Obsessions and Selfishness: Just need to vent

Posted by minniem @minniem, Dec 20, 2024

Obsessions and Selfishness.

My husband was diagnosed at Mayo with CAA and it has peaks and valleys. He is 72 and I am 67. He does not need a full time caregiver, but I have to care for him a lot, including cleaning up after he has a bowel incontinence issue. He is very demanding and selfish and we argue a lot, even though I try to just do what he wants to avoid ugliness.

His latest obsessions are buying new things for the house - he is constantly shoving his phone in my face to buy this!
He is also obsessed with sex and often demands oral sex. I have gained 25 pounds and have no desire to lose it- because he will just want more sex.

I have no interest in having sex with him or interest in sex at all. It is difficult to feel romantic under these circumstances when it is all about him.

I do mot expect a miracle cure - I just need to vent.

I pray a lot and talk to Jesus- I know this is my place but I have trouble finding joy. I have given up so much of myself…but Jesus gave his life for me.

He has no hobbies- he does not like to read- do puzzles- or anything to stay busy or engaged.. he had/ has dyslexia and would have been diagnosed with ADD if it was done back then..

I am not retired and I have a full time work from home job. We are not in a financial position for me to retire- partly due to his spending before I took over our finances. He resents my working - but I like my job and it is keeping me sane.

A lot of you have it worse than I do and my heart goes out to you - as well as my respect and admiration.

I wish I could love him in my heart the way that I used to.

Thank you for reading my post.,

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Profile picture for minniem @minniem

Oh - the TV is exactly the same with us. We used to watch so many shows together; we only have one left that he will watch with me. Thank you for sharing that bit.

Not watching TV together and sharing our thoughts / comments is another thing we have lost.

For my situation, I try not to make explicit comments. He will either get mad, take them the wrong way, or throw it back to me as my fault and my problem.

It is much easier for me to try to divert or stall him.

Keep the faith - we understand.

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I am in agreement about the simple things lost. Like watching a movie together. We are not quite there totally but there is minimal interest in many enjoyable things we did in the past. WIth a limited attention span even going out to enjoy the summer yard does not bring pleasure. It becomes more difficult to share experiences and find common ground.

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Profile picture for maryvc @maryvc

Just tried to have sex again. Just like he gets lost in a grocery store or telling off and on and left and right and here and there, it’s the same with sex. It used to be so good and now we are both lost in this disease. sad.
Thank you for being here. I feel less alone. The saddest is that I can’t cover up my disappointment, sadness, anger.
I can’t fake it and then I feel bad for him.
I guess this is all part of it.

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I value honesty so I don't like lying to my husband, even about little things, like the caregiver support group I attend once a month. I tell him it's a group of women who discuss aging. It includes men and is for caregivers of someone with dementia. He doesn't admit he has Alzheimer's and I don't want to make him anxious or sad. I guess the kindest thing is to tell "white lies" if that will keep him on an even keel. I'm taking over more of the routine tasks around the house without saying anything and he seems relieved that I do. He has certain things he prides himself on doing and I'll let him keep doing them as long as he can: unload the dishwasher, make the bed, take out the garbage, things like that. This business doesn't get easier but I'm getting better at handling it.

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Profile picture for pamela78 @pamela78

I agree. This group is the best and I'm so grateful to have found it.

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This site has been life saving, thank you all.

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Profile picture for jeanadair123 @jeanadair123

First I would like to say that venting on Mayo connect really helps. I don’t share what is happening with my friends they know some minor things but I prefer to keep anything else to myself, I know my friends mean well and they worry about me but I don’t want to spend the time I have talking about it.There is only my husband and I no family since I was born in the UK. I am sure my husband has MCL our doctor did a minor test and suggested a neurologist which after much research and finding the right one I found when I called he had just retired. Normally I can get my act together but my husband fell and broke his finger, a trip to urgent care confirmed this today and they gave him a splint and a referral to see a specialist for follow up. It has been quite a year since last year he fractured two vertebrae’s in his back. The splint has gone missing because he does not want to wear it and after constantly asking him to wear it I broke down, I said I was leaving for a while he said not without me and blocked the door. I said I hated him with tears running down my face, I was horrified to hear this out of my mouth especially when he said I will always love you and please don’t leave. OMG all I could think of is this something he will remember and what if it’s the last thing I get to say. I have tried so hard to bite my tongue and normally if I do life is bearable. Thanks for listening. 😢

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I just read what I wrote. My that must’ve been a really bad bad day. Hasn’t been like that since nothing that I can’t handle other than we now have another problem because his prostrate cancer has returned and now he has to be on a ADT.
Pills and a shot so hopefully that will be doable. I didn’t mention the C word to him. I just told him that this was a preventative procedure.?
I haven’t told anyone other than my best friend since if we meet someone, I don’t want them to accidentally say I am so sorry in front of him. I consider this just another hurdle since this is the third time it has come back.

