Obsessions and Selfishness: Just need to vent
Obsessions and Selfishness.
My husband was diagnosed at Mayo with CAA and it has peaks and valleys. He is 72 and I am 67. He does not need a full time caregiver, but I have to care for him a lot, including cleaning up after he has a bowel incontinence issue. He is very demanding and selfish and we argue a lot, even though I try to just do what he wants to avoid ugliness.
His latest obsessions are buying new things for the house - he is constantly shoving his phone in my face to buy this!
He is also obsessed with sex and often demands oral sex. I have gained 25 pounds and have no desire to lose it- because he will just want more sex.
I have no interest in having sex with him or interest in sex at all. It is difficult to feel romantic under these circumstances when it is all about him.
I do mot expect a miracle cure - I just need to vent.
I pray a lot and talk to Jesus- I know this is my place but I have trouble finding joy. I have given up so much of myself…but Jesus gave his life for me.
He has no hobbies- he does not like to read- do puzzles- or anything to stay busy or engaged.. he had/ has dyslexia and would have been diagnosed with ADD if it was done back then..
I am not retired and I have a full time work from home job. We are not in a financial position for me to retire- partly due to his spending before I took over our finances. He resents my working - but I like my job and it is keeping me sane.
A lot of you have it worse than I do and my heart goes out to you - as well as my respect and admiration.
I wish I could love him in my heart the way that I used to.
Thank you for reading my post.,
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My husband sleeps 12 hours/day, is in front of the TV and uses his tablet for about 4 hours; the rest is in the garden or doing a few chores. No friends - his brother and two of his kids keep in contact. Now he wants to build a 7ft boat and wants me to order the supplies! He is legally blind - cannot go out in a boat on his own. So if he accomplishes getting the material (his family), then we will have a 7-foot boat on the front lawn built by a blind man with dementia. When he asked me to get the supplies, I asked Just what do you want to do with the boat? He said, 'I am not asking for permission; I am telling you what I want!' That is where it stands at this time - I am choosing to ignore it.
I can relate to All the examples you all give.
My spouse never sits still!!! unless its winter. It would be nice to have him sit and laugh with me but laughing is not normal for him. Unless its potty talk or a joke that is not funny.
He also asks if he can help with thing’s that is not normal to get help with. I usually say thanks but no, but one time i did say “not unless you wipe my bottom”. That made him laugh!
Really, my biggest worry is how many strangers he talks to about our private matters. He makes our life an open book and I worry about scammers. From cold calls, folks walking bye, solicitors, retail folks. He will ask questions from the wrong type of physician about various health issues. Its embarrassing because he seems “normal” to them. Then he gets mad at me when i try to deflect the question.
Sorry to vent so much negativity!
Don't be worried. I'm hearing--and thinking--this sort of thing. Frankly, it's embarrassing and I don't like going out in public with my husband anymore. We have new neighbors across the street and I wonder if I should clue them in. Friends and former colleagues are aware, but strangers are the ones I feel sorry for. Jokes that aren't funny, sexual innuendos that are not appreciated, wanting to give stuff away. What will you do with that painting after I'm gone? he says. Look at it, is my response. Where will you put it? On the wall, where it is now. It feels like we're in that in-between stage where he still seems relatively normal until you talk to him for more than five minutes and he certainly believes he's on top of things, but more and more often he can't find the words to complete a simple thought, let alone a complex one. I feel so sorry for him because if I were in his shoes I'd be miserable and depressed, but he doesn't seem to be either of those things. Sometimes he bemoans the fact that things aren't as they used to be, but he doesn't dwell on that. I'm the one who dwells. I guess there's nothing we can do about any of this except get it out of our systems when and where (here) we can. We're better off than the people in Texas. Perspective.
Driving around Scotland sounds fantastic. Dream on!
@elliottw: I have MCI so I suppose my husband probably feels as you do! Maybe not to Scotland but just to rest. MCI isn't a picnic for us either.
One of the first things my husband's Neuro doc suggested was to tell all the neighbors. Just in case they notice something or anything is off. Helps to have extra eyes watching out for him.
Similar. I have to remind myself his focus is off because of the disease. More demands. More sleeping. Little help. I try to identify things he can and will accomplish successfully. Glad he is with me but definitely feel on my own for most household duties. Best time of day is watching a TV Program together after dinner but I usually fall asleep. Quiet time of day with few demands.