Hysterectomy 4 months after FIGO1 Endometrial Cancer Diagnosis

Posted by fos54235 @fos54235, Apr 22 7:46pm

I am 61. Had spotting on 2/4/25. Saw GP on 2/5/25 for PAP. Transvaginal ultrasound results 1.6 CM thickness the following week. D&C on 3/4/25. Pathology report received following week Endometrial cancer FIGO 1. There is only one Gynecological Oncologist in my area & had to wait 3 was for appt. CAT scan & EKG on 4/22/25. Found out today my hysterectomy is not scheduled until 7/10/25. Waiting 4 months for surgery after the pathology report seems too long to me. I am going to try to get in another gynecological oncologists practice 1 hour from my home for 2nd opinion & hopefully get surgery sooner. What are your thoughts on a 4 month wait?

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

fos54235 | @fos54235 | Jun 24 12:26am

In reply to @naturegirl5 "@sbryant I appreciate your way with words "My fear was more painful than the surgery"." + (show)

1st night post surgery. Managing pain with just ibuprofen & Tylenol. The oxy made be nauseous in the recovery room & delayed my release by serval hours. So far the biggest issue is the weird gait I have from my leg positioning during surgery. I relate it to have your Barbie’s legs akimbo & trying to walk straight. It’s gotten better but need assistance lifting my left leg in bed I’m using my walking poles to get around. Im sleeping in the recliner bc that is easier to get in & out off.

Helen, Volunteer Mentor | @naturegirl5 | Jun 24 8:50am

In reply to @fos54235 "1st night post surgery. Managing pain with just ibuprofen & Tylenol. The oxy made be nauseous..." + (show)

@fos54235 Thank you for the update after your surgery. Are you still having pain or has it diminished? I hope your leg regains feeling in it so that you get walk around straight.

Where in your body are you feeling pain? Is the pain any better this morning?

NikkiWW | @nikkiww7 | Jun 24 5:05pm

@fos54235 thank you for sharing your progress, and @naturegirl5, thank you for providing encouragement and support.

It gives me hope that my procedure (same diagnosis, same surgery) on Thursday will go as well. Had an iron infusion today, so that will hopefully help me feel better as well as assist the healing. And no kidney pain discomfort at the moment, so that's great news too.

Please keep sharing your progress - it reassures me, and I am sure others, too.

Helen, Volunteer Mentor | @naturegirl5 | Jun 24 7:49pm

In reply to @nikkiww7 "@fos54235 thank you for sharing your progress, and @naturegirl5, thank you for providing encouragement and support...." + (show)

@nikkiww7 Thank you for letting us know that your surgery is coming up on Thursday. I will continue to share progress too.

I followed all of the pre-operative instructions including NPO (nothing by mouth) the night before. I had to be at the hospital very early and so I got in the shower at about 5 am to take the shower and scrub with the antibacterial soap as directed. That shower sure woke me up although I admit I didn't sleep all that well the night before.

Do you have a time yet for when you should be the hospital for your surgery?

fos54235 | @fos54235 | Jun 24 8:50pm

In reply to @naturegirl5 "@fos54235 Thank you for the update after your surgery. Are you still having pain or has..." + (show)

The left leg issue was better today but still needed help putting on sweatpants. The discomfort I have is on left side abdomen & that is also better today. Still only ibuprofen & Tylenol for pain. Took it very easy today & got lots of rest. It’s surprising how well I feel after just one day.

fos54235 | @fos54235 | Jun 24 8:51pm

In reply to @nikkiww7 "@fos54235 thank you for sharing your progress, and @naturegirl5, thank you for providing encouragement and support...." + (show)

Wishing you the best with your surgery!

inquirer | @inquirer | Jun 24 11:26pm

I've been following this discussion. I was diagnosed with Serous Endometrial Intraepithelial Carcinoma via a biopsy 2 months ago. Released from hospital one week ago. Had open surgery hystorectomy with lymph nodes and omentum removed. Just got word today that I'm stage 1C, FIGO 3. With the exception of the leg issue, seems everyone here is recovering faster than me (at least from the pain). Is that because you all had robotic surgery?

NikkiWW | @nikkiww7 | Jun 25 12:01am

In reply to @naturegirl5 "@nikkiww7 Thank you for letting us know that your surgery is coming up on Thursday. I..." + (show)

They said they'd call me by 8:15 tomorrow (Wednesday) night for when to report on Thursday. I'm ready (more or less). I have a durable POA for medical (as well as financial) set up, but was looking at their advanced directive, which has more detail, so I will complete that as well. I've finished all the tasks and education materials (and even read the key parts aloud to my SIL, who will be my driver/caretaker).

I did have a hard time healing from the adduction of my hip when they pinned the ball at the top of my femur (broke 2 years ago), and that overall injury left me with a small limp when I'm stiff. So a bit of concern about the positioning, but got out my simple stretching exercises for the hip rehab and will check in on those (before doing them).

And yes, still trying to distract myself with the paint choices. the ones I bought the samples of and tried did not look at all like the chips when they got outside in the real world, so back to the drawing board - I picked up 6 more sample qts in Austin and will try to get those tested tomorrow if it doesn't rain here.

Again, I appreciate all the help and encouragement. It's made a world of difference to have everyone on this list who has gone before me, posting and talking about their experience. I do not feel as alone as I did!

NikkiWW | @nikkiww7 | Jun 25 12:02am

In reply to @fos54235 "Wishing you the best with your surgery!" + (show)

Thank you - it has been so helpful to read how it is going with you! And I am praying for a speedy and smooth recovery for you.

Helen, Volunteer Mentor | @naturegirl5 | Jun 25 9:57am

In reply to @nikkiww7 "They said they'd call me by 8:15 tomorrow (Wednesday) night for when to report on Thursday...." + (show)

@nikkiww7 Thank you for your response. I didn't know about Mayo Clinic Connect when I went into my hysterectomy. As I reflect back I think that this forum would have been very helpful to me. I'm happy to know it's made a difference for you.

About those paint choices? The paint chips just don't do it for me. So, after I've chosen a few chips I often buy a little can of paint so that I can "test" the color. The surface may have lots of colors before I decide. I don't like spending the money for those little cans I may never use again. Maybe I should paint rainbows on my basement walls?