What makes ascending thoracic aortic aneurysms increase in size?

Posted by wonderwoman1121 @wonderwoman1121, Jan 19 7:16pm

I am a 68 year old woman, who considers myself in relatively good shape and health until I was diagnosed with breast cancer 14 months ago. I had a lumpectomy and radiation and now I am on medication which increases cholesterol, causes joint pain, and osteoporosis. In June 2024, I had a CT Scan with contrast due to the cancer and that was fine but I found out I had a 4.1 ascending thoracic aortic aneurysm, which caused me to freak out. My cardiologist had no concern, so I saw a Thoracic Surgeon who said since I’m short, surgery would be needed if it reached 4.5. Typically, they recheck in a year but since I was nervous I just had a CT Scan on 1/17/2025 w/o contrast. I just received the results today, is it really beneficial so see results populating in your portal before you speak to the doctor, not…. anyway… it is now 4.3 so it grew in 7 months. I retired to relieve stress, do Pilates, use my elliptical, increased my BP to 100 mg, I occasionally have a glass of wine or Cosmo at dinner once a week. I don’t have a good feeling about this and I’m trying to be positive but I’m really struggling today.

Are there any statics on how often aneurysms increase in size compared to no change? Are there any statistics on how many people who have surgery survive the surgery but die from complications, or life span after surgery.

I always look for a solution and not one to give up but not being able to fix this is making me crazy.

Also, it seems doctors have a cavalier approach because there really isn’t anything they can do, basically the odds are 50/50…maybe.

Any inspirational hope from anyone?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@kathy9746

4.2 isn’t considered surgery ready. I am 4.2 in 2023. I’ll have another CT next month. My cardiologist says we will discuss surgery at 5.0. I’m 77.

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Surgery depends on more than the size of the aneurysm. I am 5’2”, 103 lbs. I had surgery when mine was at 4.7. So don’t just go on the size of the aneurysm , other factors go into play.

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@moonboy

Look, I respect your religious beliefs and your belief in God. Nevertheless, God put doctors here and Medicine here so that we can benefit from it and not ignore reality. I dissected almost 10 years ago. It was sudden and absolutely unexpected. It was literally the worst thing that’s ever happened to me and I can tell you that I was so incredibly miserable in a coma that I would’ve done anything to meet God and stay. What I went through was an absolute hell. So, hold onto your belief in God, but listen to your doctors because they were put here by the same God to help you. You don’t shrink an aneurysm with diet and exercise. An aneurysm gets bigger over overtime. You may have stabilized yours and that’s good, but once you get above 5 cm you’re gonna be a candidate for surgery and you’re right on the border. So keep praying but don’t ignore the gifts you’ve been given in the form of a world class thoracic surgeon and top-notch medical care put here by God to help you. Peace.

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I am right there with you moonboy. God does not always reach down with his almighy arms and heal us. He shares that blessing by working through highy trained medical providers, ie: Cardiothoracic Aorta Specialist. I have seen that personally, Years ago I prayed and prayed for Gods hand to tough my body and heal it. I could not understand why he did not hear and heed my deepest most earnest prayers. Through a series of events, I was referreed to a surgeon who gave me a whole new lease on life. It was only afterwards, that I realized God was blessing my surgeon by enabling him to successfully remove my ailment. We were both blessed by God.

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A CT scan in May 2024 showed my AAA at 4.6cm. Another scan a few weeks ago, has shown it still at 4.6cm. My surgeon doesn't want to see me for another 2 years. He said he wouldn't do anything until it reached 5.5cm anyway. I am 80 years old, & I was told that I was more likely to die with it, than from it. In a way I guess that's encouraging, as i'm still reasonably active. I walk up to 3kms, 2 or 3 times per week. I go to the gym for an hour, 3 times per week. I'm also an active fly fisher and wildlife photographer. So I am regularly out and about doing something.
What has disturbed me, is that when I asked the surgeon what my limitations should be, re strenuous exercise, weight lifting etc. He said there are no restrictions. I can lift weights & do cardio sessions without any limitations. It won't affect the aneurysm in any way.
This advice seems to be contradictory to anything i've read here. So, i've decided to throw caution to the wind, & keep up with the cardio, but restrict any weight lifting or pulling to a minimum, as I have been doing.
I do need to lose some weight, & the 16/8 diet i'm on, is helping with that. Since beginning, 2 months ago, i've lost 5 kgs. I want to lose another 5kgs, but the weight loss seems to have plateaued, but i'll keep at it.
I live in regional area of Victoria in Australia. The surgeon has to travel over 300kms once a month to see patients here. So it's not like I can make an appointment with another surgeon for a 2nd opinion.

