Post-Intensive Care Syndrome (PICS) - Let's talk

After my Nerve block, I thought I’d found my solution to my headaches. It has only been 3 weeks since my block and my headaches are back. I guess Botox is my next step. Anyone know where this might lead?

When I spent 5 days in ICU with sepsis, dehydration, acute kidney failure, and endstage liver disease, I was in and out of awareness. I was sometimes halfway aware of my surroundings, or activities happening to me and around me (only if I was moved, or a sudden noise). I have a partial recollection of the people and of the procedures. But I had no context time.
I have a vague recollection of being flown to another hospital. And arriving there. Although not in ICU, I was on the transplant floor at Mayo Methodist, and for the first few days, I continued to be in and out of awareness.
Later on, when I asked my husband, who is my caregiver, to explain to me what had occurred, I was shocked. So much had occurred that I didn't even realize. And on top of that , my memory of it, was all jumbled. For a while this really bothered me. But now, as time has passed, (8 years) it is not a concern to me, anymore.
Rosemary

When I spent 5 days in ICU with sepsis, dehydration, acute kidney failure, and endstage liver disease, I was in and out of awareness. I was sometimes halfway aware of my surroundings, or activities happening to me and around me (only if I was moved, or a sudden noise). I have a partial recollection of the people and of the procedures. But I had no context time.
I have a vague recollection of being flown to another hospital. And arriving there. Although not in ICU, I was on the transplant floor at Mayo Methodist, and for the first few days, I continued to be in and out of awareness.
Later on, when I asked my husband, who is my caregiver, to explain to me what had occurred, I was shocked. So much had occurred that I didn't even realize. And on top of that , my memory of it, was all jumbled. For a while this really bothered me. But now, as time has passed, (8 years) it is not a concern to me, anymore.
Rosemary

Hello ! I’m looking for other patients who had occipital nerve blocks go wrong, I also had deviated septum surgery with turbines cleaned and cut, tissue removed, 2 nostril nerve blocks and left ear damaged. Since all this happened I go through severe burning, numbness, stinging, spasms, breathing and walking problems. It’s horrible what symptoms you can experience after so many procedures that did more harm than good. I know doctors had theirs best intentions to help my spasms but unfortunately I’v got worse as years passed by . Can someone give me an idea where to go and what can I do to alleviate these excruciating symptoms ? Please help , thank you so much !!

Hello @marinelastef -- Welcome to Connect. I did a search of Connect on occipital nerve blocks and found a few members who have discussed the occipital nerve or nerve block. I'm tagging the members to see if they may be able to offer some suggestions for you.

@bonnieh218, @ajgray, @maddy32, @sun711, @247headache, @so4tune8 do you have any suggestions on occipital nerve blocks that you can share with @marinelastef ?

@marinelastef have you seen or been examined by a neurologist? or does your doctor have any recommendations?

John

Hello @marinelastef -- Welcome to Connect. I did a search of Connect on occipital nerve blocks and found a few members who have discussed the occipital nerve or nerve block. I'm tagging the members to see if they may be able to offer some suggestions for you.

@bonnieh218, @ajgray, @maddy32, @sun711, @247headache, @so4tune8 do you have any suggestions on occipital nerve blocks that you can share with @marinelastef ?

@marinelastef have you seen or been examined by a neurologist? or does your doctor have any recommendations?

John

Hello @marinelastef -- Welcome to Connect. I did a search of Connect on occipital nerve blocks and found a few members who have discussed the occipital nerve or nerve block. I'm tagging the members to see if they may be able to offer some suggestions for you.

@bonnieh218, @ajgray, @maddy32, @sun711, @247headache, @so4tune8 do you have any suggestions on occipital nerve blocks that you can share with @marinelastef ?

@marinelastef have you seen or been examined by a neurologist? or does your doctor have any recommendations?

John

Hello @marinelastef -- Welcome to Connect. I did a search of Connect on occipital nerve blocks and found a few members who have discussed the occipital nerve or nerve block. I'm tagging the members to see if they may be able to offer some suggestions for you.

@bonnieh218, @ajgray, @maddy32, @sun711, @247headache, @so4tune8 do you have any suggestions on occipital nerve blocks that you can share with @marinelastef ?

@marinelastef have you seen or been examined by a neurologist? or does your doctor have any recommendations?

John

Hello @marinelastef -- Welcome to Connect. I did a search of Connect on occipital nerve blocks and found a few members who have discussed the occipital nerve or nerve block. I'm tagging the members to see if they may be able to offer some suggestions for you.

@bonnieh218, @ajgray, @maddy32, @sun711, @247headache, @so4tune8 do you have any suggestions on occipital nerve blocks that you can share with @marinelastef ?

@marinelastef have you seen or been examined by a neurologist? or does your doctor have any recommendations?

John

It has been ten days since my last statement about the way I am. I become more and more in touch with the ways I experience PICS after severe septic shock (2016) and septic shock (2017). I hope I am not repeating myself when I say that frankly I am cognitively and emotionally worse than I was before I experienced the second incident of septic shock. My concentration certainly is worse, as is my depression. Of course, depression can diminish concentration and diminished concentration can exacerbate depression.

It is positive that I finally accept that my depression is substantial and thus, I am more patient with myself and less judgmental of my cognitive disfunction. (Pat me on the back, please.) The uneasiness that I have is not knowing if in the future, I will return at least to the level of cognitive/emotional healing that I experienced before the second experience of septic shock. In other words, I am concerned about whether or not I will be able to function in a more 'normal' fashion. (Please pray for me.)

Tonight my brain is weary. I need to rest... and that is a subject about which I later will comment. My dreams seem long and complicated. I wish they were simple ones. Anyway, I continue to be thankful to be alive and as very-well as I am! My dear husband and I laugh about some of the silliness in my changes and our adjustments. Thanks for listening! M.H.