Treating Long Covid as Inflamation Based

Posted by gregorb @gregorb, May 29 11:15am

Thought that Long Covid is inflammation driven in attacking our bodies? Please correct me if I'm wrong. If so, why aren't the treatments based more on that, if clinically effective. Sure, you can talk about the issue of possible addiction to pain and inflammation killing medications and doctors reluctantance to treat that way,
even with monitoring. But guessing quality of life may be more important to many of us at this point. Especially for seniors.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for vostie @vostie

I was just able to finish a Pulmonary Function Test (took two tries and a very patient technician) and came back with low DCLO . A low DLCO (diffusing capacity of the lungs for carbon monoxide) can be associated with inflammation, particularly in conditions affecting the pulmonary vasculature or the alveoli. Inflammation can impair the lungs' ability to transfer oxygen to the bloodstream, leading to a reduced DLCO. Since Long COVID can significantly impact the pulmonary vasculature, I believe this is why I am so tired and can become short of breath. Now back to the doctor to see if there is anything I can do to treat it!

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Vostie. Good to see more people recognizing the inflammation beast and its role in long covid. Best wishes and good luck. Hope your doc is open minded about a treatment.

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Profile picture for uget1shot @uget1shot

the interesting thing is, this inflammation seems to evade detection; in all the imaging studies i had done prior to surgery, none showed even a hint of the webbing that was there. CTs, doppler ultrasounds, Xrays and even an MRI done weeks before - none showed any hint of it.

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Hi @uget1shot. Your post is so spot on for so many and the “normal” tests. May I ask kind suggestion if you are inclined, please share those prior tests and surgical findings thru yourself and asking your healthcare system/provider submission to AMA/NIH …..to have substantiating information to hopefully create quicker help for everyone🤞Quickest healing to you🌈

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Profile picture for law59 @law59

Hi @uget1shot. Your post is so spot on for so many and the “normal” tests. May I ask kind suggestion if you are inclined, please share those prior tests and surgical findings thru yourself and asking your healthcare system/provider submission to AMA/NIH …..to have substantiating information to hopefully create quicker help for everyone🤞Quickest healing to you🌈

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thank you, @law59. I have shared my records with a number of study researchers and trials to help us figure things out.

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Profile picture for uget1shot @uget1shot

thank you, @law59. I have shared my records with a number of study researchers and trials to help us figure things out.

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Biggest thank you for those efforts !!

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I started Long Covid symptoms back in Summer of 2020. I had a very unusual Covid 19 virus situation where my partner he had 100 degrees severe for about a day but flu like symptoms otherwise. And the. 5 days of no taste no smell. I however had 4 straight days of severe vertigo no fever severe fatigue and no taste no smell for 5 days after the I lost all my eyebrows and it took months for them to grow back this was about 4 months after, they I started having a very unusual fatigue I had never had it would make me feel breathless, then I had Full body crashes out of nowhere where where my brain that it needs to shut down my limbs for hours at a time I ended up with Covid toe. I ended up getting one of the variants of Covid in Dec 2021 6 months later my hair started to get thin but not following out at any raid way. I started getting severe shortness of breath and several inflammation on my lungs the fatigue kept getting worse, now here I am in 2025 and I got fired while on a leave of absence even though my Dr was sending me back to work starting at half time and to increase it as I could I worked for T-Mobile for 8 years prior to that I worked at hospitals and Drs office the went into mental health until I got Burn out 10 years later took a 2 yr stop period and went back to work at T-Mobile back in 2015.
So now I keep fighting a chronic inflammatory situations in my lungs and sinuses. I am the 1st born of a Marine who was in 100% drop zone in Vietnam of agent orange as well so I already had strange things . I was born with 6 fingers on each hand with no bone inside 6th digit so they removed them. And my hip ball was smaller than the socket, I had severe stomach issues most of my life and to this day. But now I have started to swell up because the Drs. Here in Maine refuse to hear Long Covid wording at all. I am searching for any Dr anywhere that will help treat what this is which is an over active immune system, I believe due to the way The Covid 19 virus was able to be hidden inside the body the way it was, so now there is an over active situation that no Dr here will help with. I have severe depression and fatigue is crazy along with I got hit by a semi truck full of illegal people in August 2024 losing and totaling out my car. They at least stopped to see if I was still alive but the driver opened the trailer doors in the back and I saw 15 people with what looked like .ore maybe in the back. 1 person spoke broken English. So now I am having a horrible time trying to get Ssdi, I am 48 yrs old so they try to blame it on pierMenopause which it isn't but treat it lien it's nothing. My insurance company for my car well let's say Is rather have spoken to a toddler they'd have been smarter. And now here I am limited funds can't get my partner to work hardly as he is a contractor who finally got up enough funds and tools etc to go out on his own 2 years prior to the car accident in 2024. My father passed in 2016 so I have 0 family around to even bounce things off but help no. Maine is suddenly gone backwards since Mills who seems like she is supposed to be a Governor hadn't done anything other than give people money and set them up who are trying to migrate which they id I could help anyone I would but not like this. So if anyone knows of any help any Drs any hotlines please let me know

