I am thankful for your post. My husband won't even surrender his driver's license. Which means he still is on the policy. I feel like going in his wallet and getting it. But ...no telling what he might do or say. He says the the most ugly things. Sometimes I respond and sometimes I leave from his presence. He was awful yesterday. Does your spouse refuse to bathe and acts like he will perish if water touches his skin? He is sometimes an evil version of someone who looks like my spouse but..is not. If I hear one more time he has Parkinsons so he can't help it I will scream. He will get a call on his phone is so nice to them. So go figure. I cook, clean, bathe him, shave and trim his beard, and give him a pedicure when needed. The only person that visits is my best friend. She does not use platitudes. She speaks truthfully to him. He looks at her like I wish I could say what I want. Lol...He never says anything ugly to anyone else but me
I gave him Parkinsons and a number of other conditions he has. He will not do PT when it is ordered. Everything is my fault..PERIOD. I have decided he will not take my spirit away. I know one thing I will never marry again. Been there done it. Most likely I will be gone before him. I am healthy ..but that doesn't guarantee anything. I love my husband and would not wish this for anyone. But the name calling, screaming and outrageous comments is daily. He is a bully and does not appreciate anything. (Verbally). My sanity is intact and I know what to expect ..but that being said this not how I thought I would be spending my golden year's. That is my rant and every bit is true.
Believe me..I get it! They get meaner, more needy( not their fault) . You do everything and no one bothers to check if you are ok. I have 2 people in my life who do. My BFF and my son. So many have no clue on your angst and despair. Your loneliness and your overwhelming feeling to go on a vacation just for a day. It is hard..I just ate a 1/2 pint of ice cream. Lol. My pleasure for the day! Keep writing. I will respond. I am probably older than you ..but life experiences are with me. Ask me anything or share what u feel comfortable with. I wish I could go back to my life as it used to be. Work, play and raising kid's. Vacation with my spouse. We went to so many fun places. I have learned that life can throw you a curveball. My spouse's brother is his only living sibling and he has dementia. My spouse is the youngest of six. He gets so sad about the past instead of living in the moment!!! I say live, love and cry when needed my new friend.
Talk to me anytime. Anyone on this site can. I will be kind and will not mislead you. My heart and mind hear and see your angst. I feel for the ones who have this horrible disease and sometimes I am thankful that you share. It let's me know I really am not alone. Prayers, love and hugs to each of you!❣️❣️
My husband was just diagnosed with mild cognitive impairment This is completely unhelpful as a diagnosis, what it has done to me is it has made me doubt myself and what I’m seeing
Hello all,
I have MILD COGNATIVE IMPAIRMENT, aka MCI diagnosed about 3 years ago. I was recently diagnosed by the neurologist with traits of Frontotemporal Dementia.
I was diagnosed with MCI about 3 years ago. Of course, my life has changed, sometimes for the better. There are times I can pull long term memories, and events up in a flash. Other times, I have no clue what month it is.
I live alone, and can take care of myself very well. I have taken up 2 new hobbies. I paint with acrylic, watercolor, and alcohol ink. Jigsaw puzzles 1000-500 pieces keep me company when I eat.
Usually the diagnosis changes to a specific dementia when the actions of the person become enough to “call” it.
My temperament has changed a bit, but no one including family has said anything to me.
I have another disorder FND that causes me way more problems physically and mentally. I’m in pain almost always from that so I need understanding, as we all do.
One more thing. Please remember that your loved one is scared too. They are aware of their problems, deficits, and the burden it is putting on you.
Believe me, they don’t like their changes either. Their future is very uncertain. They are struggling with the notion of having an incurable, fatal disease!
Not a pleasant thought for anyone.
One more thing. Please remember that your loved one is scared too. They are aware of their problems, deficits, and the burden it is putting on you.
Believe me, they don’t like their changes either. Their future is very uncertain. They are struggling with the notion of having an incurable, fatal disease!
Not a pleasant thought for anyone.
SusanEllen66: I'm in the same situation with MCI, diagnosed a year ago. Much advice for caregivers but often I feel so alone being on the "other" side.
