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I’ve had MAC for thirteen years. I agree with all of the people on these threads that all of us need to have both a pulmonary doctor and an infectious diseases doctor. This disease crosses over both of their specialties. I get CT scans once a year I think at some point it was every six months I have cavitary MAC and sometimes I have episodes of coughing blood. I did go to National Jewish health and saw Dr. Haas there and she was fantastic. Fortunately, my disease was not at such a point that I needed to go on the four antibiotics that were part of her regular regimen; note this is not the big three that all of you talk about. I was so happy about that! I trained in the technique of airway clearance and brought the unit home with me and started doing it at home, but I did start spotting blood because that process really is rather invasive. My pulmonary doctor and even Dr. Haas did not think I should do it. I don’t have a lot of mucus but the air quality in the San Fernando Valley, which is in Los Angeles has really been bad lately and I feel like I am starting to have a little more phlegm than usual. I will talk to my pulmonary doctor about trying it again. Not too many people on this bulletin board have the hemoptysis that I have. Another thing I would recommend to you who are having great anxiety is to definitely see a psychiatrist and a therapist. The medications that I take absolutely save my life. I am productive and I enjoy doing my artwork. My life is fairly good and I manage, I also have Fibro or chronic fatigue for over 37 years and several repetitive stress injuries. We adapt.

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Replies to "I’ve had MAC for thirteen years. I agree with all of the people on these threads..."

@ellenblythe
Hello Ellen
Hoping you continue to do well. Can you explain “ note- this is not the big three that all of you talk about“?
Thank you!