What natural remedies help MAC to not worsten (as quickly)?

I thought I had replied but I must not have "hit" reply.
Thank you.....but I am not any more amazing than all who are on this journey with BE and MAC infections with what we do to help ourselves.
Yes to soups also. I myself perfer to have soup and a light salad at night.
Barbara

Hello Barbara,
I was just diagnosed with BE and MAC and find the airway clearance, specifically huff coughing, to be taxing on my body and makes fatigue worse. Also, I generally don’t fair well with drugs and prefer a natural approach. Would you be open to talking with me about specifics of your breathing protocols, supplements and nutrition?
I’m 64 and I’m struggling with other health challenges too. Interestingly my mom was a carrier of TB—not sure if this has relevance.

Thank you for taking the time to help others in their journey.
You’re much appreciated! Robin (BTW my mom’s name was Barbara)

Thank you for sharing all if your experiences.
I was diagnosed with MAC 7 years ago , also have COPD.
Had started with acupuncture a few months prior to the being diagnosed and it has put me in "remission " until recently. Two new nodules were found and a sputum sample confirmed MAC is active again....I will try anything to avoid having to go on three different types of antibiotics. My pulmanologist suggests an appointment with an infectious disease Physician for a consult. We will see

@sieglinde If there are nodules, consulting with infectious disease might be a good idea.
How proactive is the pulmonologist - do they have you doing daily airway clearance and nebulizing 7% saline to fight off the mycobacteria?

Im sorry you are dealing with the MAC ,I m 85 with BE /MAC and suffering with spinal stenosis and arthritis my mobility is seriously affected by this and I just found out I have other nasty in my lung , the best advice I can share with you , keeping your airways clean and eat as health and fresh as you can . This was the best advice that was given me by a pulmonary doctor many years ego ,airway clearance is the #1 , the Mayo support group is a wonderful tool to get help and info , do read what other do. I wish you success and a hug

@sueinmn
I just recently started with the nebulizer, 3% twice a day, followed by my Acapella breathing device. He keeps a close eye on it

@sieglinde
I would recommend seeing an infectious disease doctor. They are very helpful in monitoring the disease and taking care of you. They do not always just recommend you take antibiotics. I’ve had MAI for nine years and I have not taken antibiotics for it. My last three sputum tests have shown no MAI. I do airway clearance with 7% saline solution. Followed with an AerobiKa device. My condition has stayed very mild because I take care of myself. One very important thing, is that you can develop bronchiectasis when you have MAI. You can have exacerbations and that’s when you need the Infectious disease doctor. He’s the one who guides what antibiotic you take for the flareup. I too have COPD, bronchiectasis, MAI, pulmonary hypertension and heart failure. Due to Good doctors I am doing OK. I have been very stubborn in the past and not wanted to do some of the things the doctors wanted me to do, but now I realize that it is very important to follow their advice. That’s why you have them. I hope everything works out well for you.

@jw87 , thank you so much for your information. As my pulmanologist recommends, I am going to see an infectious disease physician, one my pulmanologist recommends next Monday and am willing to listen to his professional advise. My pulmanologist knows I am a fighter and I will not stick my head in the sand. Thank you for your encouraging words . So very much appreciated

I’ve had MAC for thirteen years. I agree with all of the people on these threads that all of us need to have both a pulmonary doctor and an infectious diseases doctor. This disease crosses over both of their specialties. I get CT scans once a year I think at some point it was every six months I have cavitary MAC and sometimes I have episodes of coughing blood. I did go to National Jewish health and saw Dr. Haas there and she was fantastic. Fortunately, my disease was not at such a point that I needed to go on the four antibiotics that were part of her regular regimen; note this is not the big three that all of you talk about. I was so happy about that! I trained in the technique of airway clearance and brought the unit home with me and started doing it at home, but I did start spotting blood because that process really is rather invasive. My pulmonary doctor and even Dr. Haas did not think I should do it. I don’t have a lot of mucus but the air quality in the San Fernando Valley, which is in Los Angeles has really been bad lately and I feel like I am starting to have a little more phlegm than usual. I will talk to my pulmonary doctor about trying it again. Not too many people on this bulletin board have the hemoptysis that I have. Another thing I would recommend to you who are having great anxiety is to definitely see a psychiatrist and a therapist. The medications that I take absolutely save my life. I am productive and I enjoy doing my artwork. My life is fairly good and I manage, I also have Fibro or chronic fatigue for over 37 years and several repetitive stress injuries. We adapt.

@ellenblythe
Hello Ellen
Hoping you continue to do well. Can you explain “ note- this is not the big three that all of you talk about“?
Thank you!