Mayo Clinic For Parkinson’s

MDS is a neurologist who is a Movement Disorder Specialist and is a must for Parkinson’s treatment.

I do not have an answer to your question but I will give some advice about regaining and retaining her ability to speak and swallow. It is never too early to start SPEAK OUT! therapy. This is a program offered to people with PD for no charge. Please go to ParkinsonVoiceProject.org and find a Speech Language Pathologist trained in SPEAK OUT! Most of them offer virtual or in person treatment. 90% of people will have speech or swallowing issues so if she is not having any problems she still needs to go through this program. Remember, there is no charge and no bills to your insurance. PVP is a non profit out of Richardson Texas and the only company in the world to offer this program. It is proven to be affective. Listen to some testimonials on their website.

Ok I did not know that . I took her to Columbia which is supposed to be one of the best places and not only did I wait almost a year to get a appointment the only thing they did was obviously exam her and put her on Dopamine. Didn’t even help me get a handicap script for the car answer any disability questions or state anything that was beneficial other then meds . Very disappointing! Thank You for that information!!! I just got her accepted at the Mayo Clinic so now just have to convince her to go . Thank You !!!!

Wow …. It’s interesting that you said even if she’s not affected because she is fine from the neck up !!! She can’t use her hands and arms and trouble with her legs . She can’t dress herself and obviously can’t do her hair or makeup and can’t cook for her family which she loved to do . I will definitely take your advice . Excited I got her accepted to be examined at the Mayo Clinic . Fingers Crossed . Thank You For the information!!!

You are so very welcome. May I ask what state she lives in? I can send you a brochure if you feel comfortable sending me your address. If not that is perfectly fine. Their phone number is on the website if you have trouble finding an SLP in your area.

My husband was diagnosed 5 years ago. He has never been to Mayo but switched from a local neurologist to a Movement Disorder Specialist at a teaching hospital for a second opinion. Aside from confirming the diagnosis, there is a lot more available there for him. Perhaps this would be helpful and easier for you if there is a teaching hospital not so far from you. I’m so sorry your sister is going through this.

Well I’m sorry for what your husband is going through too . One day our life was normal and then it totally unfolded. I’m definitely going to the Mayo Clinic as I just got excepted and need to feel I did everything and then once back home will make sure I get her to a Movement Disorder Dr as NO One told us that . My sister is really struggling mentally too even though she dosent want to say that . Thank you for taking out the time to give me that valuable information.

We live in Nj . My address is 321 English Place Basking Ridge Nj 07920 . I just got the appointment for the Mayo Clinic . Going in August. Thank you again . This is all so helpful.