEM/Fatigue, I will have to change my diet. I am tired of waking up feeling like I survived some catastrophic event. Thanks everyone. Hang in there.

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@diverdown1. I will be the contrarian. There is a lot of scientific debate on what does and doesn’t cause problems around histamine. The app I’ve referenced “intolerances” is very good (and German) at pointing to the foods/drinks that are highly debated and why they are highly debated, sometimes stating “no scientific evidence exists”. One other thing about the app. It states milligrams of histamine per portion. That’s extremely helpful when you want a little of something (like balsamic vinegar) allowing me to stay under my target of 4 milligrams per day. 4 milligrams per day is reported to be average histamine intake. It’s rather hard to navigate things and achieve goals without a number.

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diverdown1 | @diverdown1 | Jul 13 9:14am

Thank you for the information. I looked up "Intolerance's" on Google play store. The highest rated app is $9.99. Is this the one you to which you are referring?

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lkirnbauer | @lkirnbauer | Jul 13 9:23am
In reply to @diverdown1 "SH*T!! I will look this up. Some of those foods are mainstays, but if it is..." + (show)
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SH*T!! I will look this up. Some of those foods are mainstays, but if it is causing the PEM/Fatigue, I will have to change my diet. I am tired of waking up feeling like I survived some catastrophic event. Thanks everyone. Hang in there.

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Yes, healing by diet can work if you stick with it. I have taken my Hashimoto’s inflammation way down doing this. You reach a point where it’s just not worth eating whatever it is that’s bothering you. I hope this works for you, it did for me. Good luck!

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pfraz54 | @pfraz54 | Jul 13 9:31am

My husband has become a different person after having Covid twice, what has happened to him?

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pfraz54 | @pfraz54 | Jul 13 9:33am

He is mean, argumentative and always cranky

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gregorb | @gregorb | Jul 13 10:15am
In reply to @pfraz54 "My husband has become a different person after having Covid twice, what has happened to him?" + (show)
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My husband has become a different person after having Covid twice, what has happened to him?

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So sorry. It can change your whole being. It ruined my life.(long covid) please try to understand it isn't personal. It's this terrible disease that is so much to handle. I fight it every day. Support education and acknowledgement are so helpful. Please know many of us are here to to help in both your battles. Best wishes. Seek support. It helps.

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gregorb | @gregorb | Jul 13 10:18am
In reply to @lkirnbauer "Yes, healing by diet can work if you stick with it. I have taken my Hashimoto’s..." + (show)
Profile picture for lkirnbauer @lkirnbauer

Yes, healing by diet can work if you stick with it. I have taken my Hashimoto’s inflammation way down doing this. You reach a point where it’s just not worth eating whatever it is that’s bothering you. I hope this works for you, it did for me. Good luck!

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Thanks for your reply and insight. Best wishes.

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