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@mosey

I absolutely understand. I am also 80 and sitting at 4.2 TAA. I’m 5’2 so I’m not sure what they consider to be surgery ready. Every day is a challenge so I try to stay busy but my mind drifts often and sometimes I take a quarter of a Xanax to level a bit. (Kinda hard to split a25 mg in 4 pieces😂 but I don’t want to rely on it). My cardiologist is not optimistic about surgery for me. We must pray that they further develop TEVAR for a quicker, easier surgery.🙏🏻🤞🏻

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My aneurism as-sending arortic
I have my yearly CT tomorrow. The last one was 4.1. It had grown .1 in one year. My cardiologist is not worried. I am 69 and he said I will probably die from something other than the aneurism .
So I don’t understand the worry about a 4.3. My dr said he doesn’t even call it an aneurism. He calls it a dilation . I hope we all will be okay.

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@lbower195966

I always include GOD in everything I do in life. HE is the best DOCTOR..I was diagnosed with Ascending Aortic Aneurysm 44 mm (4.4cm) in Oct 2021, follow up aortic dimension of 49 mm (4.9 cm) in Nov 2022.
After that I have been having CT scan every year, and the surgeon said the meds that they put me into is really working for (BP) 3meds...the size is still the same when the last time I had a CT scan March 2025.. is still 4.9 cm. I told my doctor I have been consuming heart health food ( he didnt believe in it) he thought it was the pharmaceutical drugs I have been taking . I am 66 years old, still alive and kicking, doing all this high impact workout but not lifting heavy weights..I am only lifting 8 lbs each hand..Do you think from doing kickboxing, bootcamps, HIIT's workout will increase the size of the aneurysm. I have been doing it since I was diagnosed but I know how to modify myself. I am a fitness instructor and everytime I am infront fo 30 people , I have this thing in mind that it could burst anytime and this could be it. But since then, I am so confident because I include GOD everytime I train these people. I believe prayer is the most powerful weapon in facing life's challenges. "I continue to pray to GOD for a miracle-that the aneurysm will shrink and surgery won't be necessary. With GOD, all things are possible, and I truly believe that."Good luck with your help and GOD BLESS YOU!!!!

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Not certain you are asking about HIIT increasing the size of the aneurysm, but here goes anyway. My impression is that growth and dissection are closely linked to blood pressure. Blood pressure rises the more intensely you work out. If you've had a stress test, you can see that on the test results. Another factor seems to be how quickly you go from low to high intensity. If you raise the intensity more slowly, your BP does not spike as high as with an abrupt change. In your place, I'd discuss this with whomever is managing your aneurysm. 4.9 is in the range when I would get a bit more cautious. But everyone has their own take on this situation. Good luck!

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@donnawhite

I am 77 years old and have lived with an aortic theoretic aneurysm since 2019. When first discovered it was 3.6 c.
It has been slowly growing since then. It grew about 2mm every six months. When it got to 5.5 My doctor suggested surgery. However, the possibility of stroke, paralysis, or death, was higher than I wanted to risk. So, I got a second opinion. First doctor was in San Fransico, then I flew to Cleavland to the world-famous clinic there.
The doctor there said at my age he suggested no surgery, just go live your life. My aneurysm was 5.5 then. That was about a year and half ago. Since then, it has grown to 6.3. I am feeling lots of chest and back pain, but I can live with this. I am living more carefully, meaning I am not playing my sports, and don't lift heavy things. I am a 5'3" woman, who has been very active all my life. I am ready to go see my Lord, when He takes me. I have had a good life. My doctor thinks I have from 3 to 6 months left. I have written letters to all 11grandchildren, and my 4 children. I paid for my funeral and feel very lucky to be able to get everything in order.