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Profile picture for pamela78 @pamela78

I value honesty so I don't like lying to my husband, even about little things, like the caregiver support group I attend once a month. I tell him it's a group of women who discuss aging. It includes men and is for caregivers of someone with dementia. He doesn't admit he has Alzheimer's and I don't want to make him anxious or sad. I guess the kindest thing is to tell "white lies" if that will keep him on an even keel. I'm taking over more of the routine tasks around the house without saying anything and he seems relieved that I do. He has certain things he prides himself on doing and I'll let him keep doing them as long as he can: unload the dishwasher, make the bed, take out the garbage, things like that. This business doesn't get easier but I'm getting better at handling it.

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You could have written that for me? All we can do is take it a day at a time. 😍

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Profile picture for pamela78 @pamela78

I know there are many caretakers who are dealing with the pain and frustration of watching a spouse slowly drift away. When anger is involved, it's much worse. And there's no way to know how long the sentence is; we just know it's for life. It's hard to plan or look forward to anything when you're stuck at home with the simulacrum of the person you once lived with. "Sad" doesn't begin to cover it. I've tried a support group but it hasn't been much help. This group seems much more promising. I like the anonymity and the privacy. The truth shall set you free. Courage all around.

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I have been reading through all the comments and posts in the area of a spouse with MCI. It’s nice to know I am not alone. My husband is 76 and just isn’t the guy he used to be. We still go out, see friends, and do things but it’s not the same anymore. If we are at trivia (which we have gone to at a local place for literally years) when it is over he is irritated if we don’t leave right away. We go with friends for the socializing, the food, the fun. It’s gotten so it’s really not fun, I try to say “just a few more minutes” and he is quite obviously unhappy and appears bored or disinterested. We tried playing cards at a senior center, something we both like to do. He was so “rub your face in it” when he won a game another player actually asked him why he has to act like that. His answer “ because I can”.
At home he spends his day in a chair watching the news channels and reading his iPad. He will do nothing around the house. I have to repeatedly ask “did you…”. Then he gets angry and jumps up waving his arms saying “I’ll get right on it”. Most of the time it’s a reminder of something he said he was going to do, and didn’t. He is capable of helping out but doesn’t until I get angry. I have RA and need help with some things. He knows this and can be caring with words, but rarely with actions. Asking him or reminding him of anything results in what I call his martyr personality. He hears everything as a giant criticism or an intrusion on his day of sitting in front of the tv and gets angry. It’s getting so I hardly bring up anything except light comments about unimportant things. I have started to mostly sit in another room. Then I feel guilty because he spends his day alone with his iPad and tv. I can only listen to news stations these days for brief amounts of time. The hashing and rehashing of current issues and happenings is just disheartening and serves no real purpose to my mind. Yet he sits there. He has no hobbies, no man friends. I do have friends, I teach one day a week, I like to get out shopping, socializing. He never wants to come with me. Yet, anything he might see offered he would like to attend it’s always we have to go, or do it, together. I know I am just venting. What is, is. It is just hard. He used to be neatly dressed, always sociable….the life of the party. Now if he goes that route it’s with mostly with inappropriate comments, dress, or actions. It’s just hard. I am so glad there is a place to let it all out!

