Hysterectomy 4 months after FIGO1 Endometrial Cancer Diagnosis
I am 61. Had spotting on 2/4/25. Saw GP on 2/5/25 for PAP. Transvaginal ultrasound results 1.6 CM thickness the following week. D&C on 3/4/25. Pathology report received following week Endometrial cancer FIGO 1. There is only one Gynecological Oncologist in my area & had to wait 3 was for appt. CAT scan & EKG on 4/22/25. Found out today my hysterectomy is not scheduled until 7/10/25. Waiting 4 months for surgery after the pathology report seems too long to me. I am going to try to get in another gynecological oncologists practice 1 hour from my home for 2nd opinion & hopefully get surgery sooner. What are your thoughts on a 4 month wait?
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Glad to hear the surgery is behind you. I’ve heard of people having weird body aches after surgery. After all they basically have us on our heads.
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1 Reaction@fos54235 Thank you for sharing this good news. I hope for you that each day your pain continues to subside and you feel better. I don't know about you but I have to tell myself that it's OK to to rest and take an easy day. It does make a huge difference when you allow yourself to do just that.
I had a total hysterectomy and one lymph node removed. And, no, I did not have robotic hysterectomy. This was over a year ago. I am still suffering the consequences -- pain in pelvis when I urinate, and urinary incontinence are the residual effects. As to the pain, this may also be due to other cancerous lymph nodes in the pelvic region, which the surgeon won't remover and/or bladder prolapse. The surgeon had checked my bladder over a year ago, after my complaining, and said that it was not prolapsed, yet pelvic physiotherapist found that it was.
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3 ReactionsThanks, for the info. I'm 3 weeks out, with pain when I urinate or have bowel movements. I hope it resolves in time but am a bit concerned hearing your story. In your case, I don't understand why the doctor wouldn't remove cancerous lymph nodes. Do you think you should seek a second opinion?
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1 ReactionAre you getting chemo before your surgery? Not sure of stage but I was diagnosed with stage 3C endometrial cancer in Feb and immediately began on chemo and immunotherapy. My CA125 numbers have gone from 1641 to 81 now. I have my 6th chemo treatment on Monday June 30th and a PET scan after that to see how things look so I can get my hysterectomy.
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3 ReactionsI asked another oncologist about this and she said 1) it wouldn't stop the spread of the disease, since it's in the bloodstream and 2) it would be dangerous to do so.
I also read that removing lymph nodes can lead to lymphedema, and worse, morbidity.
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1 Reaction@cookercooker My oncology surgeon told me that removing lymph nodes can cause lymphedema. This is something we discussed prior to my hysterectomy as she told me that two lymph nodes on either side of my pelvic would be removed for sampling to see if the adenocarcinoma was present in those two nodes. If the cancer was present then she would remove more lymph nodes. Fortunately my lymph nodes showed no evidence of disease.
You've already had a hysterectomy so what I discussed above in my experience doesn't directly pertain to you. I am wonder, though, if indeed there is cancer in your lymph nodes that is causing the pelvic pain. I'm a little confused by what you've written.
When do you see your oncologist again?
Yeah. Well I'm confused too. But if two oncologists said "No", then I'll take their word for it. I see the oncologist that's heading up the clinical study I'm on in a couple of days and I'll ask for clarification.
How are you feeling one day post surgery?
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1 ReactionIssue with left leg groin pain is vastly improved. Increased mobility & able to put pants on myself. This being an issue was not on my radar or in anything that I read online. Other than this recovery is going very well.
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