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I’m curious why the doctor you saw did not suggest surgery for a 6.3 aneurysm? I would think with symptoms surgery would be warranted.

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@kathy9746

I’m curious why the doctor you saw did not suggest surgery for a 6.3 aneurysm? I would think with symptoms surgery would be warranted.

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I really think some Doctors (depending on their specialty) who are not board certified in matters of the heart and major, serious medical issues like aneurysms, just do not want to seem like they are not the experts we have come to expect. My doctor found my aneurysm with a stethoscope, sent me for an ultrasound, changed his mind, did not inform me. Got to hospital & had to adjust to a CT scan with contrast for an unknown abdominal problem. When asked for my aneurysm size in cm's, the doctor could not find them but thought via memory that they were Ascending aortic Aneurysms: a Root @ 4.5cm and a regular @ 4.1cm. He just could not see why I was so interested in knowing my numbers. Yet, everyone on this cite knows theirs. Go figure. Been a year & still do not know my numbers for sure.

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@dew88

I really think some Doctors (depending on their specialty) who are not board certified in matters of the heart and major, serious medical issues like aneurysms, just do not want to seem like they are not the experts we have come to expect. My doctor found my aneurysm with a stethoscope, sent me for an ultrasound, changed his mind, did not inform me. Got to hospital & had to adjust to a CT scan with contrast for an unknown abdominal problem. When asked for my aneurysm size in cm's, the doctor could not find them but thought via memory that they were Ascending aortic Aneurysms: a Root @ 4.5cm and a regular @ 4.1cm. He just could not see why I was so interested in knowing my numbers. Yet, everyone on this cite knows theirs. Go figure. Been a year & still do not know my numbers for sure.

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You need to find a doctor who's experienced and shares information with you. This is not acceptable IMHO.

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"Watch and wait" is easy for doctors to say, isn't it? It isn't their aneurysm.

If it is any consolation: at least you are not far from when they can go in and put a sleeve on it, or repair it, whichever the case may be.

Have a firm and frank discussion with your provider, in person; let him/her know that because you are so very concerned, your blood pressure is likely spiking.

Some things you can do now are:
1) check your BP 2-3 times a day and keep it under control;
2) not lift heavy things over 5-10 lbs;
3) not strain when difficult bowel movements occur;
4) don't do valsalva maneuvers;
5) strain toward reaching orgasm;
6) exercise to the point of maximum heart rate; exercise is still important as an aorta is a muscular vessel, so it does need exercise and walking is the best for now; but check with your doc about what exercise to do and not do....

High BP and pressure of lifting on the aneurysm can cause it to increase in size, depending on MANY factors, and not knowing all the details about this aneurysm, I cannot say which factors - only your doctor knows those details).

Arteries are like a rubber band, stretched an average of 70 times an hour. Your rubber band (aorta, which is the largest rubber band in your body) has developed a bit of a thin spot or beginning of a tear (rather like a hang nail). You don't want to over stress it, but you also don't want to stop all exercise, because exercise keeps arteries strong and healthy.

Aortic aneurysms are very common. You are doing well, they are monitoring you closely. See if the doctor can get approval to go ahead and fix it if you want to just stop worrying.

OR just be calm, matter of fact and live with it until they say it is time.

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@pamela78

You need to find a doctor who's experienced and shares information with you. This is not acceptable IMHO.

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Entirely agree. The only reason a doctor has MD behind his or her name is that they managed a good GPA for a bachelor's degree and got mostly "Pass" in all their medical school Pass/Fail courses.

MD does not equal "a good doctor".
They put their pants on just like the rest of us.

"Board Certified" is mandatory in my assessment of physicians. I've worked among all sorts of them for over 40 years both clinically and administratively - managing them and their practices - and they are just like all humans and have all the failings of humans.

Cavet emptor.

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