1. < Intensive Care (ICU)
Moderator

Post-Intensive Care Syndrome (PICS) - Let's talk

Posted by Colleen Young, Connect Director @colleenyoung, Jan 13, 2017

Have you heard of Post-Intensive Care Syndrome? Sometimes it's called post ICU syndrome or PICS. PICS is defined as new or worse health problems after critical illness. These problems can affect your mind, body, thoughts, and/or feelings.

On Connect we would like to bring together people who have been affected by critical illness, and hopefully lighten the burden you bear. Patients and family members welcome.

Grab a cup of tea, or beverage of your choice, and let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Intensive Care (ICU) Support Group.

Annie Johnson | @andreab | Mar 29, 2017

After you or your loved one was transferred out of ICU and no longer considered “critically ill,” what was the one thing that surprised you the most?

REPLY
11 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 30, 2017
In reply to @andreab "After you or your loved one was transferred out of ICU and no longer considered “critically..." + (show)
@andreab

After you or your loved one was transferred out of ICU and no longer considered “critically ill,” what was the one thing that surprised you the most?

Jump to this post

What a great question, Annie. @patrassi @lupedelarosa12 @sistergoldenhair @tfcassidy @vivian88 @janicepike @lamborama @contentandwell @coastalgirl and @2011panc I'm wondering if you might like to participate in this discussion about post-intensive care?
Annie asks, "After you or your loved one was transferred out of ICU and no longer considered “critically ill,” what was the one thing that surprised you the most?"

REPLY
janicepike | @janicepike | Mar 30, 2017

I guess all the tubes still inserted. But they are extraordinary spectacular at getting you moving, and sitting up, eating, and going to the bathroom / with assistance.

REPLY
4 replies
Annie Johnson | @andreab | Mar 30, 2017
In reply to @janicepike "I guess all the tubes still inserted. But they are extraordinary spectacular at getting you moving,..." + (show)
@janicepike

I guess all the tubes still inserted. But they are extraordinary spectacular at getting you moving, and sitting up, eating, and going to the bathroom / with assistance.

Jump to this post

It always amazes and inspires me to see the strength of people walking the hallways of the hospital with the various poles, tube, wires, etc.! Were you surprised at how much assistance you needed? I often hear from people that they didn't know they would get so weak so quickly.

REPLY
patrassi | @patrassi | Mar 31, 2017
In reply to @andreab "After you or your loved one was transferred out of ICU and no longer considered “critically..." + (show)
@andreab

After you or your loved one was transferred out of ICU and no longer considered “critically ill,” what was the one thing that surprised you the most?

Jump to this post

When my son was transferred out of ICU , I realized how lucky we were... How thankful we must be... How great were the Mayo doctors and the staff ... How my dreams were coming true.

REPLY
JK | @contentandwell | Mar 31, 2017

@colleenyoung I guess I really do not feel qualified to have any helpful input to this. I was in ICU simply because they do that after transplant but it really was not much different from the care I got afterward in the transplant unit. I was just glad to be out of ICU because those rooms did not have bathrooms!
JK

REPLY
4 replies
JK | @contentandwell | Mar 31, 2017

@andreab yes, I was surprised at feeling as weak as I did and sort of weaving a bit. A couple of rounds around the halls and I was ready to settle back down again. Thankfully things improved quickly though.
JK

REPLY
lupedelarosa12 | @lupedelarosa12 | Mar 31, 2017
In reply to @contentandwell "@colleenyoung I guess I really do not feel qualified to have any helpful input to this...." + (show)
@contentandwell

@colleenyoung I guess I really do not feel qualified to have any helpful input to this. I was in ICU simply because they do that after transplant but it really was not much different from the care I got afterward in the transplant unit. I was just glad to be out of ICU because those rooms did not have bathrooms!
JK

Jump to this post

My son is doing now that he has been home feeling blessed , I hope all is good with you , and thank you

REPLY
patrassi | @patrassi | Apr 1, 2017
In reply to @contentandwell "@colleenyoung I guess I really do not feel qualified to have any helpful input to this...." + (show)
@contentandwell

@colleenyoung I guess I really do not feel qualified to have any helpful input to this. I was in ICU simply because they do that after transplant but it really was not much different from the care I got afterward in the transplant unit. I was just glad to be out of ICU because those rooms did not have bathrooms!
JK

Jump to this post

Thank you ! He is doing great now !
We wish you the best! God bless your family!

REPLY
JK | @contentandwell | Apr 1, 2017
In reply to @contentandwell "@colleenyoung I guess I really do not feel qualified to have any helpful input to this...." + (show)
@contentandwell

@colleenyoung I guess I really do not feel qualified to have any helpful input to this. I was in ICU simply because they do that after transplant but it really was not much different from the care I got afterward in the transplant unit. I was just glad to be out of ICU because those rooms did not have bathrooms!
JK

Jump to this post

@lupedelarosa12 Wonderful news, I am so happy for your son and the whole family. He must be so happy to be beginning the rest of his life. We have a friend whose daughter had a heart transplant in her early 20s and is now about 50. She has been doing great all of those years, has had a couple of children and no problems. It's amazing how successful these heart transplants are.
JK

REPLY
View MoreView Less
Please sign in or register to post a reply.