SusanEllen66: I'm in the same situation with MCI, diagnosed a year ago. Much advice for caregivers but often I feel so alone being on the "other" side.
So sorry you are feeling that way. You are just as important. I think that sometimes lots of us do not see hardly any comments from the person living with the condition. Whether it be MCI, Parkinsons or any other condition. Please let me be one of those whom says I see you and I cannot fathom your fear and the what ifs. I don't want to be a person who dismisses feelings of anyone. Take care and 🫂 🤗
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I felt like I wrote this, my heart goes out to you. This is by far the hardest thing I’ve ever gone through and we’re only in the beginning of this.
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10 ReactionsBelieve me..I get it! They get meaner, more needy( not their fault) . You do everything and no one bothers to check if you are ok. I have 2 people in my life who do. My BFF and my son. So many have no clue on your angst and despair. Your loneliness and your overwhelming feeling to go on a vacation just for a day. It is hard..I just ate a 1/2 pint of ice cream. Lol. My pleasure for the day! Keep writing. I will respond. I am probably older than you ..but life experiences are with me. Ask me anything or share what u feel comfortable with. I wish I could go back to my life as it used to be. Work, play and raising kid's. Vacation with my spouse. We went to so many fun places. I have learned that life can throw you a curveball. My spouse's brother is his only living sibling and he has dementia. My spouse is the youngest of six. He gets so sad about the past instead of living in the moment!!! I say live, love and cry when needed my new friend.
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Helpful -
Hug
19 Reactionsthanks everyone for the hugs, it’s great to not feel so alone!
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8 ReactionsTalk to me anytime. Anyone on this site can. I will be kind and will not mislead you. My heart and mind hear and see your angst. I feel for the ones who have this horrible disease and sometimes I am thankful that you share. It let's me know I really am not alone. Prayers, love and hugs to each of you!❣️❣️
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Hug
5 ReactionsI always thought this was a memory issue, didn’t realize that his personality would also be affected! Was that a big eye opener!
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4 ReactionsMy husband was just diagnosed with mild cognitive impairment This is completely unhelpful as a diagnosis, what it has done to me is it has made me doubt myself and what I’m seeing
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Helpful -
Hug
2 ReactionsHello all,
I have MILD COGNATIVE IMPAIRMENT, aka MCI diagnosed about 3 years ago. I was recently diagnosed by the neurologist with traits of Frontotemporal Dementia.
I was diagnosed with MCI about 3 years ago. Of course, my life has changed, sometimes for the better. There are times I can pull long term memories, and events up in a flash. Other times, I have no clue what month it is.
I live alone, and can take care of myself very well. I have taken up 2 new hobbies. I paint with acrylic, watercolor, and alcohol ink. Jigsaw puzzles 1000-500 pieces keep me company when I eat.
Usually the diagnosis changes to a specific dementia when the actions of the person become enough to “call” it.
My temperament has changed a bit, but no one including family has said anything to me.
I have another disorder FND that causes me way more problems physically and mentally. I’m in pain almost always from that so I need understanding, as we all do.
Wishing you all the best.
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Helpful -
Hug
4 ReactionsOne more thing. Please remember that your loved one is scared too. They are aware of their problems, deficits, and the burden it is putting on you.
Believe me, they don’t like their changes either. Their future is very uncertain. They are struggling with the notion of having an incurable, fatal disease!
Not a pleasant thought for anyone.
-
Like -
Helpful -
Hug
8 ReactionsSusanEllen66: I'm in the same situation with MCI, diagnosed a year ago. Much advice for caregivers but often I feel so alone being on the "other" side.
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Like -
Helpful -
Hug
4 ReactionsSo sorry you are feeling that way. You are just as important. I think that sometimes lots of us do not see hardly any comments from the person living with the condition. Whether it be MCI, Parkinsons or any other condition. Please let me be one of those whom says I see you and I cannot fathom your fear and the what ifs. I don't want to be a person who dismisses feelings of anyone. Take care and 🫂 🤗