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Profile picture for bettypagegean76 @bettypagegean76

I started Long Covid symptoms back in Summer of 2020. I had a very unusual Covid 19 virus situation where my partner he had 100 degrees severe for about a day but flu like symptoms otherwise. And the. 5 days of no taste no smell. I however had 4 straight days of severe vertigo no fever severe fatigue and no taste no smell for 5 days after the I lost all my eyebrows and it took months for them to grow back this was about 4 months after, they I started having a very unusual fatigue I had never had it would make me feel breathless, then I had Full body crashes out of nowhere where where my brain that it needs to shut down my limbs for hours at a time I ended up with Covid toe. I ended up getting one of the variants of Covid in Dec 2021 6 months later my hair started to get thin but not following out at any raid way. I started getting severe shortness of breath and several inflammation on my lungs the fatigue kept getting worse, now here I am in 2025 and I got fired while on a leave of absence even though my Dr was sending me back to work starting at half time and to increase it as I could I worked for T-Mobile for 8 years prior to that I worked at hospitals and Drs office the went into mental health until I got Burn out 10 years later took a 2 yr stop period and went back to work at T-Mobile back in 2015.
So now I keep fighting a chronic inflammatory situations in my lungs and sinuses. I am the 1st born of a Marine who was in 100% drop zone in Vietnam of agent orange as well so I already had strange things . I was born with 6 fingers on each hand with no bone inside 6th digit so they removed them. And my hip ball was smaller than the socket, I had severe stomach issues most of my life and to this day. But now I have started to swell up because the Drs. Here in Maine refuse to hear Long Covid wording at all. I am searching for any Dr anywhere that will help treat what this is which is an over active immune system, I believe due to the way The Covid 19 virus was able to be hidden inside the body the way it was, so now there is an over active situation that no Dr here will help with. I have severe depression and fatigue is crazy along with I got hit by a semi truck full of illegal people in August 2024 losing and totaling out my car. They at least stopped to see if I was still alive but the driver opened the trailer doors in the back and I saw 15 people with what looked like .ore maybe in the back. 1 person spoke broken English. So now I am having a horrible time trying to get Ssdi, I am 48 yrs old so they try to blame it on pierMenopause which it isn't but treat it lien it's nothing. My insurance company for my car well let's say Is rather have spoken to a toddler they'd have been smarter. And now here I am limited funds can't get my partner to work hardly as he is a contractor who finally got up enough funds and tools etc to go out on his own 2 years prior to the car accident in 2024. My father passed in 2016 so I have 0 family around to even bounce things off but help no. Maine is suddenly gone backwards since Mills who seems like she is supposed to be a Governor hadn't done anything other than give people money and set them up who are trying to migrate which they id I could help anyone I would but not like this. So if anyone knows of any help any Drs any hotlines please let me know

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I am so sorry for all your suffering. I, too, have been sick with long covid since 2020. Sounds like could be wrongful firing since you had physician note. I don't have any answers for you, as I have many problems myself that have no cure (mostly blood, heart, lung related, but also shortness of breath, fatigue, migraines). I've spent hundreds on supplements. The only thing that has helped is nicotine gum (couldn't tolerate patches due to adhesive), but even though it's supposed to remove spike proteins (and maybe it does; I've read conflicting studies) it's likely just the energy from a stimulant. Good luck and know you're not alone.

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Profile picture for klf58 @klf58

I am so sorry for all your suffering. I, too, have been sick with long covid since 2020. Sounds like could be wrongful firing since you had physician note. I don't have any answers for you, as I have many problems myself that have no cure (mostly blood, heart, lung related, but also shortness of breath, fatigue, migraines). I've spent hundreds on supplements. The only thing that has helped is nicotine gum (couldn't tolerate patches due to adhesive), but even though it's supposed to remove spike proteins (and maybe it does; I've read conflicting studies) it's likely just the energy from a stimulant. Good luck and know you're not alone.

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Wish the nicotine could remove the spike protein...what nicotine does is assumed from a 2023 study on nicotine patches for long COVID. The study suggests the COVID virus binds to human nicotinic acetylcholine receptors, blocking their normal signaling and contributing to persistent long COVID symptoms When a person applies a patch, nicotine displaces the virus or its remnants from the receptors, allowing them to resume normal function. This helps alleviate symptoms like fatigue, brain fog, and widespread pain.

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I totally agree that COVID is inflammation driven in the body. I pray for more research to be done on this to help so many battling the issues that Long Covid causes.

Blessings & Prayers....

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Vanderbilt University in NASHVILLE, TN still has a long covid clinic. I had to wait a couple of months for an interview but they did the interview by teletherapy and they apparently have Long Covid support groups Zoom. I am signed up to be in a support group this summer but haven’t yet heard back from them.

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Profile picture for covidstinks2023 @covidstinks2023

I totally agree that COVID is inflammation driven in the body. I pray for more research to be done on this to help so many battling the issues that Long Covid causes.

Blessings & Prayers....

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Covidstinks2023.
Thanks for your reply. Best wishes and good luck to us all.

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