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Profile picture for ead @ead

I have been reading through all the comments and posts in the area of a spouse with MCI. It’s nice to know I am not alone. My husband is 76 and just isn’t the guy he used to be. We still go out, see friends, and do things but it’s not the same anymore. If we are at trivia (which we have gone to at a local place for literally years) when it is over he is irritated if we don’t leave right away. We go with friends for the socializing, the food, the fun. It’s gotten so it’s really not fun, I try to say “just a few more minutes” and he is quite obviously unhappy and appears bored or disinterested. We tried playing cards at a senior center, something we both like to do. He was so “rub your face in it” when he won a game another player actually asked him why he has to act like that. His answer “ because I can”.
At home he spends his day in a chair watching the news channels and reading his iPad. He will do nothing around the house. I have to repeatedly ask “did you…”. Then he gets angry and jumps up waving his arms saying “I’ll get right on it”. Most of the time it’s a reminder of something he said he was going to do, and didn’t. He is capable of helping out but doesn’t until I get angry. I have RA and need help with some things. He knows this and can be caring with words, but rarely with actions. Asking him or reminding him of anything results in what I call his martyr personality. He hears everything as a giant criticism or an intrusion on his day of sitting in front of the tv and gets angry. It’s getting so I hardly bring up anything except light comments about unimportant things. I have started to mostly sit in another room. Then I feel guilty because he spends his day alone with his iPad and tv. I can only listen to news stations these days for brief amounts of time. The hashing and rehashing of current issues and happenings is just disheartening and serves no real purpose to my mind. Yet he sits there. He has no hobbies, no man friends. I do have friends, I teach one day a week, I like to get out shopping, socializing. He never wants to come with me. Yet, anything he might see offered he would like to attend it’s always we have to go, or do it, together. I know I am just venting. What is, is. It is just hard. He used to be neatly dressed, always sociable….the life of the party. Now if he goes that route it’s with mostly with inappropriate comments, dress, or actions. It’s just hard. I am so glad there is a place to let it all out!

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Boy, do I get it! My husband spends most of the day in front of the TV or asleep when he's not out telling people the same stories about his life that he's told a million times already, often to the same people. Fortunately, he's good-natured and tries to be helpful, which can itself be annoying when he wants to do little things that I can easily and more conveniently do myself, like open the refrigerator or stir my tea. He interrupts me all the time, asking,"Is there anything I can do to help?" He could pull the weeds that are choking our backyard but he'd rather stand outside greeting the dogs and their owners who pass by. Petty, petty, petty. That's how this all sounds, but the worst is, as you say, the person he once was and the couple we used to be are not at all the same. Yes, I love this site. I feel I can say anything and not be judged and no one knows who I am. There's freedom in that. Best wishes to you.

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Profile picture for pamela78 @pamela78

Boy, do I get it! My husband spends most of the day in front of the TV or asleep when he's not out telling people the same stories about his life that he's told a million times already, often to the same people. Fortunately, he's good-natured and tries to be helpful, which can itself be annoying when he wants to do little things that I can easily and more conveniently do myself, like open the refrigerator or stir my tea. He interrupts me all the time, asking,"Is there anything I can do to help?" He could pull the weeds that are choking our backyard but he'd rather stand outside greeting the dogs and their owners who pass by. Petty, petty, petty. That's how this all sounds, but the worst is, as you say, the person he once was and the couple we used to be are not at all the same. Yes, I love this site. I feel I can say anything and not be judged and no one knows who I am. There's freedom in that. Best wishes to you.

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I have the same with helping. Always something I can do, get a drink of water, pick up a paper I dropped, etc.
I too wish he would do something that needs to be done, trim the bushes, empty the dehumidifier, come to the grocery store to help….. but as I said, what is, is. I too am thankful for this site. I have been to counseling for help in trying to cope. But sharing with people who are there, or have been there works better.

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My spouse use to cook dinners, but a couple of over salted mashed potatoes caused her to lose that job. The other night she was washing the dishes by hand. I explained why we had a dishwasher, to sanitize the dishes and flatware. So I've taken over that chore too. It is like having two teenagers in the house again.

I've told myself that there will probably be a time I will look into 'visiting angels' and I've already spoke to her brother and sister about where the best care home would be located and work out best for all concerned. I have a fantasy of flying to Scotland and touring in a rented car for a week. Planning for the future helps to keeps me sane.

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So glad I read all this today! We all need to vent once in a while or I think we would just blow up at an inopportune time!
My husband has MCI - though he tells the doctors he's fine, knows what's going on etc etc - which to some degree he does. But he works very hard lately at putting on that image the few times we're out - I call it his public image. He is declining and it's getting more and more frustrating on a daily basis. The difficult side of him has become more pronounced - and more upsetting. Some days I can't stand it. Fortunately I still work so I have a bit of an outlet. Like elliottw - I too think about making plans where I don't have to deal with all this - a peaceful, fun trip somewhere, just me and my dog. So thankful for this site where there are people who understand.

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