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Treating Long Covid as Inflamation Based

Posted by gregorb @gregorb, May 29 11:15am

Thought that Long Covid is inflammation driven in attacking our bodies? Please correct me if I'm wrong. If so, why aren't the treatments based more on that, if clinically effective. Sure, you can talk about the issue of possible addiction to pain and inflammation killing medications and doctors reluctantance to treat that way,
even with monitoring. But guessing quality of life may be more important to many of us at this point. Especially for seniors.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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gregorb | @gregorb | Jul 5 11:36am
In reply to @vostie "Wish the nicotine could remove the spike protein...what nicotine does is assumed from a 2023 study..." + (show)
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Wish the nicotine could remove the spike protein...what nicotine does is assumed from a 2023 study on nicotine patches for long COVID. The study suggests the COVID virus binds to human nicotinic acetylcholine receptors, blocking their normal signaling and contributing to persistent long COVID symptoms When a person applies a patch, nicotine displaces the virus or its remnants from the receptors, allowing them to resume normal function. This helps alleviate symptoms like fatigue, brain fog, and widespread pain.

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Vostie
Thank you for your reply and valuable info. Good luck to us all

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gregorb | @gregorb | Jul 5 11:38am
In reply to @klf58 "I am so sorry for all your suffering. I, too, have been sick with long covid..." + (show)
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I am so sorry for all your suffering. I, too, have been sick with long covid since 2020. Sounds like could be wrongful firing since you had physician note. I don't have any answers for you, as I have many problems myself that have no cure (mostly blood, heart, lung related, but also shortness of breath, fatigue, migraines). I've spent hundreds on supplements. The only thing that has helped is nicotine gum (couldn't tolerate patches due to adhesive), but even though it's supposed to remove spike proteins (and maybe it does; I've read conflicting studies) it's likely just the energy from a stimulant. Good luck and know you're not alone.

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Best wishes,prayers and luck to us all.

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ericy210 | @ericy210 | Jul 7 10:30pm

The anti-inflammation diet works well for me about three months in. No Mountain Dew, processed foods, and other thinks. Then try some yoga or meditation. I thought it was all corny but I’m composing about a little relief

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margaretamada | @margaretamada | Jul 8 10:37am

I’ve also wondered why treatment protocols don’t focus on how to reduce inflammation. My symptoms are identical to an inflammatory condition called “Mast Cell Activation Syndrome” and the treatment for that is all about reducing inflammation. Teaching what foods increase inflammation and how to take anti-histamines.

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diverdown1 | @diverdown1 | Jul 9 6:59am

Agreed. Inflammation is paramount to this, as well as what I believe a constant state of Epstein Barr Virus. I am able to tell immediately when I wake up if my body is consumed by inflammation. I feel poisoned. Hydroxychloriquine was suggested early on for me, when the doctors thought I had RA. I knew it was not RA, however, that medication is used to treat inflammation. I was concerned about the possible serious side effects of it. I am now reconsidering.

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beachbum | @arichards3 | Jul 9 7:02am
In reply to @margaretamada "I’ve also wondered why treatment protocols don’t focus on how to reduce inflammation. My symptoms are..." + (show)
Profile picture for margaretamada @margaretamada

I’ve also wondered why treatment protocols don’t focus on how to reduce inflammation. My symptoms are identical to an inflammatory condition called “Mast Cell Activation Syndrome” and the treatment for that is all about reducing inflammation. Teaching what foods increase inflammation and how to take anti-histamines.

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@margaretamada check out Dr Bruce Patterson on YouTube. His program 100% goes after vascular inflammation

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essiee | @essiee | Jul 9 11:10am
In reply to @margaretamada "I’ve also wondered why treatment protocols don’t focus on how to reduce inflammation. My symptoms are..." + (show)
Profile picture for margaretamada @margaretamada

I’ve also wondered why treatment protocols don’t focus on how to reduce inflammation. My symptoms are identical to an inflammatory condition called “Mast Cell Activation Syndrome” and the treatment for that is all about reducing inflammation. Teaching what foods increase inflammation and how to take anti-histamines.

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My doctor has me taking 4 doses a day of OTC antihistamines. That, along with staying away as much as possible from histamine releasing foods, seems to be helping, along with a small dose of dextroamphetamine (5 mg. ER).

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denise | @trnrmom1 | Jul 10 6:32am
In reply to @essiee "My doctor has me taking 4 doses a day of OTC antihistamines. That, along with staying..." + (show)
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My doctor has me taking 4 doses a day of OTC antihistamines. That, along with staying away as much as possible from histamine releasing foods, seems to be helping, along with a small dose of dextroamphetamine (5 mg. ER).

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i've done my own research and what i've found on the f/b page: survivors corps and youtube regarding antihistamines as i also have food allergies i've never had before getting covid; would you tell me what antihistamines you take daily? i take 2 famotidine and 1 citrizine and won't avoid all histamine-releasing foods because i want some joy from what's left of me since getting covid dec. 2020...but i know we're supposed to take h1 and h2 histamine blockers. thx

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robindancer5678 | @robindancer5678 | Jul 10 7:02am

Hi there - I'm glad to hear I'm not crazy! After I had COVID I've become allergic to more foods and vitamins - B vitamins, magnesium, calcium - all out of the question. I have to really be vigilant about sulfites too. I've been on Claritin 10 mg for decades due to pollen etc allergies, but I never thought about inflammation or more antihistamines.

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robindancer5678 | @robindancer5678 | Jul 10 7:04am
In reply to @uget1shot "Wow! TY sweet. I never would have thought to connect this to histamine intolerance. I've come..." + (show)
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Wow! TY sweet. I never would have thought to connect this to histamine intolerance. I've come a long way in my long covid recovery (I'm an OG - March 2020), but still have certain lasting issues. I do show high eosinophils on specialty allergy testing, not connected to anything in particular. This has puzzled my Integrative Health provider. I'm seeing an immunology specialist at Johns Hopkins this summer - curious to see what they can tell me. I'm glad you shared your POV. I will add this to my discussion list for that appointment.

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Interesting - can you let us know how it goes with the Hopkins immunologist? Congratulations on getting an appointment - I'm in Baltimore, and I know it can take months to get in to see anyone!

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